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      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
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      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
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      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    

Forums

  1. Forum Information

    1. Discussion Corner Announcements

      General information regarding the Discussion Corner and the use of the forums.

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    2. NPF Forum Member Service Center

      Direct all technical questions or comments here. ***PLEASE DO NOT POST ANY MEDICAL QUESTIONS HERE AS THEY WILL GO UNANSWERED***

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    3. Frequently Asked Questions - How Do I...???

      Step by step guides on how to Register a username, login, change my personal settings, and post my first question in a moderated forum.

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  2. Medical Questions

    1. Ask The Doctor

      Michael Okun, M.D. and Daniel Martinez, M.D. answer medical questions regarding Parkinson's disease and related matters. All posts in this forum are anonymous.Without seeing you and examining you the doctor cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

      23,932
      posts
    2. Ask The Surgical Team

      Kelly D. Foote, M.D. and Michael Okun, M.D. answer questions about surgical matters and Parkinson's disease. All posts in this forum are anonymous. Without seeing you and examining you the doctor cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

      1,867
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    3. Ask about Nutrition

      This forum is an archive about nutrition and Parkinson’s and is not accepting new posts. The suggestions given in this archived forum are for general information only. If you have a question about nutrition, you may post it in the Ask the Doctor Forum.

      9,360
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    4. Ask the Pharmacist

      Mark R. Comes, R.Ph., answers questions on the subject of medication management in controlling Parkinson's disease symptoms.

      4,128
      posts
    5. 1,979
      posts
    6. Talk To A Speech Clinician

      A team of experts answer questions regarding speech and people with Parkinson's disease. All posts in this forum are anonymous. Without seeing you and examining you the speech clinicians cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

      538
      posts
  3. Unmoderated Discussion

    1. Open Forum

      An unmoderated public forum for open discussion among Parkinson's patients and caregivers. Posts in this forum are NOT anonymous.

      39,885
      posts
    2. Newly Diagnosed

      A place where all those newly diagnosed with Parkinson’s disease can share their feelings and opinions. Post in this forum are NOT anonymous.

      5,005
      posts
    3. Caregivers Forum

      A place where caregivers of people with Parkinson's disease can converse and address their unique concerns. Posts in this forum are NOT anonymous.

      5,186
      posts
    4. Young Onset Forum

      A place to connect with other people diagnosed with young-onset Parkinson's disease.

      27,567
      posts
    5. DBS Forum

      A place for those with Parkinson's looking into having DBS surgery, or connecting with those that already have had it done.

      1,797
      posts
  • Posts

    •   RE:  dystonia.  Well...as Fred says, PD is never boring...so here is the REST of the story.  WARNING: no one heed my previous experience re:  gabapentin.  I should have known when Diane, the most stable of beings, issued her subtle warning   So, I was doing great with gaba.  I took 300 mg gaba with each l dopa dose...total 1500 mg gaba a day...well below the max Dr Google stipulates...and within my neuros guidelines.  It didn't take but days I was looking forward to the next dose...even to the point of spouting, "Yay, its Gaba time!".  I was so relieved from pain, I thought I could compromise my adamant anti drug mantra. Nothing that good could last forever.  Very soon I noticed emotional swings, and personality issues.  More research showed Gaba is very addictive and can require a difficult withdrawal regimen. Even worse, Gaba can interfere with brain chemicals to cause more irregular l dopa assimillation (as I understand ) and may accelerate Alzheimers..... but not always.     "Everyone is different"  I've stopped Gaba.  Some of you may have seen Dr Okun answer to my question if my muscle spasms are more likely PD or MSA.  His cryptic answer was the dystonia I described is not likely PD.   I've resumed daily stretching with an exercise ball...even while on our bucket list trip.  On a personal note, I drove Big Blue today (our HD trike)..short run to swap vehicles, but included unfamiliar 4 lane traffic, steep hills, trucks and motorhomes. I pulled aside, parked.  Called DH. I was beyond capacity.  In nearly 50 years never a motorcycle accident.  Tonight, as right bicept clenches in tandem with right leg I know it is time to move on.  Hmmmm...two wheels to three...now its time for four wheels to touch the ground...sports car??  with an automatic....smile... On a very serious note, I counsel everyone to reconsider their bucket list...whether it is a motorcycle ride or a walk in the park with a loved one....a favorite memory written to a grandchild......if it is worth doing.....your passion or theirs.....It is my hope and prayer each of you has the opportunity and strength to accomplish it...and then...have the wisdom to know when to change...to accept....to grieve.... to move on. NN PS. To forum members who are confused by my divergent posts...from having painful dystonia in two limbs to riding motorcycles, I understand how perplexing it appears.  Or how I can write and speak with some coherance, but now am not trusted to get out of a grocery store.  Yep, that is the face of PD.  That is me.
    • Every decade that I am in that is past the 5 years mark I always round it up to the next decade.   Why fight the inevitable and I feel even older than I tell people anyways.   I see people like Christie Brinkley and Jane Fonda who look fantastic for their age but then I think how much pressure they put on themselves to stay this way.   Getting saggy and flabby is part of life.  Some just get it faster than others.   I'm raising my hand here.  
    • Some MDs will do anything to make money,but I don't know why the silicon valley is not doing anything to censor these sites online.Until somebody gets killed,before they get sued.Big hope for the cancer drug "nilotinib" treatment for parkinsons.A small trial was positive for a cure or slowing down PD..Waiting for the results of a larger trial,currently recruiting.I also hope the study could be accelerated.
    • Hercules957,                    Is it possible to order your type of mucuna p from Signature supplement to the U.S.A?I see you are located in Canada.
    • jb - I am months away from turning 60 (November) also, and I am not liking it either, even though Linda pointed out that 70 is even harder, I guess it is all relative.  Any ago that ends in zero takes some getting used to........
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