Jump to content


E-Newsletter Signup Like us on Facebook Sign Up For Our e-Newsletter
Photo

Drs/Hospitals for DBS


  • Please log in to reply
3 replies to this topic

#1 PhyllisN

PhyllisN

    Newbie

  • Members
  • Pip
  • 5 posts

Posted 10 December 2011 - 09:39 AM

My husband is 62 years old and was diagnosed with Parkinson's Disease approximately 3 years ago. His neurologist has tried several different medication options with somewhat limited effect. We live near Richmond, VA and she has recommended referral to a specialist at Virginia Commonwealth University (Medical College of Virginia) for evaluation for possible DBS. We want to find a medical center with neurosurgeons that perform this procedure frequently and with a high success rate. How do we pursue obtaining this information? Is VCU/MCV a highly regarded facility for treating PD and performing DBS?
Thank you.

#2 Dr. Okun

Dr. Okun

    Advanced Member

  • Ask the Doctor Moderators
  • PipPipPip
  • 4,297 posts
  • LocationUniversity of Florida

Posted 10 December 2011 - 06:50 PM

The NPF booklet has some recommendations (free PDF on main website). Booklet is on DBS.

ALso, the 1800 NPF helpline can be of assistance.

Important questions:

1- how many DBS cases per month
2- experience and training of neurologist and neurosurgeon
3- screening with a neuropsychologist and possibly a psychiatrist
4- a DBS interdisciplinary team that meets pre-operatively to discuss best surgical approaches
5- availability of a DBS programming nurse (and experience)

Hope that helps.

Michael S. Okun, M.D.
Author of the Amazon Bestseller Parkinson's Treatment: 10 Secrets to a Happier Life
National Medical Director | NPF
UF Center for Movement Disorders & Neurorestoration
Read More about Dr. Okun at: http://movementdisor...hael-s-okun-md/
or Visit Parkinson's Disease treatment and research blogs at:
NPF's What's Hot in Parkinson's disease
or his parkinsonsecrets.com blog for treatment tips


#3 PhyllisN

PhyllisN

    Newbie

  • Members
  • Pip
  • 5 posts

Posted 12 December 2011 - 06:54 AM

Many thanks Dr. Okun. Up until recently, the tremor was more of a nuisance (just in his right hand) than anything else. But in the past month or so, the medication doesn't seem to be working as well. I wonder if stress (work, recent car accident) can be a factor? Also, I just found out last night that he has started to experience tremor in his left hand. I am terrified of what lies ahead but want to do all that I can to help him choose the best options available to him. I'll look to the resources you have recommended. Thanks again for responding to my post!

Phyllis

#4 Dr. Okun

Dr. Okun

    Advanced Member

  • Ask the Doctor Moderators
  • PipPipPip
  • 4,297 posts
  • LocationUniversity of Florida

Posted 12 December 2011 - 01:07 PM

Also remember adjustments in dose and intervals as well as the cocktail of meds often are needed every few months to completely control tremor and other symptoms. Perhaps seeing the doc for a med change could help?

Michael S. Okun, M.D.
Author of the Amazon Bestseller Parkinson's Treatment: 10 Secrets to a Happier Life
National Medical Director | NPF
UF Center for Movement Disorders & Neurorestoration
Read More about Dr. Okun at: http://movementdisor...hael-s-okun-md/
or Visit Parkinson's Disease treatment and research blogs at:
NPF's What's Hot in Parkinson's disease
or his parkinsonsecrets.com blog for treatment tips





0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users