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Help for caregivers

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#1 mickeymike



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Posted 29 March 2012 - 11:10 AM

My wife and I are both retired. She was diagnosed with PD at age 37. Although her progression has been quite slow, it has now"speeded up" at age 66 and I am now in a quandry. I have a part time job that takes me away from her for 4 hours a day, 3 days a week and I hate leaving her alone even for those 4 hours. She is now prone to falling, has some dementia, and mood swings. Is there any help, physically or monetarily that can be accessed?

#2 Beau's Mom

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Posted 29 March 2012 - 03:14 PM

I think it depends on where you live, what your income level is, and probably other factors. I find that the best place to start is with your county's Department of Health and Human Services (DHHS or DSHS). Also, you could call your local chapter of National Parkinson Foundation or American Parkinson Foundation. If you have access to a social worker (like maybe at a senior center), they are most helpful in finding resources. Hope this helps.

I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.


First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.


Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.


All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.

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