Posted 22 April 2011 - 06:47 PM
Sorry for the crude topic, but I'm sure someone out there can relate
Posted 22 April 2011 - 08:24 PM
Posted 22 April 2011 - 08:57 PM
Posted 22 April 2011 - 09:10 PM
1 cup of applesauce
1 cup of all-bran cerial
3/4 cup of prune juice
Mix together and eat a few tablespoons. drink lots of water. If nothing happens, eat a little more. drink lots more water.
Personally I'd rather eat each item separately.
Someone else suggested prunes.
Posted 22 April 2011 - 09:50 PM
Posted 23 April 2011 - 01:47 AM
Someone else suggested prunes.
I had completely forgotten about prunes until you mentioned it. When I was a child...many moons ago, my momma used to always make us eat oatmeal with a healthy portion of boiled prunes on the side. She did this every Saturday morning before we were allowed to watch the morning cartoons on TV. She swore it'd keep us "regular".
Posted 23 April 2011 - 02:54 AM
Posted 23 April 2011 - 02:41 PM
Posted 23 April 2011 - 05:24 PM
I often recommend this book because it has so much useful information in it, including a whole chapter on digestive problems and constipation you could find useful. the book can be gotten new or used on line if you look around a bit. Or if you live in a city with a large library system you could possibly get it on loan. The author discusses foods, liquids,fiber sources , saline and osmotic laxatives, stimulant laxatives, enemas and examining the medications and dosages that can contribute to increased constipation for a person with PD.
The book is called The Parkinson's Disease Treatment Book by by author J. Eric Ahlskog, PH.D., M.D. from the Mayo Clinic It is a great resource book.
Hope this helps.
Posted 23 April 2011 - 10:11 PM
Posted 23 April 2011 - 10:42 PM
JB I think you are on to something, it sounds way better than prunes any way
Bran Muffins, chased with hot coffee
Posted 01 May 2011 - 12:13 AM
So anyway I asked my GI doctor after trying EVERYTHING - prunes, figs, bran, hot peppers, metamucil, hot coffee, exercise, massage and finally having to resort to enemas on occasion YUKKKK. He said milk of magnesia tablet were probably the easiest, cheapest and safest. So by 7 years after DX I was having to take 16 - yes SIXTEEN tablets a day to prevent the concrete in the colon syndrome. All this time I was on requip and azilect - high does of reqiup with all the accompanying compulsions. At 7 years after DX I not only had this terrible constipation , but drooling, difficulty swallowing, sleepy all the time, fog brain, short steps, freezing, balance problems and I'm sure lots of other things. I was a wreck.
THEN I finally went to Mayo clinic in desperation asking about dbs and the neuro doc said YOU HAVE TO TRY SINEMET - they won't even consider dbs until they know sinemet works and reduces your symptoms. I had always thought sinemet caused PD to advance more quickly. NOT TRUE but a widely held belief unfortunately so I had avoided sinemet. But now I had to try it so I did. I fainted after eating and had other problems getting the right dose but once I did, guess what, THE CONSTIPATION nearly disappeared. I now take 4, yes FOUR milk of magnesia tablets instead of 16 and I can manage on just 2 but twice had problems when I traveled so take four even though I don't need that much.
So two suggestions - for food - refried beans and Konsyll brand psyllium (1/4 teapoon is enough) to make sure you always have enough BULK in your digestive system, yogurt (I use plain regular as I'm too thin) to keep that bacteria in good numbers and milk of magnesia tablets.
But if you have not yet tried sinemet you may be as pleasantly surprised as I was. It helped everything. If I didn't have drug failure from my stomach not emptying I'd be totally normal on sinemet - but I do have drug failure and when I do it's really bad - as bad as I was four years ago before I started on sinemet. So it's not perfect but it's just plain miraculous compared to anything else on the market. When it loosens you muscles it also loosens your intestines and allows the food to go through better. Not everyone is this lucky and believe me I feel extremely lucky it works this well because constipation can kill you and especially me with a bowel that was fried and then healed. It's in good shape compared to other treatments but it still has to be cared for gently and it was horrendous getting control of constipation.
So please let us know what works as this is a universal problem.
Posted 01 May 2011 - 10:18 PM
Posted 01 May 2011 - 11:33 PM
Off the subject, a family member recently had her spine fortified with glue. She also had PD and osteoporosis. Pretty interesting. I don't use the liquid but you can probably. The tablets are just very convenient to keep in the car as well as in the house. One other word of advice - do NOT stop taking the tablets if you have a brief bout of diarrhea because generally after the diarrhea you'll have really bad constipation because your gut is emptied. The beans, psyllium and yoghurt also prevent diarrhea if you should eat something that upsets your digestive system a bit.
Good LUCK. A dear friend died after open heart surgery because the hospital allowed her to become severely constipated and in pushing to pass the impaction her lungs were flooded with fluid and she was severely brain damaged so this is SERIOUS. Do NOT allow yourself to continue having problems because it is a serious health issue. Your colon can also be permanently damaged if you don't deal with it.
One more thing - milk of magnesia works because it is a salt and when you consume it, the salt concentration in your gut becomes higher than the body thinks it should be so it floods the intestines with water to dilute this magnesium salt. So even though your digestive system is sluggish, it stays adequately hydrated avoiding constipation. Other things work differently. Psyllium provide bulk and also holds moisture. If you eat the beans you don't need the psyllium as they provide the wet bulk also. Other things used to prevent consitpation use a different mechanism. Prunes supposedly keep the valves that take the water from the gut from opening as much or allow the ones that bring water into the gut open longer. Things like exlax are irritants and need to be avoided. Yoghurt provides good bacteria and also keeps the digestive material soft. We had a dog who lived on buttermilk (again a bacteria produced cultured milk product), oil and vitamins for over a year because of a serious digestive problem. She only defacated once every three days but when she did go, it was very soft, like baby poop. So yoghurt does help also.
Again please keep us informed as we all share the pain.
Edited by netgypsy, 01 May 2011 - 11:36 PM.
Posted 12 May 2011 - 09:45 PM
Glad we can talk about this stuff lol
Posted 02 June 2011 - 07:18 AM
Posted 02 June 2011 - 08:39 PM
Posted 02 June 2011 - 10:42 PM
Once a month, right on schedule, I'll have a really satisfying experience. Must be the hormones. I wish someone could bottle that.
Posted 03 June 2011 - 06:54 AM
You can get it at Wal-Mart for about $7 a gallon. Someone was saying to try 2 or 4 oz twice a day to see if it helped with PD symptoms. I found info on the internet that said people with IBS or colon problems shouldn't take it. Not sure why unless it's because a side effect is cramps and diarrhea for some people. It seems to have a loosening effect. If you mix 2 oz in a glass of orange juice you can't taste it. At least I couldn't.
Aloe vera juice? Where do you get it? I'm desparate and need to try something. I've been taking 2 caplets of Milk of Magnesia for 4 days with no results. Finally resulted in an enema but even that wasn't totally successful. I might need to make a trip to the hospital. It's very depressing - I hate this damn PD monster!
Edited by MarciaJ, 03 June 2011 - 06:55 AM.
Posted 05 June 2011 - 01:32 PM
Ask your GI doctor - my GI doctor is the one who told me to take them. First try 2 in the morning and 2 in the evening. if that doesn't work to go to 2 with each meal and 2 at night. if that doesn't work go to three and so on.
Magnesium prevents the calcium oxalate type kidney stones by the way but you don't absorb a lot of the magnesium in milk of magnesia. it just goes on through.
When I was on requip I was taking 4 FOUR tablets FOUR TIMES A DAY or SIXTEEN a day
DO NOT TAKE CALCIUM OR MAGNESIUM at the same time with ANTIBIOTICS. it's not that they fight. It's just that if you take them at the same time, the minerals will prevent the antibiotic from being absorbed into the body. So space them FAR APART like four hours if possible. This goes for high calcium and magnesium foods also like cereal and milk, yoghurt etc.
Edited by netgypsy, 05 June 2011 - 01:34 PM.
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