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      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    

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  1. Yesterday
  2. Does any one know of any meditations for people with PD. I use meditation to calm my wiggles before bed. I thought there might me one geared to pt with PD
  3. Sounds delightful, Pathfinder.
  5. Sooner or later we all will need to find this out personally. Tena and Abena works for my mom. Cheap chux has the best prices for Abena which are usually very expensive. Thanks.
  6. Oh, I agree totally, genden. I should have made clear in my post why I posted what I did. I have found the same thing as to price shopping, both on line and in brick and mortar stores. Shopping for groceries is always a journey, as I go to several stores to get the best prices on things that I can. It takes a little longer, but it's well worth if the stores are all within a reasonable distance of each other. Thinking of you and praying for you and your DH in this very difficult time, Linda
  7. RNwithPD, I thank you for your response,your type of button might make some of my patients a little uncomfortable or doubt my ability to be able to care for them.Especially the new ones.The old ones who already knew my abilities before I was diagnosed will probably not mind.I hope you'll get the right combinaton of meds and exercise to treat your dystonia,so that you can walk better.I have slight gait problem too,but exercise helps.It is really a hard decision to quit a job that you love.I am thinking of going back to work,after being on temporary disability for few months,but really don't know what to expect.I guess I am already beginning to stress myself over this.I am sorry that you decided to quit on Friday,but you were at least able to work since the early days after diagnosis.I noticed you are planning to get DBS surgery,so that might help with the dystonia too I guess.I wish you all the best with your surgery and thanks again for sharing your job experience.
  8. jul, always enjoy the precious picture of the kitties and the caption you put that is just perfect, It's cut off in this picture, and I don't remember the exact words. Can you remind me?
  9. I'm posting this in "Just a Little Something About This and That" for your enjoyment/relaxation/escape. It was posted on another support site I belong to for another chronic health condition I have, and I thought it something that people here might enjoy, too. This was posted by that forum's moderator: Linda THIS VIDEO IS TRULY EPIC! THE BBC HAS JUST RELEASED 40 HOURS OF INCREDIBLE PHOTOGRAPHY OF EARTH, IN ALL OF IT'S GRANDEUR, COMPLETE WITH ACTUAL SOUNDS. (Yes, there are 4 ;YouTube videos that are EACH 10 hours in length. They are slow moving and mesmerizing and worth your time to watch for as long as you have time, then bookmark it and resume when you want a time of relaxation. I promise this will astound you. Each scene is about a minute in length so it's easy to pause and resume at leisure. You will see the links to the three other videos. If you don't have time to watch, and you get anxious to see other scenes, just do a fast-forward to get a general overview of what this is all about. You'll be glad you did!
  10. Kevin, I know this has been a hard decision for you to make. You are not alone, as many of us had to come to that same decision, and it was surely not easy. There is great relief, however, in not having to push beyond what a Parkie is able to do comfortably and safely. And there are many pluses to slowing down and seeing all the other things in life that we still can do and enjoy. We're here for you, and hope you keep us up on this part of your journey.
  11. Not that I am NOT a fan, but my strategy is to add one drug at a time....if the combo works then could consider combo drug. Weaning is usually a slow process over a few weeks and no exact right way to do it.
  12. I am not aware of any benefits. I am also unaware of risks but best to get the label and run by the pharmacist and the doc.
  13. I usually try to simply in these cases to Sinemet only as the agonist could be affecting the fatigue. I also move dosages closer together and search for the optimal dose. You just haven't found the right timing and meds yet....that is my bet. Your doc may be trying to hard to limit doses.
  14. Last week
  15. pd, I read the guarantee, and it is indeed good, as were the reviews for customer service working with customers who found that they needed a firmer or softer mattress. So, Noah, that is a real plus for you in terms of ending up with just the right firmness/softness that you want the mattress to have.
  16. Otolorin, I have been a nurse in a cardiovascular step-down unit and a post-surgical unit for 8 years. For the past two years I have been wearing a button on my uniform that says, "I'm Not Nervous, I Have Parkinson's." In the early years of the disease, it mainly only affected my ability to control a computer mouse and to write. Occasionally a patient would ask why I was nervous or shaking. Over time it got to where about 50% of my patients or their family members would ask questions every shift such as: "Why are you so nervous?" "Why are you shaking so much?" or "How long have you been working here?" Whenever they asked this last question, I would question why they asked. To which they would respond with "you seem nervous." So, my wife ordered the button for me in part, because it would help allay the fear of some of my patients that they had an inexperienced nurse, and also inform the patients so that they wouldn't assume the worst without ever asking (e.g. that I was a drunk or druggie.) Because I have developed dystonia in my right leg that interferes with my ability to walk, I have quit working as of Friday and will be going on disability. Not something I wanted to do, but my symptoms have become a patient safety issue so it's time for me throw in the towel. Kevin
  17. Also, Noah, in my post above from 5:34 pm yesterday, the first two posts are from people in our forum who have the same problem that you have with your hip. Just FYI.
  18. Hi Dr Okun You have been a great source of knowledge in this very difficult road. So from your rsponse I gather you may not be a fan of namzaric. Do you believe in just taking aricept alone would be just as helpful then namzaric. And how would I go about weaning my mom off. I am very scared. My Mom has just plain namenda that I can just reducing little by little. Any help I would be grateful. Thank you !
  19. How did you decide on the firmness? I really like that it has border control (not as to immigrants!) LOL! I think what I may mean is that the edges will stay nice instead of indenting from sitting on them. I've wondered if memory foam tends to get hot? (I decided against it when I bought my mattress because my internal thermostat doesn't work very well.)
  20. I hope you didn't take it as a criticism, Linda. Just a heads up that one of the brands I have used for DH is almost half as much in price on Amazon. It pays to price shop. Thanks for the list of recommended brands.
  21. Thanks for looking into this Linda. We bought a king firm and absolutely love it. Check out the guarantee.
  22. Very interesting, pd! I've never heard of this. Noah, this looks like something good to check into. Hope whatever you decide on will work well. I found deciding on a mattress very difficult. There are just too many choices!
  23. okie-doke. I posted that link mainly for the brands that this site seems to recommend thinking that it might be helpful for some who have reported problems re: the issue with those they are giving care to.
  24. Linda, Amazon is much cheaper than your link for briefs and pull-ups.
  25. Packed full of all kinds of helpful information and news: A not-well-known benefit for veterans:
  26. That is in line what I've come across. Which is why I was pushing waruna01 to provide data. I get that a lot of studies are pay-walled, but are abstracts and such are often still available that give some of that data. Thank you for your post. I'm likely still 2-10 years away from DBS. I'm hopeful that by then they'll have figured out a way to reduce the already low rate of complications and nearly eliminate the most severe ones. Whatever the case, when my MDS recommends it I will likely pursue DBS.
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