First, allow me to thank you for being here, listening and responding to us.
I am a 36 year old female, just diagnosed with YOPD. My signs and symptoms : bradykinesia (right arm and leg) , cogwheel rigidity and severe restriction of active movement (right wrist), (minimal) resting tremor, reduced arm swing, increased muscle tone (right leg), toe curling at rest , hypomimia, fatigue, slight walking difficulty. My left wrist also feels slightly “rigid”. My neurologist told me that my symptoms have spread to my left side by now.
What is problematic in my case is the concomitant presence of a severe posttraumatic wrist arthritis (right wrist) from a previous distal radius fracture. Nobody can tell with certainty if the primary cause of my painful and impaired wrist is my PD or my arthritis. Should I have wrist surgery (my surgeon’s recommendation ) or just take the PD drugs to see if my symptoms improve, at least to an extent that surgery will not be needed ? That’s the tricky question!
My neurologist (an experienced movement disorder specialist) strongly believes I should begin treatment with a dopamine agonist. Nevertheless, I don’t feel ready for the PD drugs yet. My pregnancy plans are also to blame for this as I would much prefer a drug-free pregnancy.
So, I would be obliged if you could answer me the following questions :
-On the basis of my symptoms do I have stage 2 PD ? Does this mean I should not postpone treatment ?
- Is it safe to take PD drugs (including dopamine agonists) while pregnant ?
-Should I expect a significant worsening of my PD symptoms during a drug-free pregnancy?
-Could I take dopamine agonists or L-dopa as a trial to help clarify the main cause of my wrist impairment ? If a trial of dopaminergic drugs is used just for diagnostic purposes what is the recommended scheme ? (duration and dosage)
Thank you so much in advance.
PS 1 : Just realized the title of my post sounds like quoting Laurence Olivier in the film “Marathon Man”!! “Is it safe?” Well, I guess nothing is THAT safe in the PD Land…
PS 2 : I am a foreigner (sorry for any language errors…)
Edited by christie, 10 December 2011 - 06:07 PM.