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  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    

Forums

  1. Forum Information

    1. Discussion Corner Announcements

      General information regarding the Discussion Corner and the use of the forums.

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      posts
    2. PF Forum Member Service Center

      Direct all technical questions or comments here. ***DO NOT POST ANY MEDICAL QUESTIONS OR ANYTHING RELATED TO PD AS IT WILL BE REMOVED***

      321
      posts
    3. Frequently Asked Questions - How Do I...???

      Step by step guides on how to Register a username, login, change my personal settings, and post my first question in a moderated forum.

      12
      posts
  2. Medical Questions

    1. Ask The Doctor

      Michael Okun, M.D. and Daniel Martinez, M.D. answer medical questions regarding Parkinson's disease and related matters. All posts in this forum are anonymous.Without seeing you and examining you the doctor cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

      24,405
      posts
    2. Ask The Surgical Team

      Kelly D. Foote, M.D. and Michael Okun, M.D. answer questions about surgical matters and Parkinson's disease. All posts in this forum are anonymous. Without seeing you and examining you the doctor cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

      1,867
      posts
    3. Ask about Nutrition

      This forum is an archive about nutrition and Parkinson’s and is not accepting new posts. The suggestions given in this archived forum are for general information only. If you have a question about nutrition, you may post it in the Ask the Doctor Forum.

      9,360
      posts
    4. Ask the Pharmacist

      Mark R. Comes, R.Ph., answers questions on the subject of medication management in controlling Parkinson's disease symptoms.

      4,457
      posts
    5. 2,002
      posts
    6. Talk To A Speech Clinician

      A team of experts answer questions regarding speech and people with Parkinson's disease. All posts in this forum are anonymous. Without seeing you and examining you the speech clinicians cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

      538
      posts
  3. Unmoderated Discussion

    1. Open Forum

      An unmoderated public forum for open discussion among Parkinson's patients and caregivers. Posts in this forum are NOT anonymous.

      41,321
      posts
    2. Newly Diagnosed

      A place where all those newly diagnosed with Parkinson’s disease can share their feelings and opinions. Post in this forum are NOT anonymous.

      5,301
      posts
    3. Caregivers Forum

      A place where caregivers of people with Parkinson's disease can converse and address their unique concerns. Posts in this forum are NOT anonymous.

      5,285
      posts
    4. Young Onset Forum

      A place to connect with other people diagnosed with young-onset Parkinson's disease.

      28,594
      posts
    5. DBS Forum

      A place for those with Parkinson's looking into having DBS surgery, or connecting with those that already have had it done.

      1,938
      posts
  • Posts

    • Thanks Dianne for suggestion, i will check Patients Like Me. I am enjoying Rainier views when  i am crossing bridges, but picture in avatar is Mount Fuji. Took it during my Japan trip with my son last May - few months before diagnosis. I already had a feeling that something wrong with me in a big way, so mount Fuji is a starting point of PD journey for me and i hope to climb this mountain for a while  
    • George, we are neighbors. You have a much better view of our mountain than I do, though. I've used a website called Patients Like Me to keep track of my symptoms. It's very user-friendly and it's free. You enter your diagnosis, medications, symptoms and it provides checklists which, over time, show graphically how you're doing. They have the same Hoehn & Yahr questionnaire your doctor uses. You can print your graphs in preparation for a visit to your MDS. They send you a reminder every day to ask how you're doing. You can enter data as frequently as you like, and compare your scores to others. Dianne    
    • Any time Noah.
    • Thank you for all your support 
    • Hello,  Are you self documenting you progression, symptoms, drug side effects? I found for myself that it is hard to look back 3-6 months from now and quantify to tell what i had and how i progressed. i believe that it should be beneficial to have some sort of journal and reference to look into once in a while. Medical record format is too narrow and frequency of MDS visits not allowing to have detailed picture. Does anyone found it useful and have enough self discipline and habit to keep such records for long period (> 12 months). If yes can you share your advise to make it useful and how to stick to it?    
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