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  3. em45

    Good morning!!

    I don't believe it mimi, let me know if your heading for County Kilkenny...enjoy
  4. otolorin

    Good morning!!

    jb. Thanks for your insights as you heal.Get some hot packs for your shoulders.
  5. MIMILASTER

    Good morning!!

    Funny, EM, I am currently visiting your country ! I am in Cork. Love Ireland, such friendly people. mimi
  6. em45

    Good morning!!

    Listen to Mireillle, jb take it easy.. Take care, Em
  7. MIMILASTER

    Good morning!!

    Maybe you are going top fast. You should rest, rest, rest . Hang in there ! You ´ll make it big hugs Mireillle
  8. jb49

    Good morning!!

    I am having some trouble gettiing my thinking and work skills back together.
  9. Last week
  10. Linda Garren

    Good morning!!

    Thanks, Marcia. I should have thought of that.
  11. waruna01

    insomnia

    I believe Dr okun said in this forum that melatonin can actually make sleep problems worse.
  12. fire1fl

    insomnia

    A member of my household with chronic insomnia was cured by using "REMFresh" - a timed release version of melatonin. It was recommended by a physician sleep specialist who said it's a last resort before sleep aid CNS drugs.
  13. MIMILASTER

    Good morning!!

    I had a first DBS in March 2000, but one electrode was suboptimal. So I had resurgery on that side in 2002, which improved the result quite dramatically. Resurgery was done in Grenoble by the Benabid team.
  14. Beau's Mom

    insomnia

    Read up on sleep hygiene. Suggestions are using the bed for sleep and sex only. No TV or electronics in bed. The screens put out a type of light that interferes with sleep. Go to bed and wake up at the same time has already been mentioned. If you don't fall to sleep or wake up during the night, try to relax for 20 minutes. If you still can't sleep, get up and read an unexciting book or magazine by lamplight. Do not watch TV or use any electronics. Have a light snack or warm decaffeinated beverage. As soon as you feel sleepy, return to bed and try sleeping again. I use an app named iSleep Easy from the app store. I created a playlist that works for me. There is one titled Wee Hours Rescue for waking up in the middle of the night. This allows me to sleep 7 to 8 hours each night. Sweet dreams! Dianne
  15. Golden01

    Social Security Disability...who has been denied w/PD?

    As Hunter Dan says, "paperwork in order and the proper teminology while being asked about it help". Consistency on the various forms (and over the years) really is important. When my husband's MDS changed practices, she waited to get the copies of the her past forms to before completing the annual form required for employer's disability company so she could be "consistent".
  16. TexasTom

    Good morning!!

    Good Morning Everyone. I was off for a few weeks of road trip/camping Goals for 2018/19. Buy Van Grab a kiddo for a week and do a road trip. So one kiddo down; three more to go Dinner over a stove, with my faithful friend watching. A van big enough to not only sleep in, but do some morning stretches
  17. otolorin

    Social Security Disability...who has been denied w/PD?

    Thanks, Dan and Golden01. I will discuss extensively with my doctors.
  18. Hunter Dan

    Social Security Disability...who has been denied w/PD?

    You really don't have to go to SS on an off day . You have to describe your symptoms when they are at there worse . I have good days where I feel guilty that I had to stop working. Then on most other day's I know exactly why I can't . As Golden01 said your Doctors documentation is key . And explaining it to the SS Dr. which are usually contracted out and I'm sure been advised and trained to look for the scammers . Even my family Dr. when he originally suspected PD , told me he was a general medicine guy that knows PD but not as well versed as a specialist . It is a crap shoot , but with paperwork in order and the proper teminology while being asked about it helps . Buzz words like I'm certain instead of I guess so . It is a mentally challenging and frustrating process . Especially when we all know someone who was awarded SS and works harder on side projects and in their yards than they ever did at work ! Good luck !!!! Dan
  19. waruna01

    insomnia

    Going to sleep and waking up at the same time is a good habit. Caveat, you have to wake up even if you don’t get much sleep at your designated time and follow the same principal for sleeping time. Sleep at the same time whatever other priorities you may have.
  20. Golden01

    Impulsive Disorder/Pathologica Gambling

    Run, don't walk to your MDS. Take someone along who can also describe what you have been doing. Sometimes, the doctor can just decrease the dose, sometimes you need to get off the medicine. My husband's MDS differintiates between harmful compulsive behaviors (gambling, shopping, sex) and those that are less worrisome (excessive hobbying, for example). Either way, don't delay.
  21. Doubleup

    Impulsive Disorder/Pathologica Gambling

    I tried Mirapex and it didn't work for me... Felt horribly tired and just could not overcome the side effects. I really wanted it to work but after almost 2 weeks of misery I gave up... Azilect on the other hand does help and I don't find I am impulsive, just less stiff and feel a bit better when I take it... Funny thing is in the couple years before any physical symptoms and no meds is when I was most impulsive... I bought cars, toys, fancy vacations... It was like I was seeking filling a void and once I got whatever it was it was still not enough... I researched this a lot and seems to be a part of our reward circuitry failing as the dopamine levels deplete... We tend to need bigger and bigger extremes to "feel that natural high" that used to come as easily as smelling a scent or a good song... Now for me very little gives me this sensation anymore... Guess sadly my dopamine is just too low... If the advise is for you or someone else I would suggest taking to the doctor about it for one... Beyond that I would also try to find a "free hobbies" to do that wont end in bankruptcy... There are gambling type games that do not involve money... Buy a Playstation, play cards with friends...
  22. MComes RPH

    ER vs 3x/day

    There are a couple of reasons. Usually a doctor will start someone on the regular release and increase accordingly strength or how many times a day. This will also give a patient better control of when their symptoms come up, they can just take a regular strength. If someone does well on the regular and you pretty much know when the off times might come about, then one could change to the ER. If you take the Regular Release 3 times a day, you may be able to get away with take 2 of the ER a day. The main outcome you are looking for is to decrease the amount of tablets a day. If 3 a day of the regular release works well and off periods are in control, I wouldn't change something that's not broken. I hope this helps and please keep me posted.
  23. Doubleup

    insomnia

    I wish I could help! Melatonin and even prescription sleep aids only "get me to sleep" however do not keep me asleep... 2-3am, I awake then I start with the light/REM sleep and random dreams and awakenings... It really sucks some nights... I do find some mind space apps do help me relax before bed. Headspace is one of them, I also use another called Calm... There are many designed to relax your mind... Would love to hear other tips as well
  24. MComes RPH

    Generic Azilect price

    No new update. Looks like it has stayed the same. Sorry
  25. Linda Garren

    Just Interesting Things about This and That

    “Progress in America does not usually begin at the top and among the few, but from the bottom and among the many. It comes when the whispered hopes of those outside the mainstream rise in volume to reach the ears and hearts and minds of the powerful.” (Pro. 31:8-9) (From Jon Meacham's The Soul of America as reported in Daily Briefing by Nick Pitts, PhD, Executive Director of the Institute for Global Engagement at DBU
  26. Christian V

    Lost waiting for a diagnosis

    I haven't posted over there yet, but I'll definitely do so. The more answers I can get the better! Thanks for the advice.
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