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      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    

Forums

  1. Forum Information

    1. Discussion Corner Announcements

      General information regarding the Discussion Corner and the use of the forums.

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    2. NPF Forum Member Service Center

      Direct all technical questions or comments here. ***PLEASE DO NOT POST ANY MEDICAL QUESTIONS HERE AS THEY WILL GO UNANSWERED***

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      posts
    3. Frequently Asked Questions - How Do I...???

      Step by step guides on how to Register a username, login, change my personal settings, and post my first question in a moderated forum.

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  2. Medical Questions

    1. Ask The Doctor

      Michael Okun, M.D. and Daniel Martinez, M.D. answer medical questions regarding Parkinson's disease and related matters. All posts in this forum are anonymous.Without seeing you and examining you the doctor cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

      23,994
      posts
    2. Ask The Surgical Team

      Kelly D. Foote, M.D. and Michael Okun, M.D. answer questions about surgical matters and Parkinson's disease. All posts in this forum are anonymous. Without seeing you and examining you the doctor cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

      1,867
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    3. Ask about Nutrition

      This forum is an archive about nutrition and Parkinson’s and is not accepting new posts. The suggestions given in this archived forum are for general information only. If you have a question about nutrition, you may post it in the Ask the Doctor Forum.

      9,360
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    4. Ask the Pharmacist

      Mark R. Comes, R.Ph., answers questions on the subject of medication management in controlling Parkinson's disease symptoms.

      4,188
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    5. 1,981
      posts
    6. Talk To A Speech Clinician

      A team of experts answer questions regarding speech and people with Parkinson's disease. All posts in this forum are anonymous. Without seeing you and examining you the speech clinicians cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

      538
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  3. Unmoderated Discussion

    1. Open Forum

      An unmoderated public forum for open discussion among Parkinson's patients and caregivers. Posts in this forum are NOT anonymous.

      40,110
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    2. Newly Diagnosed

      A place where all those newly diagnosed with Parkinson’s disease can share their feelings and opinions. Post in this forum are NOT anonymous.

      5,042
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    3. Caregivers Forum

      A place where caregivers of people with Parkinson's disease can converse and address their unique concerns. Posts in this forum are NOT anonymous.

      5,208
      posts
    4. Young Onset Forum

      A place to connect with other people diagnosed with young-onset Parkinson's disease.

      27,689
      posts
    5. DBS Forum

      A place for those with Parkinson's looking into having DBS surgery, or connecting with those that already have had it done.

      1,839
      posts
  • Posts

    • Yeah, I'm 6' and about 156 lbs, and have been for the lat 10 years or so. Eat like crazy but can't gain weight
    • Depends is not that thick.  I use Abena pull ups with a tena pull up over it for mom.  She also sleeps on the disposable liners.  I got tired of washing the real ones.  It's a daily thing.  She will leak out every night without fail but more protection means less mess to clean up.    Sorry to interrupt.
    • My mom was in a daycare for 8 years and it was not a good experience.  Anytime I complained or questioned something that was done they would see me as a trouble maker.  I felt helpless because I couldn't afford to hire someone to watch my mom full time back then.  I would take her there and a helper would pick her up and stay with her until I got home from work.  3 years ago they kicked her out.   They said my mom was not benefiting from being there so they felt it would be in her best interest to leave them even if it means she would end up in a home.  Sorry to disappoint them but she's still in MY home.    I saw one of the workers yell at my mom when she wouldn't eat when that woman fed her.  She didn't know I was behind them.  As I got closer and she saw me she then changed her tone and became very loving.   I was sick to my stomach.     I hope you will have better luck with your place.  
    • I use Tena Pull-ups with two extra inserts at night. My incontinence is worse when laying on my back but still occurs when laying on my left side. I seem to remember a recent response from Dr. Okun that incontinence is very common in PD. Stress makes it worse, I'm sure. I do not need anything during waking hours unless I know I'm going to be unable to get to a bathroom. Your DH may feel humiliated right now. As he adjusts to this particular "new normal" he may come to acceptance. The best you can do is reassure him that you love him no matter what symptoms h develops. It's hard to see a loved one in any kind of distress. It's a helpless feeling. Dianne
    • Well when I had to call 911 for the police to come to get him up off the floor because he fell and I could not begin to do it myself. And this was happening often. Also he no longer could dress or undress himself and he could not even help do this himself in anyway, it was a real strain on me at almost age 80. Had to be fed, could with much difficult get to the bathroom using a walker but had to help him remove his pants etc and help him get sat down on the stool, alot of times we did not make it so meant having to change him. Just many many many things. As I said above he is now in the wheelchair and can stand up and walk a short distance with a walker but the nurses have to hold unto him. It is a difficult decision, but it was hindering my health. Assistant living was no option as he needed 24/7 care. 
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