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  • Posts

    • Thanks so much for sharing this, NN.  You have helped me immensely through all your posts, but this one is striking in its courage and candor.  I wish you all the best--- and that none of these plans are needed, and that you will both end up with "plain old PD".  In the meantime, you have given me a great deal to think about, and a road map for a future I hope never happens to any of us.  You and your dh are in my thoughts and prayers. 
    • My sincere sympathy to you Linda.  I completely understand the grief of losing a furbaby.  I have lost many and each have taken a piece of me with them.  We can never replace them, but their light can shine down on another.  Sounds like Madi is shining down on Dusty.  It is common to have more than one cat, but many times they do prefer to be an "only."  I am an "only" myself, so I recognize this Stump, you make an excellent point about them being so dependent on us, that it is truly better, as hard as it is to bear, that they go before us. I have made provisions for my Ella, she has a "Godmother," a much younger person than I, because Ella is only 5 years old and I am almost 60.  Ella's Godmother is an animal lover, we have "training" sessions every so often though, because Ella has some very special needs for her care.  It gives me peace of mind to know my furbaby will be cared for the way I wish.
    • Update:  I had planned to talk to our friends without DH....cuz he is very private.  I could not bring myself to do something w//out him so invited them to our home.   Actually, it helped DH speak about our future.  We made plans for each scenario...DH will have assistance if I am in hospital...I will have an advocate at the hospital...and vice versa.  They gave us numbers of reliable psychologists, paralegals, attorneys, house keepers, lawn care.  I gave them children's contact info.  I even mentioned that we would need to fly "home" so select a mortuary that works with airlines.  To some, this may be gross...I've learned often there are more than weeds in the details. As they were leaving, a "handy man" came who had been recommeded to help us....perfect for our needs.  Admitting DH can't do regular home maintenance was difficult...but once in the open...with a few tears from DH....there is relief in our home.  Humility is not a bad thing.  It should not be confused with weakness.  For some, it takes more strength to admit limited capacity.  That same day, we received a letter from VA doctor stating DH has obvious PD related to Agent Orange....a second doctor to affirm DH dx/agent orange.  It means the possibility of VA assistance that will help with expenses for our support team.  Tomorrow, we go to cardio for options for orthostatic hypotension (OH).. After recording our BP for a month, it is likely both of us may be facing MSA.  DH dropped systolic at times 40+... with maximin being 20.   I am speaking the worst case scenario..  Obviously, this may prove we have PD only.  However, after DH had tilt table test showing OH, our neuro tapped our charts together.."well, looks like you both may have the same dx."  So, checking out the river ahead is not wasted time. Thanks for letting me vent...hope to schedule time with counselor.... it is not for everyone...but for we who need to talk it out, it will make my posts MM, yes, I continue to plan our own future w/out our children's assistance.  I'm looking for a couple to serve as caregivers...perhaps living on our property.  It is cheaper for us to remain in our home than be in assisted living.  Things are moving..or "drifting" fast for I'll also soon look for assisted living have alternatives...cuz the better ones have waiting lists. Hope these vignettes of my personal life help someone...I know we are not alone...neither are you. Keep swimmin' even when the currents get stronger...(smile) NN
    • I've chosen generally to stay out of this thread due to the comments by Roger and pdmanaz and similar folks.  Perhaps I shouldn't stay away, but I just have so many other things to do with my time.   That said, Linda - Welcome back!  Very sorry to hear about your cat.  It's the somewhat downside to having pets that we usually long outlive them.  But, I'd rather outlive my pet than the other way around as they are so dependent on us.  I've had to put down a couple dogs and my cockatiel died of extreme old age.  It never gets any easier.
    • So, LUKE this thread is only for believers?  Hhhmmm ok. Got it. Please help everyone on here understand that. Special and exclusive club. So in this club you can disparage those of a different moral persuation, still trying to prove to the world that being LGBT is a choice lifestyle. Do you receive comfort from that? Does that help your PD?
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