Michael Okun, M.D. and Daniel Martinez, M.D. answer medical questions regarding Parkinson's disease and related matters. All posts in this forum are anonymous.Without seeing you and examining you the doctor cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.
Kelly D. Foote, M.D. and Michael Okun, M.D. answer questions about surgical matters and Parkinson's disease. All posts in this forum are anonymous. Without seeing you and examining you the doctor cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.
This forum is an archive about nutrition and Parkinson’s and is not accepting new posts. The suggestions given in this archived forum are for general information only. If you have a question about nutrition, you may post it in the Ask the Doctor Forum.
A team of experts answer questions regarding speech and people with Parkinson's disease. All posts in this forum are anonymous. Without seeing you and examining you the speech clinicians cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.
ROFL!!!! 😄 You've got the correct pronunciation now, jb!. So the next step is how to spell it. I'm just laughing every time I see it in that sentence above!! I can't help it....!! I couldn't think earlier how it's spelled in a sentence, but I'm pretty sure it is "y'all." But I love the way you've done it. I say go for it and do it your way!
DMy experience was pretty straight forward. I was initially taking Sinemet Regular Release about every 4 hours and Controlled Release three times a day. When Rytary came out it showed a great deal of promise for everyone with PD. I tried it with the hope the hope of improving my quality of life.
My 3 month period started off with a dose that caused dyskensia, even though the conversion was calculated correctly. The next next dosage was low across the day. The first month ended on a mix note with daily dosages being too many or too few capsules which resulted in fluctuations in on and off periods.
The second month consisted of trying to specifically controlling long term symptoms. An attempt was made to add small doses throughout the day. Instead of two doses at once we tried one dose every few hours which was defeating the purpose of the change.
The third month consisted of a combination of Rytary and Sinemet CR. The Sinemet CR had to be added for long term control. It was more reasonable to add 2 Sinemet CR's than 4 or more capsules per day. Eventually the decision was made to return to go back of the Regular Sinemet and Sinemet CR therapy. In many people the Rytary has been a change for the positive. I had long term control issues which were better taken care of with controlled release Carbidopa/Levodopa therapy.
I hope this helps and please keep me posted.