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    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    

Forums

  1. Forum Information

    1. Discussion Corner Announcements

      General information regarding the Discussion Corner and the use of the forums.

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      posts
    2. NPF Forum Member Service Center

      Direct all technical questions or comments here. ***PLEASE DO NOT POST ANY MEDICAL QUESTIONS HERE AS THEY WILL GO UNANSWERED***

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      posts
    3. Frequently Asked Questions - How Do I...???

      Step by step guides on how to Register a username, login, change my personal settings, and post my first question in a moderated forum.

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  2. Medical Questions

    1. Ask The Doctor

      Michael Okun, M.D. and Daniel Martinez, M.D. answer medical questions regarding Parkinson's disease and related matters. All posts in this forum are anonymous.Without seeing you and examining you the doctor cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

      23,826
      posts
    2. Ask The Surgical Team

      Kelly D. Foote, M.D. and Michael Okun, M.D. answer questions about surgical matters and Parkinson's disease. All posts in this forum are anonymous. Without seeing you and examining you the doctor cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

      1,867
      posts
    3. Ask about Nutrition

      This forum is an archive about nutrition and Parkinson’s and is not accepting new posts. The suggestions given in this archived forum are for general information only. If you have a question about nutrition, you may post it in the Ask the Doctor Forum.

      9,360
      posts
    4. Ask the Pharmacist

      Mark R. Comes, R.Ph., answers questions on the subject of medication management in controlling Parkinson's disease symptoms.

      4,099
      posts
    5. 1,974
      posts
    6. Talk To A Speech Clinician

      A team of experts answer questions regarding speech and people with Parkinson's disease. All posts in this forum are anonymous. Without seeing you and examining you the speech clinicians cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

      538
      posts
  3. Unmoderated Discussion

    1. Open Forum

      An unmoderated public forum for open discussion among Parkinson's patients and caregivers. Posts in this forum are NOT anonymous.

      39,593
      posts
    2. Newly Diagnosed

      A place where all those newly diagnosed with Parkinson’s disease can share their feelings and opinions. Post in this forum are NOT anonymous.

      4,966
      posts
    3. Caregivers Forum

      A place where caregivers of people with Parkinson's disease can converse and address their unique concerns. Posts in this forum are NOT anonymous.

      5,148
      posts
    4. Young Onset Forum

      A place to connect with other people diagnosed with young-onset Parkinson's disease.

      27,439
      posts
    5. DBS Forum

      A place for those with Parkinson's looking into having DBS surgery, or connecting with those that already have had it done.

      1,774
      posts
  • Posts

    • I have been reading a lot lately about the human gut biome and how many autoimmune diseases actually start in the gut, particularly Hashimoto.   Recently have been reading that this may be the case with PD.    Definitely following this.     
    • Hello, This is my first post.  I have enjoyed reading and educating myself on here.  I was just diganosed in May 2017.  I year ago I was diagnosed with Hypo Aldosertonism (rare Kydney disease).  For the longest time, I blamed my symptoms on that but my levels were good.  I was sent to a nuerologist and after several clinical test and an adnormal Dat scan I was diagnosed with YOPD at 43. I am on Ropinorole extended release, started me out with 2mg for a week, then 4 for a week, now 6 for this week.  and 8mg next week.  Is this an average dose? what should I expect?  My symptoms are:  extreme fatique, inconsistent tremor in right hand, slowness on right side, and I also shake upper body-(more on right side) when Yawning, I get extremely sore all over and especially in neck and back.  I jerk and shake all night long about every 45 sec or so, resulting in no sleep.  I guess what I am trying to ask is what do I look for?  Medicene has helped sleep and shakiness some but still have symptoms come and go.  Is all of this normal?   thanks for you time...Stu 
    • I think there are at least 5 or 6.  Call the front desk and ask - hopefully they still exist.  Good luck.  
    • Interesting thought - PD being an autoimmune response.  My DH has managed Birdshot Chorioretinitis (birdshot inflammation of the retina) for the last 10 years and this is a known autoimmune disease that happens to attack the retina.  Our eye specialist is renown for her work with this disease and practices at Johns Hopkins where we are now also now "members" of the movement disorders specialty group.  (we should qualify for "group discounts" - ha!). Neither specialist (Thorne the ophthalmologist, nor Mari, the MDS) suggested that either disease was related to the other, but it still makes us curious.  Luckily the meds for each condition (so far) don't conflict with one another. Good luck with your journey. LHG
    • Lonnise:  Do you know whether there are a number of guest rooms here at Oak Crest?
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