Posted 11 March 2012 - 08:34 PM
- One of my symptoms is a left leg tremor. I have chosen to call it my "Happy Leg" When I get stressed or such, my leg starts to quiver and shake and jump up and down. It used to bother me. But now I greet it with a smile and say "Hello Happy Leg, glad you've come around." My family laughs at the Happy Leg. I'm glad they do. After all, it is the new me and it does look funny... bouncing up and down,shaking back and forth. The interesting thing is when I'm around strangers or at work and he shows up. I wonder what they think?
Hey, Luthersfaith--I just noticed you are in Indiana. My dad grew up outside Indianapolis in a little bitty town called Crawfordsville. He went to school in an even smaller town and graduated from Waynetown High School, class of 1947 (or maybe 1948). I still have lots of family in the Indianapolis area, including one cousin with PD who is in a nursing home. What part of Hoosier country do you hail from, or are you a transplant?
I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.
First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.
Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.
Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.
All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.