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  1. Today
  2. Need help, Hate knowing its Parkinsons

    Two herbs that I can recommend in addition to exercise would be thripala and ashwaghanda. They are excellent brain tonics.thripala will also improve digestion

    It is hard to tell online but this does not sound like dyskinesia. Dyskinesia is usually not linked to postural instability. In some cases wearing off Sinemet may result in worse balance and getting the timing and dose right may be important here(maybe a higher dose and possibly closer interval?) These are issues you and your doc should work through. Dopamine agonists are longer acting and in some cases can be added safely to Sinemet but there needs to be monitoring for side effects like impulse control disorders.
  4. Tremor vs. Myoclonus

    You could have Parkinson's disease and the best way to know is to see an expert over many visits and see how things progress or do not progress. DATs can be tricky to interpret. Your videos did not open, but regardless my best advice is to see a good neurologist multiple times over the course of a year.
  5. Symptoms but to nervous to be diagnosed.

    These symptoms do not sound classic for Parkinson. Maybe you can get to a neurologist if you are worried and he/she can examine you.
  6. Baclofen side effects

    Good luck.
  7. Mono Medication

    Thanks for the question. None of my patients use Immunocal. Recently we wrote an article in JAMA that reviews current Parkinson therapies. Here is the link: https://jamanetwork.com/journals/jama/article-abstract/2650798?redirect=true
  8. What Happens When Sinemet Stops Working

    Hang in there. I think you may have tried it but just in case there is a newer blood pressure medication called Northera.
  9. Help with Duopa pump

    With amantadine always watch for kidney issues (this may be a reason not to take it or to take a lower dose). Most people tolerate 100mg three times a day.
  10. Subcutaneous carbidopa levodopa pump

    The studies that are registered are usually searchable at clinicaltrials.gov I just looked and the best is to use the search term apomorphine pump
  11. LODOSYN (Carbidopa)

    25-75mg of carbidopa per dose has been helpful for nausea. There is also a drug called domperidone.
  12. DaTscan and Diagnosis Difficulties

    Abnormal DAT scans are common in movement practice but only tell the doc that there is an abnormality in the dopamine transporter. Rescanning over time to track disease progression has not been to date shown useful. You can try Sinemet without causing down the road problems. If you try sinemet and you do not have PD there is no evidence to date that this is harmful.
  13. Doctor says symptoms 'consistent with' PD

    Pixel Paul, Sorry for joining in the welcome party so late. Your story sound familiar to almost all of us. I hope you find some relief from the Azilect as I did when I first started it. Hang in there, the first year is rough. Just know that the life you thought you would have hasn't ended, it just looks different. I can honestly say that after I finally adjusted to my new reality I am more happy now than I have ever been. Blessings Adam
  14. Good morning!!

    Another good one ..."if you can't be kind, be quiet."
  15. Yesterday
  16. Subcutaneous carbidopa levodopa pump

    How long is the study and where is the study site I would love to participate but I had dbs I am hoping this works, What we need is something like an insulin pump.
  17. Lyme induced parkinsonism

    As I understand it and I am certainly not a physician but if you responded to PD medication it may be likely it is not Lyme induced parkinsonism.
  18. Lyme induced parkinsonism

    Yes. In addition, the symptoms of PD and Lyme Disease are significantly different.
  19. Lyme induced parkinsonism

    Have you responded to PD medications?
  20. Doctor says symptoms 'consistent with' PD

    Hi Paul, Glad to see another Ohioan here! I am near Cleveland. I was diagnosed 16 years ago at the age of 33. I have never had a problem with tremors, but I do have issues with the other hallmarks of PD...bradykinesia (poverty of movement) and rigidity. Slowness on the left side and lack of arm swing were my initial symptoms. Currently, in addition to a host of "normal" PD symptoms, I am also dealing with alot of dyskinesia from being on PD meds for so long. PD is experienced very differently from person to person, but thankfully, it is a manageable disease overall. Sorry you have had to join the group, but you've found a very supportive and knowledgeable resource in these forums. Hang in there and feel free to ask as many questions as you need. Chances are, someone here will have an answer, a thought, or (at a minimum) will know someone else who does! Peace and blessings, Mihai (Michael)
  21. Good morning!!

    Be kind to yourself
  22. Good morning!!

    Good morning to all of my Parky forum friends, I let too much time go between postings. I am sorry for that. My days are longer even though I accomplish less each day. My evenings are a crash on the couch into a tired poor quality sleep that I wake from, do what needs to be done, put wood on the stove and the dog out for a whiz, and then off to bed thinking I will gety caught up on correspondence tomorrow. Caught up becomes elusive. I need to revise my goals to match my capabilities I sometimes think, But with my muleheaded stubborness I continue to push on. The sap has run really well this year. The woods are free from snow and gathering has been the easiest ever. But it has tested my body. I have had times this season where I have had to walk away from situations where I can't do a task. My brothers and neighbours who have helped in the past, now shoulder more of the work although I give up shares of the responsibilities with reluctance. So my thinking has evolved some with those surrenders. I need to make the process easier and so I made a double snatch pulley to lift up pails of sap 4feet to dump into the boiling pan. That saved a lot of shoulder and back strain. I realize that I am now living within a 60 year old body that has been pretty physical and the joints are getting worn and muscles strained. I don't pin all of my limitations on Parkinsons, I know some of it is due to regular aging. Im not complaining, sorry, I guess I am. It is pretty hard to stand there at the end odf the day and have to ask your brother to help you get your coat pulled onto your shoulders. But then, 11 yearss into this crappy disease, I am happy to be able to do what I can do. I have, correction, we have bottled 67 litres oif maple syrup. And Happy St. Patricks day to Em and Sean in Ireland and all of the other Irish folk. Enjoy your big day. Nice to hear from you Peace. Hello Dianne, Linda and Marcia who may be still looking for some good snow to make as snowman. Be safe, be strong, be kind to others and ................. I sit here pondering that last phrase. What do you think it should finish with. Good days to all. Be safe, be strong, be kind to others and .................
  23. Summer adventure season starting

    I'm going to raise a batch of meat chickens partly because of that book. They're supposed to arrive Thursday next week as 2 day old chicks. Trip to freezer camp set for mid-June.
  24. Young onset PD testing

    I appreciate the responses more than you know. In talking to the MDS, he is using the Levodopa challenge as a test of exclusion. He did say that some of the symptoms should have improved after 5 weeks, but they have not. Unlike most diseases, this beast has no simple conclusive testing to identify its presences. Patience is a virtue that hasn’t graced me yet at 45 yo. Continuing the chase for answers. Thank you all for the feedback.
  25. Doctor says symptoms 'consistent with' PD

    My symptoms started on my left side and the constant tension in my leg was frustrating. I started worrying that I'd never be able to fully relax my body again. It's one of those things you take for granted until you can't do it. Luckily levodopa gives me relief and now when I relax I take mental note and fully appreciate the feeling.
  26. Do any of you here sleep - I get little or none

    BigRingGrinder-I've tried most of what you mentioned in your great post and have found they all help to some extent. I was very interested that you mentioned eating because that helps me a lot but I didn't know why.
  27. levodopa long release

    Cool! More options for extended/controlled/long release meds is always a good thing.
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