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Trial Meds to see if it is truly PD


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#1 Howard950

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Posted 05 April 2012 - 08:02 PM

Hello folks, question, if my Movement specialist put me on meds, (carbidopa/levodopa 2 days ago) to confirm the diagnosis, should I see a virtual stoppage of my left hand index finger and thumb tremor? If so, how many days will it take. Aside from being a little more tired, not seeing much improvement yet. The pharmacist said after 3 or 4 days I should see some differences. Thanks.

#2 Myron

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Posted 05 April 2012 - 09:36 PM

Hello folks, question, if my Movement specialist put me on meds, (carbidopa/levodopa 2 days ago) to confirm the diagnosis, should I see a virtual stoppage of my left hand index finger and thumb tremor? If so, how many days will it take. Aside from being a little more tired, not seeing much improvement yet. The pharmacist said after 3 or 4 days I should see some differences. Thanks.



I was diagnosed with PD four years ago with tremors on my right side, etc. It took considerable time in terms of weeks for me to notice the difference. This may be due to the fact that my neurologist gradually introduced me to sinemet...taking approximately a month to establish my regular routine that I am still on. I would encourage you to be patient and not expect a rapid improvement. This was certainly the case for me but after a couple of months I suddenly noticed that my left arm no longer pulled upwards and backwards and my tremors were lessing. Good luck

#3 Howard950

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Posted 06 April 2012 - 04:38 AM

Myron, did you have cognitive / brain fog type symptoms that cleared up some? It sounds like my doc only wants to do a 2 week trial to confirm the diagnosis, he feels it is too early to be on the med 100%.

#4 McCall

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Posted 06 April 2012 - 08:53 AM

Hi Howard,
My husband was diagnosed on Feb 23 of this year and given Carbo/levadopa 25/100 right away 3 times a day. His tremors which were both hands and quite pronounced stopped within about an hour of taking the first dose. Trouble is they come back about an hour before the next dose. So they upped him to four times a day, and Amantadine, he still has about an hour before meds kick in and an hour at the end before next pill.
This was all given him by PCP he has appointment with MDS May 23.

Point is for him improvement was immediate with the meds. However I might add all his symptoms have gotten worse overall, when "Off"

Don't know if that helps or not, as they say with PD everyone is different.

#5 Silverfoxx

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Posted 06 April 2012 - 10:21 AM

Hi Howard,

Did your doc start you out on what is called a titration schedule? A titration schedule is where you start out on a certain doseage for a week, then up the dose for another week, etc.? Parkinson Disease is so very difficult to diagnose by most doc'. That;s why you must be dx'd by a Movement Disorder Specialist. A MDS ys a specially trained neurologist who is trained to dx PD. PD is so vastly different in all of us. No two cases are exactly identical, thus, reaction, or non-reaction, to meds may be vastly different.
When I was first dx'd (diagnosed) twelve years ago, after living with the progressing symptoms for the previous 25 years undiagnosed, the initial dose of Sinemet worked within an hour of taking it, and I was in full body tremors at the time! Others, that I've come to know on this forum, and others, since 2002 is that we are all so very different. /both in the way the PD symptoms, and the meds, affect each of us. So, the consensus may be anywhere from the same day to about a week before you may know if it works for yiu.

It would be best if you kept a diary of your symptoms, the time and dose that you take the meds, with a notation of how you feel at 1/2 hour intervals after each dose. Keep this and you will probably see am improvement of symptoms before too long. Also, take the diary with you to your next doc visit so he/she cam evaluate the effectiveness, ot lack, of the sinemet.

Remember this: You are not alone with this illness. It is not a life ending illness but it is life changing. Tou will learn to adapt to the subtle, and not so subtle progessions of PD. I wish you comfort on the sometimes bumpy road your are starting on. One thing you should keep in mind ..... We have all been where you are at one point, and we;ve all made it so far, You will too! If you stumble or have any problems or questions, we are here for you!

Your friend in PD ... Jim Evridge "AKA:SILVEFOXX_FIGHTING_BACK"

Edited by Silverfoxx, 06 April 2012 - 10:22 AM.

"Sometimes our light goes out but is blown into a flame by another human being. Each of us owes our deepest thanks to those who have rekindled this light." Albert Schweitzer

#6 Myron

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Posted 09 April 2012 - 06:51 PM

Myron, did you have cognitive / brain fog type symptoms that cleared up some? It sounds like my doc only wants to do a 2 week trial to confirm the diagnosis, he feels it is too early to be on the med 100%.



Howard,

I've been away from the Forum and failed to respond promptly to your question. I did not have your symptoms but the usual, constipation, loss of smell, REM Behavior Disorder, etc. Clearly, Sinement has a different reaction for me than it does for many with PD. It has been very effective but became so gradually as I first indicated. At the same time, I do not suffer the "off" period which so many do although I am extremely faithful in taking my medication at the same time each day. I believe that "Silverfox" gave excellent advice. I would only add that hopefully you will find an expeienced neurologist who will work with you to determine through clinical efforts whether or not you have PD. Myron




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