Intro - new to the forum
Posted 12 April 2012 - 05:23 AM
I hope you all have a good day.
Posted 12 April 2012 - 02:26 PM
Good luck finding one that is compatible with you.
I had treatment for cancer in 2003-2004.
Symptoms started shortly before Diagnosed 2006. At Age 54 .
Waited 5 years before it was necessary to start meds.
Meds-Carbidopa/levodopa 25-100mg cr tabs four times daily
Benztropine 2mg tabs twice daily
B12 tab for memory loss, one daily
Posted 12 April 2012 - 06:22 PM
I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.
First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.
Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.
Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.
All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.
Posted 12 April 2012 - 09:48 PM
I was diagnosed at 33 years of age...diagnosed rather quickly, but correctly, I might add...so it's possible. That was 10 years ago. I'm 43 now. Fortunately, with young onset, the progression of the disease is often much slower than with later onset. I live just west of Cleveland... The Cleveland Clinic is a great place for treatment (that's where I go). Tons of PD research happening there too! It's well worth the drive! Keep in touch.......
Peace and blessings,
Posted 13 April 2012 - 09:13 PM
Thanks for your help,
ases22 -- Angel
Posted 14 April 2012 - 07:42 AM
I'm not sure if this is where you are at, but I have gone through a lot of ups and downs trying to deal with possible and then actual diagnosis. One thing that I am learning through this forum and through discussions with my new MDS is that I need to be careful not to let PD define me. This is hard of course because it's all I think about sometimes. I'm sure you can relate. I'm trying to remember to engage with my family, my work, and my friends as much as I can and this helps to re-focus - even if I'm tired.
I will be thinking of you and hope you find relief and a supportive doctor soon. Keep in touch here. You will find a lot of support and friendship.
Posted 17 April 2012 - 02:56 AM
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