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#1 beckyj

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Posted 19 February 2012 - 06:54 PM

I just signed up for this... My mom is 70 years old and has had PD for 4 years now.. She is having a very hard time with things it seems they get her tremors under control and then here they come again.. She has been having problems with walking and falls and in the past 2 1/2 weeks she has developed Neuropathy and the pain in her feet is very bad and now she can't walk at all on her own... It is so hard sometime to watch what she is going through but like so many other things you never really know what a disease is until someone in your life comes down with it, You know we just never take the time to learn or talk to someone that has the disease.... I am excited to have found this and have a place to talk with other people that are going through this experience as we are!!!

#2 Lin

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Posted 20 February 2012 - 01:16 PM

Hi Becky,

Wanted to welcome you. Am sorry your mom is having such a rough time. She is lucky, though, to have a loving, supportive daughter. I am a YOPDer, not a caregiver, and not too far along in my journey. My only advice is for both of you to make use of this website's forums/helpline to connect with others and gain knowledge, advice and support. It is hard to explain the comfort and friendship that can be found here. Wishing you the best, Lin

#3 beckyj

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Posted 20 February 2012 - 03:46 PM

[quote name='Lin' date='20 February 2012 - 01:16 PM' timestamp='1329761804' post='46306']
Hi Becky,

Wanted to welcome you. Am sorry your mom is having such a rough time. She is lucky, though, to have a loving, supportive daughter. I am a YOPDer, not a caregiver, and not too far along in my journey. My only advice is for both of you to make use of this website's forums/helpline to connect with others and gain knowledge, advice and support. It is hard to explain the comfort and friendship that can be found here. Wishing you the best, Lin
[/quote


Lin,
Thank you I am new to the lingo YOPDer is that young onset pd? Thank you we try to do all we can I hope that you have a great support system. That is what I was trying to do I read everything that I can and that is why I started with this forum... Thanks for your info!!!! Blessing to you!!! Becky

#4 Beau's Mom

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Posted 20 February 2012 - 09:49 PM

Welcome. Becky. My husband Ray is jsut beginning to come around to the fact that he already IS a caregiver, nearly two years after initial diagnosis and about 19 years after the beginning of my first PD symptoms. But, he is coming around!!!
Be good to your Mom but remember to be good to yourself, too.Posted Image

I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

 

First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.

 

Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.

 

All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.





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