Jump to content


E-Newsletter Signup Like us on Facebook Sign Up For Our e-Newsletter
Photo

DBS dyskinesia and cramping


  • Please log in to reply
3 replies to this topic

#1 suzie

suzie

    Advanced Member

  • Members
  • PipPipPip
  • 62 posts
  • LocationCanada

Posted 10 July 2011 - 01:48 PM

Hello,

I just came home from having my second DBS Gpi surgery last week. The procedure went well, no complications this time. But since coming home from the hospital I have been having a large increase in dyskinesia and cramping of my feet and hands on both sides. I realize it is very early on in my recovery but would appreciate your comments as to what maybe different this time. After my first surgery I enjoyed the" honeymoon period " for almost 5 weeks and had hoped for a similiar break this time. I may be expecting too much. Thank you for your time.

Suzie

#2 Dr. Okun

Dr. Okun

    Advanced Member

  • Ask the Doctor Moderators
  • PipPipPip
  • 4,881 posts
  • LocationUniversity of Florida

Posted 10 July 2011 - 04:53 PM

Suzie, hard to know but here are a few fun facts,

After 2nd DBS lead there is often more dyskinesia (especially in STN, but also can be in GPi) and this could mean you need to slightly decrease medications (if you have PD).

The swelling of the procedure itself even if not activated can sometimes cause dyskinesia.

Adjustment over time may be necessary and many groups choose to wait 2-4 weeks after implant before activating and programming.

The best plan for you is to contact your doc for medication optimization.

Good luck.
Michael S. Okun, M.D.
Author of the Amazon Bestseller Parkinson's Treatment: 10 Secrets to a Happier Life
National Medical Director | NPF
UF Center for Movement Disorders & Neurorestoration
Read More about Dr. Okun at: http://movementdisor...hael-s-okun-md/
or Visit Parkinson's Disease treatment and research blogs at:
NPF's What's Hot in Parkinson's disease
or his parkinsonsecrets.com blog for treatment tips

#3 suzie

suzie

    Advanced Member

  • Members
  • PipPipPip
  • 62 posts
  • LocationCanada

Posted 10 July 2011 - 06:18 PM

Dr Okun,

Thank you so much for your prompt reply. I really appreciate your advice and time especially on Sunday afternoon. This forum is blessing and I continue to learn from the advice given. Thank you for all you do for Parkinson's patients.

#4 Dr. Okun

Dr. Okun

    Advanced Member

  • Ask the Doctor Moderators
  • PipPipPip
  • 4,881 posts
  • LocationUniversity of Florida

Posted 11 July 2011 - 06:02 AM

Feel Free to write in anytime!
Michael S. Okun, M.D.
Author of the Amazon Bestseller Parkinson's Treatment: 10 Secrets to a Happier Life
National Medical Director | NPF
UF Center for Movement Disorders & Neurorestoration
Read More about Dr. Okun at: http://movementdisor...hael-s-okun-md/
or Visit Parkinson's Disease treatment and research blogs at:
NPF's What's Hot in Parkinson's disease
or his parkinsonsecrets.com blog for treatment tips




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users