Jump to content
helplinedonate
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    

Forums

  1. Forum Information

    1. Discussion Corner Announcements

      General information regarding the Discussion Corner and the use of the forums.

      4
      posts
    2. NPF Forum Member Service Center

      Direct all technical questions or comments here. ***PLEASE DO NOT POST ANY MEDICAL QUESTIONS HERE AS THEY WILL GO UNANSWERED***

      308
      posts
    3. Frequently Asked Questions - How Do I...???

      Step by step guides on how to Register a username, login, change my personal settings, and post my first question in a moderated forum.

      12
      posts
  2. Medical Questions

    1. Ask The Doctor

      Michael Okun, M.D. and Daniel Martinez, M.D. answer medical questions regarding Parkinson's disease and related matters. All posts in this forum are anonymous.Without seeing you and examining you the doctor cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

      24,053
      posts
    2. Ask The Surgical Team

      Kelly D. Foote, M.D. and Michael Okun, M.D. answer questions about surgical matters and Parkinson's disease. All posts in this forum are anonymous. Without seeing you and examining you the doctor cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

      1,867
      posts
    3. Ask about Nutrition

      This forum is an archive about nutrition and Parkinson’s and is not accepting new posts. The suggestions given in this archived forum are for general information only. If you have a question about nutrition, you may post it in the Ask the Doctor Forum.

      9,360
      posts
    4. Ask the Pharmacist

      Mark R. Comes, R.Ph., answers questions on the subject of medication management in controlling Parkinson's disease symptoms.

      4,235
      posts
    5. 1,984
      posts
    6. Talk To A Speech Clinician

      A team of experts answer questions regarding speech and people with Parkinson's disease. All posts in this forum are anonymous. Without seeing you and examining you the speech clinicians cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

      538
      posts
  3. Unmoderated Discussion

    1. Open Forum

      An unmoderated public forum for open discussion among Parkinson's patients and caregivers. Posts in this forum are NOT anonymous.

      40,258
      posts
    2. Newly Diagnosed

      A place where all those newly diagnosed with Parkinson’s disease can share their feelings and opinions. Post in this forum are NOT anonymous.

      5,128
      posts
    3. Caregivers Forum

      A place where caregivers of people with Parkinson's disease can converse and address their unique concerns. Posts in this forum are NOT anonymous.

      5,214
      posts
    4. Young Onset Forum

      A place to connect with other people diagnosed with young-onset Parkinson's disease.

      27,853
      posts
    5. DBS Forum

      A place for those with Parkinson's looking into having DBS surgery, or connecting with those that already have had it done.

      1,851
      posts
  • Posts

    • Need some help from those more enlightened than myself on this topic.  Trying to reduce my costs of living in the cable department.  I am on Cox Cable but would like to trim back cable expenses.    Does anyone use Roku, Slingbox?, Apple TV etc.  There is a wide array of equipment no doubt.   We watch movies and content on some of the premium channels as well as Netflix and Amazon.  My wife like her programming on the regular channels but also likes to save programs to DVR while we are traveling so that has become a hardcore  "requirement".    Anyone care to share their battle with the cable cord? If you use one of the streaming devices please share the positives and negatives as well. Thanks in advance! DB
    • I am in the transition from Sinemet to Rytary so we will see how it impacts  sleep patterns in the next few weeks.   For the most part to date I wake up stiff on the side I sleep on-- CPAP allows me to sleep well with little movement.  I have gotten some leg jitters from time to time before sleep if I watch TV in bed (Myclonic?).   Linda, my avatar is temporarily  a tribute to the venerable F-4 Phantom II  I had the pleasure of flying early in career #1.   
    • Thanks Oto, This has been a really difficult time since last week. I'm almost wishing my wife didn't nag me into getting the stupid tremor checked out. I only went because I started dropping things and my signature started looking crazily on some days.  Now I'm beginning to realize why men stop going to doctors' visits. Maybe not knowing is better. I don't really believe that it's just frustration. Don't worry, I'mhanging in there. -s
    • Hi, pdman.  I'm sorry to hear you have that odd restless leg all-over issue, too.  It's awful, isn't it.  I try to not take more than 4 doses a day, and I try to space them so that my last dose is between 11:00pm and midnight.  Sometimes that will take me through a good night's sleep.  Those times when it doesn't, I may take another dose at around 4:00 or 5:00 am and then can go to sleep again for a few hours.  Depending on when I get up, I may consider that 4:00 or 5:00 dose as the first dose of that new day, and take my regular first dose at a later time in the morning, thus planning my whole day's dosages on that new start time. I don't know if that is clear or not.  I'm not sure it's even clear to me. Some days my dosing schedule works perfectly for me, but other times I can forget to take the dose after turning off the timer and resetting it for the next dose.  This has been happening a lot lately, as my mind is trying to go in too many directions, and I can't successfully multi-task like I used to.   So, in answer to your question, I'm flying by the seat of my pants, so to speak!  Each day is an adventure in Medicine Land.     There are some days I take five doses, and there are some days I wake up and find that there are one or two doses that I didn't take and didn't realize it.  So some days I may have had only three or so doses.  I just do the best I can at this point, which obviously is pretty scatter-brained...  I think I may not be as affected as some are when extra time happens between doses.  I can feel the effects, but not enough that it causes huge problems...
  • Who's Online (See full list)

×