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      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
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      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    

Forums

  1. Forum Information

    1. Discussion Corner Announcements

      General information regarding the Discussion Corner and the use of the forums.

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      posts
    2. NPF Forum Member Service Center

      Direct all technical questions or comments here. ***PLEASE DO NOT POST ANY MEDICAL QUESTIONS HERE AS THEY WILL GO UNANSWERED***

      308
      posts
    3. Frequently Asked Questions - How Do I...???

      Step by step guides on how to Register a username, login, change my personal settings, and post my first question in a moderated forum.

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  2. Medical Questions

    1. Ask The Doctor

      Michael Okun, M.D. and Daniel Martinez, M.D. answer medical questions regarding Parkinson's disease and related matters. All posts in this forum are anonymous.Without seeing you and examining you the doctor cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

      24,053
      posts
    2. Ask The Surgical Team

      Kelly D. Foote, M.D. and Michael Okun, M.D. answer questions about surgical matters and Parkinson's disease. All posts in this forum are anonymous. Without seeing you and examining you the doctor cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

      1,867
      posts
    3. Ask about Nutrition

      This forum is an archive about nutrition and Parkinson’s and is not accepting new posts. The suggestions given in this archived forum are for general information only. If you have a question about nutrition, you may post it in the Ask the Doctor Forum.

      9,360
      posts
    4. Ask the Pharmacist

      Mark R. Comes, R.Ph., answers questions on the subject of medication management in controlling Parkinson's disease symptoms.

      4,235
      posts
    5. 1,984
      posts
    6. Talk To A Speech Clinician

      A team of experts answer questions regarding speech and people with Parkinson's disease. All posts in this forum are anonymous. Without seeing you and examining you the speech clinicians cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

      538
      posts
  3. Unmoderated Discussion

    1. Open Forum

      An unmoderated public forum for open discussion among Parkinson's patients and caregivers. Posts in this forum are NOT anonymous.

      40,249
      posts
    2. Newly Diagnosed

      A place where all those newly diagnosed with Parkinson’s disease can share their feelings and opinions. Post in this forum are NOT anonymous.

      5,125
      posts
    3. Caregivers Forum

      A place where caregivers of people with Parkinson's disease can converse and address their unique concerns. Posts in this forum are NOT anonymous.

      5,214
      posts
    4. Young Onset Forum

      A place to connect with other people diagnosed with young-onset Parkinson's disease.

      27,847
      posts
    5. DBS Forum

      A place for those with Parkinson's looking into having DBS surgery, or connecting with those that already have had it done.

      1,851
      posts
  • Posts

    • no one was hurt at all.  He must of been almost stopped. I usually check my mirror before I stop.  Oh, I did, no one there.  I remember that now.  There was a bit of a hill that he would of been behind.   I sat there for the full cycle of red light.  During that time he would of come into view in my mirror and eventually roll into my back bumper.  But what difference would it of made any ways.  ..?   LAD, kids are very savvy and resourceful.  Just think about having fun! Avoiding the hurricanes Linda? Good days to all.  jb
    • Ella-do the happy dance and do what works for you! I do have anxiety- it's my primary trigger for tremors! And it is very real with PD. And often overlooked. I exercise when I'm having a bad day! It helps me to manage it. So....PD or not ... Keep moving!!   LAD
    • You have to be within a couple of feet to establish a connection. I had my SCS upgraded this past summer to a Bluetooth model. The generators only work with apple products and to be more specific, an IPod. Kinda bugs me, because I would prefer to control it with my phone rather than still having to carry a second device. I'm sure the DBS folks have the same issue. Keep us posted on your progress YLopez56. Dave
    • Hi guys, Just checking in here after two hours of testing this morning. I had a nerve conduction test - ouch but thankfully brief - on both arms, done by a technician, and an EMG test of my muscles in both arms, done by the neurologist. Also had the Transcranial Doppler/ultrasound test on the vessels in my brain, eye and throat, done by a tech.  The good news,he said, is that i passed the first two tests. However, I  didn't get results from the third. The neuro said I dont have carpal tunnel syndrome and something else that had a long complicated name, possibly ALS. He did say that the nerves on the left side of my neck were not working correctly - i dont remember the word he used - might have been damaged. Also, that I have pretty significant weakness in my right muscle, as evidence by my inability to push his finger in different directions even  though I was using all the strength I could muster..  He said my cervical fusion was not totally successful and that I was still suffering/impacted/from the fusion which wasn't totally healed. I had the cervical fusion in 2004, so this was news to me. He said the nerves around the fusion were about 80 percent recovered, and that the nerve had rejoined the muscle, just not all the way. The Transcranial Doppler ultrasound test was uneventful for the most part, except for when she examined the back right underside of my head. My right hand, the one with the tremor, started bouncing all over the table like I was playing drums. That was too odd. She said it's possible she was examining a vessel in my brain that caused the reaction. That was too odd. I didn't talk to the neuro after that, but the tech didnt find anything that warranted bringing the doctor in for an immediate discussion. Oh one other thing: was my foot supposed to be cramping when i was getting the nerve test. Super odd. Next week, I get another nerve conduction test of my legs and the EEG test, which he said was like a sleep apnea test, but only with about 20 leads to test brainwave or electrical activity. I did discuss my ongoing sleep apnea with the neuro and also the vivid dreaming and apathy..He just listened and asked a few follow up questions. Maybe after next week's visit he will be able to give me an idea of what's going on. I hope so. ..  
    • Niacin made a huge difference for my fatigue.  I take 1gram 3x daily of regular niacin (full flush) .  If you use it look up info on niacin flushes which you will go through while your body adjusts.  Flush free niacin is not safe to take at high dose
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