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  2. RG61

    Term Life Insurance -- Premiums?

    I was diagnosed in 2012 at age 51. Shortly afterwards I purchased 10year term for 250k @ $97/month thru Transamerica. Hope this helps
  3. Today
  4. Gulfvet

    Served at Edgewood Arsenal?

    Not other than creating a large number of collective voices loud enough to make a difference. I have not found a way to accomplish this so far, but continue to reach out to others to get involved. I myself did not realize how large the "family" of veterans with Parkinson's Disease is, until I became a member of it myself. I am a moderator for the Veterans with Parkinson's Disease Facebook group, with new members joining daily unfortunately. With the combination of military service being one of the most environmentally hazardous occupations known to exist and with 90-95% of all PD cases at least having some relationship to environmental exposures, it would be hard to not see some level of connection between military service and PD. Unfortunately, the VA does not easily recognize the obvious all the time.
  5. mathewcarnage08

    23 and me Participants - general PD genetics question

    I used Xcode Life to get more information on my healthafter using Promethease. I found Xcode's reports to be more clean and many conditions corroborated my clinical tests: https://www.xcode.life/23andme-raw-data-analysis-health-reports
  6. Yesterday
  7. Linda Garren

    Good morning!!

    jb, what a wonderful report on how you are doing. So, so encouraging, and I'm so glad you are feeling good things! (P.S. "yawl" is how U.S. Southerners pronounce "you'all") LOL!
  8. bestdosage

    CBD Oil--Does This Work?

    In comparison with other drugs, used for the treatment of these medical conditions, CBD has a better side effect profile. Here's what the National Library of Medicine published: Cannabidiol (CBD), a Cannabis sativa constituent, is a pharmacologically broad-spectrum drug that in recent years has drawn increasing interest as a treatment for a range of neuropsychiatric disorders. The purpose of the current review is to determine CBD’s potential as a treatment for anxiety-related disorders, by assessing evidence from preclinical, human experimental, clinical, and epidemiological studies. We found that existing preclinical evidence strongly supports CBD as a treatment for generalized anxiety disorder, panic disorder, social anxiety disorder, obsessive-compulsive disorder, and post-traumatic stress disorder when administered acutely; however, few studies have investigated chronic CBD dosing.
  9. LAD

    Good morning!!

    my crazy kid...one of 8 characters he portrays for his job LAD
  10. I had Parkinson's genetic testing done through my health insurance. Also had 23&me testing. 23&me is not full testing. I carry a rare GBA mutation that would not be tested for on 23&me. 23&me only tests for a few mutations on a few genes. Nor does 23&me testing meet federal standards for genetic counseling. I was tested on 75 different PD genes - complete genetic testing - not partial. Just on the GBA gene alone there are about 300 mutations. For comparison, 23&me only tests for a couple of the most common GBA mutations. So please do not assume that you do not have any mutations because the 23&me data or Promothese doesn't indicate them. Only tells you may not have the most common mutations. If you have young onset PD your health insurance may pay for full genetic testing and genetic counseling. Mine did. Part of my formal report was to check back in 5 year s or so, as 75 known PD genes now, but in 5 years there may be more.
  11. Last week
  12. TexasTom

    DBS Programming Sessions Per year

    MDS who does my programming. Four times a year.
  13. Adolfo Ramirez Zamora

    PD prevalencia

    Estimados amigos, En una publicación reciente en el journal npj parkinsons disease, reporto recientemente que se predicen más de un millón de casos de la enfermedad de parkinsons para el ano 2030 en los estados unidos, lo que representa un incremento de casi dos veces la prevalencia de la enfermedad desde el 2010. Estos números indican que la enfermedad va a ser un problema importante de salud en el futuro y resalta la importancia de encontrar tratamientos efectivos y para prevenir la progresión de la enfermedad como una urgencia de salud. La participación en estudios de investigación es muy importante para lograrlo. Adolfo Ramirez Zamora MD
  14. Adolfo Ramirez Zamora


    Estimados amigos, La enfermedad de Parkinson es una enfermedad neurodegenerativa que causa una variedad de síntomas motores. Es muy importante el recordar la importancia de tomar las medicinas para la enfermedad a tiempo y discutirlo con su doctor. La presencia de variaciones motoras, es decir, episodios cuando los síntomas regresan o cuando los pacientes desarrollan movimientos excesivos llamados discinesias, requieren un control preciso de los cambios relacionados a la toma de medicamentos. Esto no es posible si las dosis de los medicamentos son erráticas. Recuerden de siempre hablar con su doctor acerca de cómo y cuantas veces toma las medicinas para la enfermedad, ya que en muchos casos la terapia ideal es ajustar y tomar los medicamentos a tiempo. Saludos Adolfo Ramirez-Zamora MD
  15. Linda Garren

    Bible Verses....

    EXPLORE GOD TEAM IS TODAY'S BIBLE AUTHENTIC? Eric Metaxas, author and radio host, tackles this question in today's video. https://www.exploregod.com/is-todays-bible-authentic-video?utm_source=Stream+Subscribers&utm_campaign=9929b64484-EMAIL_CAMPAIGN_2018_07_05_05_08&utm_medium=email&utm_term=0_a67e24147d-9929b64484-131419441
  16. Linda Garren

    Bible Verses....

    Thank the Lord that all the 13 were rescued from the cave! It was a nail-biting few days. Now we need to keep in mind the devastation in Japan, remembering to pray for the families ad friends of those lost in the flood there.
  17. JKBruns

    Served at Edgewood Arsenal?

    Thank you, GulfWarVet, for this additional information. Again your information is very helpful. So while you weren't born yet, my husband at age 77 is well past 60 years old, over 50 years past his service. And while at the time he felt he was lucky not to get sent to Viet Nam, he had a time bomb, PD, set to go off many years after his service. Do you have any suggestions of next steps in terms of getting the VA to comply with the legislative directive to gather and release info re # of vets? Thanks, Jean
  18. MComes RPH


    Waywrd, Thank you for the list. It is one that I have used in the past and is very comprehensive. I am glad to see that your issue is being narrowed down, but I am sorry there has been do conclusive diagnosis. When this happens it can be very disruptive to the patient and even a contributing factor to the issue as a whole. If there is anything I can do for you please let me know. I hope this helps and please keep me posted.
  19. MComes RPH

    Meds At Bedtime

    Robert, Vivid dreams occur in about 30% of the patients receiving Carbidopa/Levodopa theraby. The dreams can be classified as vivid dreams, nightmares, or night terrors. If the vivid dreams or nightmares are interfering with your sleep pattern, you may want to talk to your Doctor about the possible use of a sleeping aid to help with your sleep. I hope this helps and please keep me posted.
  20. MComes RPH

    rytary and quetiapine

    Gene, Quetiapine (Seroquel) may reduce the effectiveness of Levodopa. In addition, using these medications together may increase the risk and/or severity of side effects like low blood pressure, dizziness, lightheadedness, and drowsiness. I would recommend that the medications be separated by at least an hour. This will allow for one to be metabolised before the other is introduced into the body. The order in which they are taken is not of concern because the outcome will be the same. I hope this helps and please keep me posted.
  21. MComes RPH


    Tracey, It may not be the Rytary that is causing the insomnia, but rather Rytary wearing off that may be causing the wakefulness. Wakefulness can be a result when any Carbidopa/Levodopa falls below the therapeutic level. Rytary and Sinemet contain the same ingredients, Carbidopa/Levodopa. Sinemet CR is a controlled release formula of Carbidopa/Levodopa which lasts longer dose per dose. Rytary is comparable the regular release Sinemet when dosed. I hope this helps and please keep me posted.
  22. MComes RPH

    pain medicine

    Noah, I prefer and recommend Ibuprofen (Motrin, Advil) over Acetaminophen (Tylenol) when it comes to pain and/inflammation relief. First, because it is more effective. Two, because Acetaminophen is metabolised by the liver which can cause a hindrance or delay in metabolism of other medications, like Trazadone. More than 60%of the prescription medications available are metabolised in the liver, so taking a medication that is not primarily metabolised in the liver can lessen the amount of drug-drug interactions. One note of caution, Ibuprofen can be hard on the stomach so it advised to be taken with food. I hope this helps and please keep me posted.
  23. jb49

    Good morning!!

    Hello Bard, thanks, Yes, I definitely am doing better with my programmed stimulater in conjunction with the levadopa. The meds on, meds off cycle is closer timed out, Every 4 hours thereabouts I reqire my Levodopa, carbadopa (100/25). I get full measure for my on time and the off time is not nearly as harsh. I think. I still have a funny feeling that there is a stimulater running into my brain, which there is, but I actually feel quite good. Fingers are crossed. Hang onto that Canadian penny Hope. Best wishes to you'all. jb
  24. coacht


    Thanks Golden
  25. DaveN

    PD and immune system response

    Drummergirl, I feel for you. My Oncologist was stumped when all of my advanced labs came back. That was five years ago. According to him, I should be wearing a mask at all times and avoid contact with anyone that is ill. I have limited contact with people most of the time. I still get sick but no more than the average bear. I did have a scare a couple of years ago when I forgot to take the preventative antibiotic prior to having my teeth cleaned. I ended up with a nasty infection around my spinal cord stimulator battery that took about a month to eradicate. My secret to healthy living is that I eat 3 to 4 oranges every day. Stump, I don't recollect how much the labs cost. I'll make an effort to check my records to see if I can find out. I've been hitting my deductible in January because of the high cost of Rytary and Azilect (generic is still expensive). Dave Note: I started taking Sinemet about 3+ years ago and switched to Rytary after it was approved by the FDA.
  26. stump

    PD and immune system response

    Do you know what the blood test usually costs? With my high deductible, even if it is "covered", I'm likely to be out of pocket for a test like that. And I'm not exactly flush with cash.
  27. Drummergirl

    PD and immune system response

    Dave, Thanks for your input on this. There needs to be more awareness given to this topic. We often read of PD patients who ultimately pass from complications such as infections, not directly from PD symptoms themselves. For the last 4 years I have had swings of flu-like symptoms, feeling run down, had strep 2-3 times a year. This is abnormal for me. After journaling these symptoms and such, it revealed that I felt great when I was on an antibiotic, (Specifically Amoxicillin) I would decline again post antibiotic. Upon my suggestion, they tested my immune system and it was low. I was referred to an Immunologists who ran numerous labs for 6 more months as she was stumped with the low and continued declining immunoglobulins levels. She ordered more detailed labs, some of these labs were mailed to the Mayo clinic. Their findings revealed my B cells are high, which typically points to a blood type cancer. specifically my CD19 cells, which are double the normal. Again thinking (Lymphoma). I was referred to Hematology/Oncology. They didn't have me under go a bone marrow because the CD19 cells were the only alarming number, and all my other blood labs are in the normal range. They too had no explanation for this. I have ben researching this a bit over the last several months. I have found other Pub med sites supporting that long term use of Carbidopa damages the immune system and should be replaced. Im saying this next part cautiously, as many on the forum take Clonazepam. I was also told by two physicians that long term use of Clonazepam suppresses ones immune system also since it effects every organ in the body. Stump, getting tested sure can't hurt. It's a simple blood test. Another interesting note; when I'm taking an antibiotic, I average 4 LESS doses DAILY of Carb/Levo which for me equals- 2 less 25/100 a day, since I take a 1/2 tablet.
  28. Wrkjnky13

    Social Security Disability...who has been denied w/PD?

    I have applied for Social Security and denied twice. I'm 42 and my Parkinson's progressed quickly. The reply was at my age I should be able to do some kind of gainful work. Never referred to a social security doctor. Appealed for a hearing. Not old enough to retire early from my union although I can no longer do that work. There's no on the ground job for an ironworker. When/if SS finds in my favor I can retire from the union. The stress of supervising work is not an option. Tremors and dyskinesia would run wild. Anxiety is also the issue. I've been trying for a year. Security lawyer to help with the situation. He said a hearing could take 19months. I haven't worked in almost 3 years. Really a struggle. I qualify for dbs but not disability. I agree with Dan days I feel great like I should be at work. Then the next day or even hours later I have a hard time walking. It was really hard to admit I couldnt go back to work. Maybe at McDonald's with the salt shaker.jk My suggestion apply as soon as possible. Make sure you submit a daily log of your symptoms or off times. I found this out after but heard it helps. This is what Imakes going through. A pilot I know had no problem the first time. While othersome are still fighting.
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