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      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    

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  1. Forum Information

    1. Discussion Corner Announcements

      General information regarding the Discussion Corner and the use of the forums.

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    2. NPF Forum Member Service Center

      Direct all technical questions or comments here. ***PLEASE DO NOT POST ANY MEDICAL QUESTIONS HERE AS THEY WILL GO UNANSWERED***

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    3. Frequently Asked Questions - How Do I...???

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  2. Medical Questions

    1. Ask The Doctor

      Michael Okun, M.D. and Daniel Martinez, M.D. answer medical questions regarding Parkinson's disease and related matters. All posts in this forum are anonymous.Without seeing you and examining you the doctor cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

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    2. Ask The Surgical Team

      Kelly D. Foote, M.D. and Michael Okun, M.D. answer questions about surgical matters and Parkinson's disease. All posts in this forum are anonymous. Without seeing you and examining you the doctor cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

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    3. Ask about Nutrition

      This forum is an archive about nutrition and Parkinson’s and is not accepting new posts. The suggestions given in this archived forum are for general information only. If you have a question about nutrition, you may post it in the Ask the Doctor Forum.

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    4. Ask the Pharmacist

      Mark R. Comes, R.Ph., answers questions on the subject of medication management in controlling Parkinson's disease symptoms.

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    6. Talk To A Speech Clinician

      A team of experts answer questions regarding speech and people with Parkinson's disease. All posts in this forum are anonymous. Without seeing you and examining you the speech clinicians cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

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  3. Unmoderated Discussion

    1. Open Forum

      An unmoderated public forum for open discussion among Parkinson's patients and caregivers. Posts in this forum are NOT anonymous.

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    2. Newly Diagnosed

      A place where all those newly diagnosed with Parkinson’s disease can share their feelings and opinions. Post in this forum are NOT anonymous.

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    3. Caregivers Forum

      A place where caregivers of people with Parkinson's disease can converse and address their unique concerns. Posts in this forum are NOT anonymous.

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    4. Young Onset Forum

      A place to connect with other people diagnosed with young-onset Parkinson's disease.

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    5. DBS Forum

      A place for those with Parkinson's looking into having DBS surgery, or connecting with those that already have had it done.

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  • Posts

    • Thanks so much for sharing this, NN.  You have helped me immensely through all your posts, but this one is striking in its courage and candor.  I wish you all the best--- and that none of these plans are needed, and that you will both end up with "plain old PD".  In the meantime, you have given me a great deal to think about, and a road map for a future I hope never happens to any of us.  You and your dh are in my thoughts and prayers. 
    • My sincere sympathy to you Linda.  I completely understand the grief of losing a furbaby.  I have lost many and each have taken a piece of me with them.  We can never replace them, but their light can shine down on another.  Sounds like Madi is shining down on Dusty.  It is common to have more than one cat, but many times they do prefer to be an "only."  I am an "only" myself, so I recognize this preference.....lol. Stump, you make an excellent point about them being so dependent on us, that it is truly better, as hard as it is to bear, that they go before us. I have made provisions for my Ella, she has a "Godmother," a much younger person than I, because Ella is only 5 years old and I am almost 60.  Ella's Godmother is an animal lover, we have "training" sessions every so often though, because Ella has some very special needs for her care.  It gives me peace of mind to know my furbaby will be cared for the way I wish.
    • Update:  I had planned to talk to our friends without DH....cuz he is very private.  I could not bring myself to do something w//out him so invited them to our home.   Actually, it helped DH speak about our future.  We made plans for each scenario...DH will have assistance if I am in hospital...I will have an advocate at the hospital...and vice versa.  They gave us numbers of reliable psychologists, paralegals, attorneys, house keepers, lawn care.  I gave them children's contact info.  I even mentioned that we would need to fly "home" so select a mortuary that works with airlines.  To some, this may be gross...I've learned often there are more than weeds in the details. As they were leaving, a "handy man" came who had been recommeded to help us....perfect for our needs.  Admitting DH can't do regular home maintenance was difficult...but once in the open...with a few tears from DH....there is relief in our home.  Humility is not a bad thing.  It should not be confused with weakness.  For some, it takes more strength to admit limited capacity.  That same day, we received a letter from VA doctor stating DH has obvious PD related to Agent Orange....a second doctor to affirm DH dx/agent orange.  It means the possibility of VA assistance that will help with expenses for our support team.  Tomorrow, we go to cardio for options for orthostatic hypotension (OH).. After recording our BP for a month, it is likely both of us may be facing MSA.  DH dropped systolic at times 40+... with maximin being 20.   I am speaking the worst case scenario..  Obviously, this may prove we have PD only.  However, after DH had tilt table test showing OH, our neuro tapped our charts together.."well, looks like you both may have the same dx."  So, checking out the river ahead is not wasted time. Thanks for letting me vent...hope to schedule time with counselor.... it is not for everyone...but for we who need to talk it out, it will make my posts shorter...smile... MM, yes, I continue to plan our own future w/out our children's assistance.  I'm looking for a couple to serve as caregivers...perhaps living on our property.  It is cheaper for us to remain in our home than be in assisted living.  Things are moving..or "drifting" fast for us...so I'll also soon look for assisted living homes...to have alternatives...cuz the better ones have waiting lists. Hope these vignettes of my personal life help someone...I know we are not alone...neither are you. Keep swimmin' even when the currents get stronger...(smile) NN
    • I've chosen generally to stay out of this thread due to the comments by Roger and pdmanaz and similar folks.  Perhaps I shouldn't stay away, but I just have so many other things to do with my time.   That said, Linda - Welcome back!  Very sorry to hear about your cat.  It's the somewhat downside to having pets that we usually long outlive them.  But, I'd rather outlive my pet than the other way around as they are so dependent on us.  I've had to put down a couple dogs and my cockatiel died of extreme old age.  It never gets any easier.
    • So, LUKE this thread is only for believers?  Hhhmmm ok. Got it. Please help everyone on here understand that. Special and exclusive club. So in this club you can disparage those of a different moral persuation, still trying to prove to the world that being LGBT is a choice lifestyle. Do you receive comfort from that? Does that help your PD?
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