Intro - new to the forum
Posted 12 April 2012 - 05:23 AM
I hope you all have a good day.
Posted 12 April 2012 - 02:26 PM
Good luck finding one that is compatible with you.
Posted 12 April 2012 - 06:22 PM
I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.
First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.
Diagnosed December 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.
Current medications at age 63: Duopa gel via PEG-J tube, 6ml loading dose; continuous dose 2 ml. Trazodone 150 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 135 caregiver hours per month keep me moving.
Posted 12 April 2012 - 09:48 PM
I was diagnosed at 33 years of age...diagnosed rather quickly, but correctly, I might add...so it's possible. That was 10 years ago. I'm 43 now. Fortunately, with young onset, the progression of the disease is often much slower than with later onset. I live just west of Cleveland... The Cleveland Clinic is a great place for treatment (that's where I go). Tons of PD research happening there too! It's well worth the drive! Keep in touch.......
Peace and blessings,
Posted 13 April 2012 - 09:13 PM
Thanks for your help,
ases22 -- Angel
Posted 14 April 2012 - 07:42 AM
I'm not sure if this is where you are at, but I have gone through a lot of ups and downs trying to deal with possible and then actual diagnosis. One thing that I am learning through this forum and through discussions with my new MDS is that I need to be careful not to let PD define me. This is hard of course because it's all I think about sometimes. I'm sure you can relate. I'm trying to remember to engage with my family, my work, and my friends as much as I can and this helps to re-focus - even if I'm tired.
I will be thinking of you and hope you find relief and a supportive doctor soon. Keep in touch here. You will find a lot of support and friendship.
Posted 17 April 2012 - 02:56 AM
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