Jump to content
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    


  1. Forum Information

    1. Discussion Corner Announcements

      General information regarding the Discussion Corner and the use of the forums.

    2. NPF Forum Member Service Center

      Direct all technical questions or comments here. ***PLEASE DO NOT POST ANY MEDICAL QUESTIONS HERE AS THEY WILL GO UNANSWERED***

    3. Frequently Asked Questions - How Do I...???

      Step by step guides on how to Register a username, login, change my personal settings, and post my first question in a moderated forum.

  2. Medical Questions

    1. Ask The Doctor

      Michael Okun, M.D. and Daniel Martinez, M.D. answer medical questions regarding Parkinson's disease and related matters. All posts in this forum are anonymous.Without seeing you and examining you the doctor cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

    2. Ask The Surgical Team

      Kelly D. Foote, M.D. and Michael Okun, M.D. answer questions about surgical matters and Parkinson's disease. All posts in this forum are anonymous. Without seeing you and examining you the doctor cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

    3. Ask about Nutrition

      This forum is an archive about nutrition and Parkinson’s and is not accepting new posts. The suggestions given in this archived forum are for general information only. If you have a question about nutrition, you may post it in the Ask the Doctor Forum.

    4. Ask the Pharmacist

      Mark R. Comes, R.Ph., answers questions on the subject of medication management in controlling Parkinson's disease symptoms.

    5. 1,984
    6. Talk To A Speech Clinician

      A team of experts answer questions regarding speech and people with Parkinson's disease. All posts in this forum are anonymous. Without seeing you and examining you the speech clinicians cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

  3. Unmoderated Discussion

    1. Open Forum

      An unmoderated public forum for open discussion among Parkinson's patients and caregivers. Posts in this forum are NOT anonymous.

    2. Newly Diagnosed

      A place where all those newly diagnosed with Parkinson’s disease can share their feelings and opinions. Post in this forum are NOT anonymous.

    3. Caregivers Forum

      A place where caregivers of people with Parkinson's disease can converse and address their unique concerns. Posts in this forum are NOT anonymous.

    4. Young Onset Forum

      A place to connect with other people diagnosed with young-onset Parkinson's disease.

    5. DBS Forum

      A place for those with Parkinson's looking into having DBS surgery, or connecting with those that already have had it done.

  • Posts

    • Great poem. I'm a writer as well, mostly fantasy and space opera fiction, but I have enough poems I'm planning on putting out a book of them, which will include a few PD ones as well. I usually write at least one each year in Parkinson's Awareness Month. Let's see if I can dig up the link for this year's poem: http://rickspdjourney.blogspot.com/2017/04/dream-births.html  
    • Symptoms started on my non-dominate side, left side, mostly in my left arm and hand. First dystonia, then tremors by the end of 2012. Diagnosed in 2013 during my first office visit to a neurologist, at which time the tremors were more noticeable. Sometime in 2014, toward the end of the year I think, my right arm began to be affected with tremors, but not dystonia. Now, my right hand tremors worse than my left, but to date has never contracted dystonia. That has stayed only in my left arm. When symptoms start up on the previously unaffected side, that is known as stage 2 of PD. So far, I've not progressed to stage 3, which is when balance issues become a bigger factor, freezing can happen, falls are more likely, and any bradykinesia becomes more pronounced. I'm hoping my exercise regimen for the last 2.5 years and the DBS I'm getting this week will delay stage 3 for many more years. Of course, the earlier you get it, the slower it progresses at first, generally speaking, if there can be any "generally" statements with this disease! Seems everyone experiences it differntly, even if we have many of the same symptoms.
    • Genden - What's wrong with physically restraining someone?  There are seat belts on wheelchairs  and car seats that prevent people from falling over or out so why not a chair or bed?   They don't have to be tight where it cuts off circulations.   When I have my mom in the wheelchair and walk her around the park she likes to take her legs off the feet stand so I use a pair of socks and tie her ankles to them and off we go without any problems.  Would I be cited for that? 
    • Doubleup - I did have a PetScan, I didn't mention it because it really has no significance; I had it done before the DATSCAN was passed in the US,  FDA as a diagnosis for PD.  The Petscan that I had done was in the experimental phase, although, they said he was accurate for PD.  It was not FDA approved, insurance, did not cover.  Long story short, I was desperate for an answer, and paid it out of pocket, my money and effort backfired. I had to  fly to NYC from Bflo twice. Once for a Dr. in NYC to see me and write a script for the scan and then back again for the scan itself.  The scan came back "normal,"  I was very happy and relieved.  About a year later, I read that the Pet scan is not accurate for early PD diagnosis and it is still not passed by FDA for PD diagnosis.......my "bubble" burst.  Not only did my bubble burst, but it sent me down the "well" yet again........... There are people that have had the DATSCAN on this site, Dr. Okun, the Dr. on this Forum reccomends it all the time for PD diagnosis, although, I have heard of a few people that have had false negatives.  With that said, I still think it is as good as you can get in diagnosing PD for now; that is, if Dr. has doubts about clinical symptoms and can't diagnose you. DATSCAN  approval came to US a little late for me, but for you, it may be a good option.   Linda -  I can feel the empathy in your words.  Thank you for understanding.      
    • Hi Scaredforhim, your boyfriend's signs may  be or not be related to parkinson.However ,he needs to see a doctor, preferably a movement disorder specialist.A movement disorder specialist is a neurologist that specialise in diagnosing and treating parkinson disease and other related conditions.
  • Who's Online (See full list)

    There are no registered users currently online