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  1. Forum Information

    1. Discussion Corner Announcements

      General information regarding the Discussion Corner and the use of the forums.

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    2. PF Forum Member Service Center

      Direct all technical questions or comments here. ***DO NOT POST ANY MEDICAL QUESTIONS OR ANYTHING RELATED TO PD AS IT WILL BE REMOVED***

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    3. Frequently Asked Questions - How Do I...???

      Step by step guides on how to Register a username, login, change my personal settings, and post my first question in a moderated forum.

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  2. Medical Questions

    1. Ask The Doctor

      Michael Okun, M.D. and Daniel Martinez, M.D. answer medical questions regarding Parkinson's disease and related matters. All posts in this forum are anonymous.Without seeing you and examining you the doctor cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

      24,680
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    2. Ask The Surgical Team

      Kelly D. Foote, M.D. and Michael Okun, M.D. answer questions about surgical matters and Parkinson's disease. All posts in this forum are anonymous. Without seeing you and examining you the doctor cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

      1,924
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    3. Ask about Nutrition

      This forum is an archive about nutrition and Parkinson’s and is not accepting new posts. The suggestions given in this archived forum are for general information only. If you have a question about nutrition, you may post it in the Ask the Doctor Forum.

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    4. Ask the Pharmacist

      Mark R. Comes, R.Ph., answers questions on the subject of medication management in controlling Parkinson's disease symptoms.

      4,734
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    5. Pregúntele al Médico

      Adolfo Ramirez-Zamora, MD  contesta a preguntas médicas con respecto la enfermedad de Parkinson y a materias relacionadas.

      2,015
      posts

    6. Talk To A Speech Clinician

      A team of experts answer questions regarding speech and people with Parkinson's disease. All posts in this forum are anonymous. Without seeing you and examining you the speech clinicians cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

      538
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  3. Unmoderated Discussion

    1. Open Forum

      An unmoderated public forum for open discussion among Parkinson's patients and caregivers. Posts in this forum are NOT anonymous.

      41,939
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    2. Newly Diagnosed

      A place where all those newly diagnosed with Parkinson’s disease can share their feelings and opinions. Post in this forum are NOT anonymous.

      5,399
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    3. Caregivers Forum

      A place where caregivers of people with Parkinson's disease can converse and address their unique concerns. Posts in this forum are NOT anonymous.

      5,303
      posts

    4. Young Onset Forum

      A place to connect with other people diagnosed with young-onset Parkinson's disease.

      28,937
      posts

    5. DBS Forum

      A place for those with Parkinson's looking into having DBS surgery, or connecting with those that already have had it done.

      1,970
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  • Posts

    • Dr. Okun
      deep brain stimulator battery replacement

      By Dr. Okun · Posted

      It is not common to increase voltage as the battery runs out.....it is possible but you have to be careful after replacement to set the parameters back to the lower level. Rather than do this we like to replace the battery before symptoms recur. Hope that helps.
    • stump
      Welcome to the club

      By stump · Posted

      It's what I need.  It's supposed to be equivalent to 1.5 tabs of regular Sinemet per dose.  What are on is like half a tab of regular Sinemet.  So more like you're on a very low dose than me being on a high dose.     Some people need more than others for good symptom control.  I know, because I did an experiment, that less than 3 capsules at 4x a day just doesn't give adequate control.  If you do get adequate control, for now, with 1 at 3x a day, stick with it.  Over time you'll begin to need more.   And yes, my Azilect experience was pretty bad.
    • Superdecooper
      Welcome to the club

      By Superdecooper · Posted

      Is that a lot? My doc has me on Rytary 95, one capsule 3x a day. I’m a pretty muscular 6’2, 230lbs so I guess that’s why he didn’t start me on a lower dose. You are taking more than three times as much sinemet as I am. But then, you’re not taking Azilect, which I gather you had a bad reaction to.   
    • Beau's Mom
      Good morning!!

      By Beau's Mom · Posted

      Good morning! jb, a five-pound sandwich would feed me for a week.  I'm happy to hear that you are following doctors orders. What a blessing to have a supportive family nearby.  The visit with my daughter is going well. She is sleeping a lot. That is a perfectly acceptable way to deal with a devastating diagnosis. I'm sure she will move forward in her grief process, as we all do. Her husband installed my air conditioner on Monday when the temperature reached the low 90s. He is a kind and patient man and is already looking into support for himself and my daughter. The PBC Facebook page has 3600 members. I pray that they are as kind and helpful as those of us here in Parkyland. Love to all, Dianne  
    • waruna01
      deep brain stimulator battery replacement

      By waruna01 · Posted

      Isn’t it common practice to increase voltage and other parameters  to compensate during later stages of the battery?

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