Too many surgeries?
Posted 15 February 2012 - 11:52 AM
You may remember that in late December I fell and ended up with a proximal humerus fracture. I saw my ortho two days ago and he said that my fracture has healed well, but there is a place on my shoulder that needs to be shaved off due to a bone spur which is affecting my ability to achieve good range of motion. He suggested an MRI. I can't have MRI's because I have a device implanted in my back which keeps my left knee from hurting. However, most of the time it is off as I rarely need it anymore.
Would it be worth it to have the spinal stimulator removed so I can have MRIs instead of CT Scan with contrast to determine the exact problems in my shoulder? Is it likely that due to my PD I will be more likely to need MRI's in the future? Or is that one more unnecessary surgery?
Also, my sinemet dose was recently increased from one 25/100 4 times/day to 1&1/2 25/100 4 times/day. I have had almost constant nausea, burping and gas since them. My MDS lowered me to 1&1/2 2x/day and one 2x/day for two weeks with the intention of increasing it again, but it hasn't helped much. I know sinemet causes nausea but does it cause excess gas and burping as well? My insurance covers Zofran. Is that something I could take?
Thanks for your time and consideration.
I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.
First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.
Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.
Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.
All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.
Posted 19 February 2012 - 04:55 PM
If you don't need the implantable device and you do need a MRI then you need to discuss with your doc the risks and benefits of device removal. Once you have the discussion you can weigh what is right for you.
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