Jump to content

  • helpline
  • donate

E-Newsletter Signup Like us on Facebook Sign Up For Our e-Newsletter


  • Please log in to reply
43 replies to this topic

#41 johnnys


    Advanced Member

  • Members
  • PipPipPip
  • 865 posts
  • Locationnys

Posted 14 March 2014 - 09:34 AM

I wonder if controlled release Sinemet medication might stretch out your mother's 'on time' and thereby her ability to sleep for longer intervals.  I believe it comes in 50/200 tablets.  Unfortunately, if your Mom's conditon is like mine, then four hours between re-upppng her medication is going to be the limit.  As noted elsewhere previously, a PWP cannot sleep unmedicated.  I assume you've attempted to have a heart to heart converstion with your mother about the absolute necessity of her maximum cooperation and that it has not been effective.  Best of luck to you kita68.



I heard lately there is a "window"when the drug will work. After the drug passes through the small intestine it becomes mute.So we have to find a way to keep the drug active throughout  its presense.

I wake up every morning about 3  am.Thats about the time the drug has stopped being absorbed.I do go back to sleep though as long I use my CPAC

Using the method from Dr. low is my RX for any anxiety or emotional discomfort.

Hope all is well with you Roger.

Im going snowmobiling soon ,the blizzard left it's gift.

#42 amaryllis



  • Members
  • Pip
  • 3 posts

Posted 01 June 2014 - 09:44 PM

My heart goes out to my fellow community carers who feel lonely. I too, am finding this part of pd the most difficult.

I have been married for 28 years to my PWP and I love him dearly and so feel guilty when aspects of his behaviour upset me.

Am trying to balance having a life of my own and being there for him, as he doesn't care to get involved with many things. This has always been an aspect of his personality, but as a professor with a great interest in the world, it has never worried me.

Maybe I have to let go a few things too! I play bridge, which is a great way of completely cutting off for a few hours.

I try to have a certain attitude of mind when difficulties arise, but this goes out the window when I feel frustrated with the change in behaviours. I find tears are often close.

#43 johnnys


    Advanced Member

  • Members
  • PipPipPip
  • 865 posts
  • Locationnys

Posted 02 June 2014 - 05:53 AM

One should never feel guilty when living with a tempermental person.The best thing someone can do when confronted with temper is to stay unemotional.Someone told me recently about a "spot"I never heard before .We don't have to react to other peoples actsThis can be difficult especialy with "close ties" like family and close friends.My oldest son has a "deadlock: with me but I have learned to keep it from affecting me  for the most part.

Parkinson has enlightened my mind to know much more of Dr. low;s method.I stay calm in the storm and once i awaken and rise the clouds have passed and the sun risen.

We must express ourselves but with out temper.

You could tell your husband there is a way to learn to stay calm,he will appreciate it in the end.

The best part is the method is free .


#44 LindaRhea


    Advanced Member

  • Members
  • PipPipPip
  • 52 posts
  • LocationCentral Texas

Posted 17 August 2014 - 05:04 PM

Amaryllis my heart goes out to you, and I think we have a lot in common. I was a college prof for many years and still enjoy interaction with people. My DH has always been more reclusive and is getting worse. He seldom leaves the house and I feel obligated to at least stay near him. Although I'm getting older I'm not ready to give up living but I don't really know how to work around this. I've gotten to where I talk to myself a lot because he has difficulty speaking and I still need some kind of communication.

Tears are frequently one form of release, and I'm working on things to keep busy with to to maintain what little sanity I have left. I am finding that this forum gives me a feeling of support and the realization that others share our problems.

0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users