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      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
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      Recursos Nuevos en Español

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      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    

Forums

  1. Forum Information

    1. Discussion Corner Announcements

      General information regarding the Discussion Corner and the use of the forums.

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    2. NPF Forum Member Service Center

      Direct all technical questions or comments here. ***PLEASE DO NOT POST ANY MEDICAL QUESTIONS HERE AS THEY WILL GO UNANSWERED***

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    3. Frequently Asked Questions - How Do I...???

      Step by step guides on how to Register a username, login, change my personal settings, and post my first question in a moderated forum.

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  2. Medical Questions

    1. Ask The Doctor

      Michael Okun, M.D. and Daniel Martinez, M.D. answer medical questions regarding Parkinson's disease and related matters. All posts in this forum are anonymous.Without seeing you and examining you the doctor cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

      23,577
      posts
    2. Ask The Surgical Team

      Kelly D. Foote, M.D. and Michael Okun, M.D. answer questions about surgical matters and Parkinson's disease. All posts in this forum are anonymous. Without seeing you and examining you the doctor cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

      1,867
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    3. Ask about Nutrition

      This forum is an archive about nutrition and Parkinson’s and is not accepting new posts. The suggestions given in this archived forum are for general information only. If you have a question about nutrition, you may post it in the Ask the Doctor Forum.

      9,360
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    4. Ask the Pharmacist

      Mark R. Comes, R.Ph., answers questions on the subject of medication management in controlling Parkinson's disease symptoms.

      3,962
      posts
    5. 1,937
      posts
    6. Talk To A Speech Clinician

      A team of experts answer questions regarding speech and people with Parkinson's disease. All posts in this forum are anonymous. Without seeing you and examining you the speech clinicians cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

      536
      posts
  3. Unmoderated Discussion

    1. Open Forum

      An unmoderated public forum for open discussion among Parkinson's patients and caregivers. Posts in this forum are NOT anonymous.

      38,748
      posts
    2. Newly Diagnosed

      A place where all those newly diagnosed with Parkinson’s disease can share their feelings and opinions. Post in this forum are NOT anonymous.

      4,783
      posts
    3. Caregivers Forum

      A place where caregivers of people with Parkinson's disease can converse and address their unique concerns. Posts in this forum are NOT anonymous.

      5,046
      posts
    4. Young Onset Forum

      A place to connect with other people diagnosed with young-onset Parkinson's disease.

      26,838
      posts
    5. DBS Forum

      A place for those with Parkinson's looking into having DBS surgery, or connecting with those that already have had it done.

      1,716
      posts
  • Posts

    • Be VERY careful of klonopin. Addiction is easy and rapid, and "tolerance withdrawals" are almost a given, meaning you will take more and more.
    • Thanks Christie. My progression is definitely NOT rapid, and I've seen 3 different MDS guys (including Dr Okun), so I suppose it's probably absorption or something else.
    • In that case, atypical degenerative parkinsonism (Parkinson's plus syndrome, such as MSA, PSP or CBD) is a possibility, provided there are also other symptoms/red flags suggestive of these syndromes AND rapid disease progression. Notably, the primary criterion of PD exclusion, i.e. non-response to levodopa, must be confirmed by an experienced MDS. In many cases levodopa doesn't seem to work due to other causes (absorption issues, dose adjustment issues etc. ). When these problems are corrected, the patient responds...
    • BtW, Tom...use a debit card... go online to chk yr balance..all recorded..and current. 😊
    • Tom, Glad you posted.. I relate so much. Results of diminishing cognitive/psych exams tell the story.  However, it doesn't reflect the impact I'm experiencing.  Yeah, I dont match  colored cards...ok...that does not equate to the slaps I feel ...not just the embarrassment...but losing confidence.  Lately, when asked a question, my response is followed with, "Are you sure?" Beau's Mom, Diane, often speaks of the "grief process" with each change in symptoms...denial, anger, acceptance.  She is correct. I posted before that cognitive skills are the hardest...cuz one feels alone...hiding deficits...while disappearing....no one hands you a crutch when ya fall. Tom, I think I'm in acceptance phase now.  I no longer help DH in finding locations in the car..(smile)...not only do I dont know where I am .....DH doesn't listen to me...lol... I worked for a lot of letters after my name...and now it means nothing.....can't do simple math, can't follow directions from automated phone "people".... the list is long.  I'm ok with it.  I've posted before, but bares repeating:  I'm no longer a professional, no longer a mom, I seldom leave the house...I am a shadow of myself....I've pondered...why am I here....knowing I face a long good bye....  I prayed...prayed for weeks... to know my purpose.  Finally, I received an answer.....just to me...I am to be the best daughter of God I can be.  Period.:  Life is not about comparison, competition, or living up to expectations of others...especially those from me.  It was like a catharsis..a cleansing of a life time pressure I created and carried....I no longer need to convince anyone of my worth....I am worthy. I wish this for everyone...I am at peace with PD...and I've peace in my heart.  Each day I give thanks for knowing my purpose....and it is not limited to our time here.....I believe there is good ahead for each of us. I've again made a long post....Tom, I understand.  Let's both hope there are some lurkers out there who can relate. love the ones you love, NN    
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