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Light-headedness


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#1 wannagrey

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Posted 13 April 2012 - 11:16 AM

My father is 83 and has been diagnosed with PD for about 3 years now. He continually has difficulty with what he calls "light-headedness." The room doesn't spin, he just feels light-headed and dizzy. It was so bad three days ago that we ended up in the ER and admitted. Just all of a sudden the dizziness got so bad he was so scared b/c he thought he was going to fall. He is ALWAYS light-headed but this came on so quickly and scared him so bad that we feared something bad was happening. They did blood work, CT's, and another MRI but they cannot find any cause. So after three days of in the hospital, we have him home in worse shape than he was when we went on Tuesday. He is now totally confused and still severely light-headed. (This is a man who walked two miles on Tuesday morning.) To do the MRI, they told me that they had to give him four times the normal dose of meds to stop the tremors just so they could do the test. They also did all sorts of blood-pressure checks that really didn't fluctuate. After all of that, they said to wear compression stockings and sent us home.
I am sorry if I am rambling but I have not slept in three days b/c I had to stay with him the entire hospital stay.
I hate this disease and I hate that after all he has been through, once again no one has done anything to help.
Is this "light-headedness" something he just has to live with? He has had no medicine changes in a good while. He takes his PD meds and thyroid meds and that's it. They had no suggestions for us on what to do to help this problem.
If anyone has any experience with this or advice, it would be greatly appreciated! I do not know who else to turn to.
Thank you for listening if nothing else.
A very concerned daughter.

#2 Beau's Mom

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Posted 13 April 2012 - 07:03 PM

My lightheadedness almost always comes from orthostatic hypotension (my BP is fine when I sitting or laying down, but goes down when I stand up). Either that or extreme anxiety. Sometimes meds can cause it. Have you asked Dr. Okun?
Dianne

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#3 mcfly123

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Posted 15 April 2012 - 03:03 AM

The first symptoms that caused me to go to a neuroligist were dizziness and lightheadedness. I am 52 and have been diagnosed for a year but I was getting dizzy for a year before my Dx. They did the tilt test but it was normal. For me it seems that when the neck muscles tighten up on the back of my head, I get dizzy/lightheaded. So for me it is not the drugs and it is not orthostatic hypertention it is muscles pulling on the back of the head that is messing with my inner ear. My tremors are mostly internal (you can't see them) so I think that somehow those of us with internal tremors are a subspecies of parkinson's desease.

#4 katiemae

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Posted 07 July 2012 - 03:48 PM

My mom was just diagnosed with Parkinson's and the light-headedness was the major symptom - she was dizzy and off balance all the time. She has been getting steadily worse in terms of light headedness, "swaying" etc and has fallen 3 times now over the past year. She is tiny and I was very worried about a hip fracture so convinced her to seek a diagnosis for her struggle with dizziness and balance. So she started the medication yesterday and we will see if that helps.

Her gerontologist recommended a couple of things for the dizziness even before we went to the neurologist. One is for her to drink electrolytes (like Gatorade or Vitamin Water), at least 20 oz per day. The electrolytes help stabilize the blood pressure when getting up from a lying or sitting position (one of the causes of light headedness). She also prescribed Meclizine to be taken at night but it is for vertigo. Highly recommend the electrolytes. I've also read that imbalance between sodium and potassium is a contributing factor and you might want your dad checked for Vitamin D deficiency.

I am wondering what is the best style of walker or "rollator" for a Parkinson's patient? She has a regular walker with only 2 wheels and she hates it. It is also the wrong size for her. I want to get her a new one and seeking advice from you all and/or experiences you've had.

Thank you.

#5 williamg

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Posted 19 July 2012 - 10:32 AM

Hello all, I am going to keep an eye on this thread as I also have the constant dizzy feeling. I fell down twice in about 5 minutes and went to the emergency room. They gave me Meclizine and I had an allergic reaction so they put the patch behind my ear. Neither of them made a difference. My dizziness will spike for no reason as in while I am just sitting still. It is as if a switch is turned on then off again. I also went to a Vertigo Specialist who did not find anything wrong. Anxiety seems to increase it also. I had these issues prior to taking med's so I know that they are not the culprit.
I'm not crazy, I'm just special!! ..No, wait..... Maybe I am Crazy. One second...... I have to talk to myself about this... Hold on......................

#6 Beau's Mom

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Posted 19 July 2012 - 10:47 AM

I did that just before I had to leave work over a year ago. The culprit was hypotension (low blood pressure), which is common in PD. It is often worse when you stand up. Orthostatic hypotension. Now the first thing I do if I get dizzy is take my blood pressure. To keep it up at normal levels I drink lots of fluid and add a little extra salt to my diet.
Dianne

I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

#7 MarciaJ

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Posted 20 July 2012 - 04:19 PM

I just had a light-headed and sweating espisode. I always have had this problem. I assumed it was from low blood pressure. I usually sit down if standing and put my head between my legs. Or lay down. I didn't think it was connected to PD because I've had it long before.
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#8 NicoleZ

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Posted 20 July 2012 - 08:33 PM

Yes, I have this symptom too....when it is severe I'll have nausea with it. It does get better if I lay down and rest awhile, but that's easier said than done during a busy work day! Luckily, I don't have it too bad now that my meds seem to be optimized....I usually notice now if I am really tired or hot.

#9 Capa

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Posted 20 July 2012 - 08:57 PM

I also had this symptom and it was nearly debilitating for me. I was seen by a Cardiologist years before my PD diagnosis and placed on Midodrine to help raise my BP. It's made a world of difference for me.

#10 wannagrey

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Posted 26 July 2012 - 09:25 AM

I am very concerned. He has had two appointments with the neurologist since my original post and the doctor has done nothing. The doctor has not altered Daddy's medications in any way. Daddy's can hardly do anything, not because physical limitations, it's all due to this dizziness.
Is it time to get a second opinion?

#11 Golden01

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Posted 27 July 2012 - 06:55 AM

I vote yes. Make sure it is with a Movement Disorder Specialist (MDS). Good luck to you and your Dad. He's fortunate you are so persistant. Being in the hospital can often take some recovery time once discharged for people with PD it seems! Do you have the hospital kit you can order from NPF?




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