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National Poetry month and Parkinson's Awareness month


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#1 woodbee

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Posted 20 April 2012 - 11:15 PM

I invite any of us to write a poem about anything really or to tell us what one or 2 symptoms would you like the public to be made aware of and tell why ....Here is my contribution

(a poem)..What is Parkinson's?

Those of us who are unfortunate to have it
Know.
We Know very well
the tremors
the slowness
the muscles cramps
we Know too
how it effects
Every
aspect of our lives.

There are the visible signs and symptoms for all to see
But hidden from their eyes and their watching
Is the
Worry
the
Fear
the
Inner Turmoil,
the slowness of our thinking
no longer able to juggle many tasks at a time
the
Courage,
the
Persistence,
the
determination to
Live
Life
Big
in spite of it All.
These things are not seen but
We
Know.
Our sisters and our brothers with PD
Know
and
Witness for each other.

While all the while the
Disease
continues to nibble away at us...
reducing
reducing
reducing.

To Win the game
is to
Continue
to Do.....
whatever
you Can
To Spit in PD's Eye
to make that apple pie
to run that marathon
to travel over seas
to plant the garden peas,
to fish for trout or bass,
to polish up the brass
to play in the marching band
to work our shift
to walk the dog
to change the diaper
feed the hog
to read a book
or cook a meal
hammer that nail
sand the wood
change the oil
mow the lawn
put on your sock
clip your nails
stretch and stretch
roll over in bed
and
remind yourself to
talk up Loud and
Smile

#2 Luthersfaith

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Posted 21 April 2012 - 06:16 AM

Fee fye fo fumb
PD is like bubble gum on your shoe
When you get it on you
There's not much you can do

Popping pills do help you
Exercise does too
But that'd about all you can do
Boo hoo hoo
"I have told you these things, so that in Me you may have [perfect] peace and confidence. In the world you have tribulation and trials and distress and frustration; but be of good cheer [take courage; be confident, certain, undaunted]! For I have overcome the world." - Jesus (John 16:33)

#3 MarciaJ

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Posted 21 April 2012 - 10:23 AM

I'll try

They tell you to think outside the box,
While I can't even put on my socks.
My bathroom door was fine before,
But how do I get a walker through the door?
Never thought I'd need a ramp
But here I am with a cramp.
I try to be happy as I can be
As I choke down pills that I need to be me.


.
<3.<3.<3.

#4 vietkieu

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Posted 21 April 2012 - 06:27 PM

TO my fellow Parkinson sufferers

1- The Unknown
2- The Pain
3- The Fight Back
4- The Dream

The Unknown

Suddenly you entered my life and changed it forever.
I didn't even know who you were
but if we are to be stuck together for life
I might as well get to know you better.
So... hello Parkinson!

The Pain

The off periods seem to last forever.
The crippling pains, the immense fatigue
the loss of appetite, the loss of sleep, the loss of energy for activities.
All these essential ingredients for a healthy life.
The fear: anxiety about a future out of control and full of pain.
The anger, the despair, the sadness.

The Fight Back

Then as a miracle, the on periods appear
Like islands of peace in a stormy sea,
Restoring the will to fight for a healthy life.
And with the help of angels, good medication, good doctors and carers,
And one's own will for a normal life
Seeks to relieve more suffering.

Then another Rescuer comes in the form of Deep Brain Stimulation.
With the twig of certain nuclei in the brain,
The same brain that gave so much pain
Can give pleasure and the normal functioning of the movements
And helps reduce the harmful effects of increasing drugs
Making the relief periods last longer.

The Dream

We all wish this on state will last for a long time,
Then the mystery of Parkinson's has to unwind.
And the same brain that has been controlled by Sickness
Will find in a moment of Greatness
The Key
To deliver mankind from this misery
Then Parkinson will fade into History..


Lam April 2012

with 9 years of suffering.PD
Lam is the 1st Vietnamese woman to arrive to Adelaide in 1962 from Vietnam
So Parkinson is an EEO (equal employment opportunity) recruiter

Edited by vietkieu, 23 April 2012 - 04:39 AM.


#5 woodbee

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Posted 24 April 2012 - 02:11 AM

I think these poems are great. Each one gives a unique perspective. Thanks for your poems and welcome Lam. Thanks also to Marcia and Luther too.

Anyone else ? Can be a poem about anything

OR

It is PD awareness month. What things would you most like the public to know about this disease we share?

#6 newbob10

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Posted 24 April 2012 - 07:37 AM

Thanks Woodbee for the prompting - here is my attempt

Clandestine
A message comes from the foot, the hand, a dream
Who is the sender? What do they mean?
Cryptic signals keep arriving,
more often,
in rhythym
Is there anyone out there? Who can I ask? Is it meant just for me?

The inquisitors make their attempts to draw out your secret
Harsh lights, shocks and strong magnets,
You can't give up
a secret you don't comprehend

Then you see - there are others who have heard the messages longer than you,
Others who have learned the code
Others who know the secret inside you

You begin to understand, and share too
Slowly
It takes time to explain
You're still learning the language
It takes time to reveal
But the message is spreading
and you know
You are not alone anymore

#7 DANCER

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Posted 24 April 2012 - 09:22 PM

i am in a DANCE FOR PD class ans wrote this poem to try to show the teachers not only the PWP feels, but to show the power of music and dance

NEW DANCER

I AM STIFF
I AM TWISTED
I AM DETERMINED
I GET UP

I AM ACHY
I AM SLOW
I DON’T SLEEP
I KEEP GOING

I AM TILTED
I FEEL SLUGGISH
I CAN’T DO IT
I FEEL OFF-BALANCE

I GET DRESSED
I TRY TO EAT
I MISS MY MOUTH
I DON’T GIVE UP

I CHANGE MY CLOTHES
I PUT ON SHOES
I TRY TO WALK
I ALMOST FALL
I TRY AGAIN

IT’S TIME FOR CLASS
I AM SLEEPY
I FEEL ANXIOUS
I AM CLUMSY
I DON’T GIVE IN
I CHECK MY WATCH

I CAN’T MOVE
MY LEGS DON’T WORK
I AM TIRED
I DON’T LAY DOWN
I KEEP GOING

I FIX MY HAIR
I DROP THE BRUSH
I PICK IT UP
I HIT MY HEAD
I MUST LEAVE SOON



I GET IN THE CAR
I MUST KEEP MOVING
I DON’T GIVE UP

I STOP AT THE STORE
I CAN’T FIND MY WALLET
I HOLD UP LINE
I DROP MY PURSE
I AM EMBARRASSED

I DON’T CRY
I DRIVE TO THE STUDIO
I AM A MESS
I PARK THE CAR

I FEEL SCARED
I WANT TO HIDE
I TRY TO STAND
I TRY ONCE MORE

I WALK TO THE ENTRANCE
I PULL THE DOOR
I CAN’T GET IN
I GET SOME HELP

I LOOK AROUND
I SEE A FACE
I SEE A WALKER
I SEE A SMILE
I SEE THE RAMP
I AM NERVOUS

I TRY TO SMILE
I START TO SHAKE
I CAN’T SIGN IN
I FEEL ASHAMED

I TRY TO TALK
I AM NOT HEARD
I GO AND SIT
I AM ASKED
I GIVE AN ANSWER
I FEEL UNSURE



I SEE THE TEACHER
I HEAR THE MUSIC
I START TO LOOSEN
I MOVE MY ARMS
I FEEL BETTER
I LOOK AROUND
I MIGHT BELONG


WE FEEL THE RYTHM
WE START TO LAUGH
WE START TO SWAY
WE ARE RELAXING

WE FEEL THE MUSIC

WE ALL ARE MOVING
WE ARE ALL SLOW
WE ALL ARE BEAUTIFUL
WE ALL ARE AWKWARD
WE ARE ALL GRACEFUL
WE ALL ARE JOYFUL

WE ARE ALL DANCING

WE ALL ARE LIFTED
WE ALL ARE SOARING
WE ALL CAN FEEL IT

WE NOW ARE BOWING
WE FEEL ACCEPTED
WE GET EMOTIONAL
WE ARE ALL HOLDING
WE ARE CONNECTED

WE ARE ALL TWISTED
WE ARE ALL WEARY
WE ARE ALL AWKWARD
WE ALL DON’T KNOW IT
WE ALL ARE DANCING

#8 woodbee

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Posted 25 April 2012 - 12:55 AM

Beautiful Dancer! You said it so well. thanks for sharing your poem
eileen

#9 vietkieu

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Posted 25 April 2012 - 02:34 AM

We are very happy to read these inspiring poems, thank you all. I will add a poem from my son.

dear mum
you are still the precocious little girl playing on bags of flour in
your parents' bakery
who lost her mother at five
the same rebellious daughter donning lipstick to hit rue catinat and
standing up to an iron-willed father and step mother
top of the class, teacher's pet
boarding the australian-bound jet
feeling guilty away from home about everyone in the war,
then you had your own battle with a belligerent husband, a petty boss
and now parkinsons and old age
but there are always beautiful moments,
lovely legian beach in bali,
the weekly joy of ripe stone fruit from the market
travels to paris, parma, kakadu, blue mini to melbourne, bunyip
lovely yellow orange rays of sun and blue sky through the tall gums
and windows of your paradise
birds singing, koalas dozing in your garden of eden
drives with michael to a panoply of scrabble heavens with endless
gorgeous terraces, gelati, coffee and nut sundaes
caring friends and weekly visits from tanya and the kids
because you feel you carried an unfair burden, life may appear heavy,
but one must never get stuck on the rocks, flow freely to the warm
tropical pool.
look at the beauty instead of the injustice, both will always be there.
i sometimes feel guilty about you back home fighting the war
parkinsons is a state of body, it is not you
you are still the loving mother, waiting for her son to come visit
i have always been here,
just as you have always been here for me
wherever i am in the world
the same woman who enjoys talking to people
learning new languages and cultures
cooking delicious food
you may think external things determine joy or sorrow but
everything comes from within
your essence is indestructible, unchangeable, permanent
like a beaming diamond radiating through your and our lives
you know who you are, just as we do
nothing changes who you are

with best love and wishes for the operation

#10 jb49

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Posted 25 April 2012 - 10:01 PM

Wow, good work everyone. Very nice. Thanks for starting this up Eileen.
Don't be hard on yourself, try your best and be strong!

#11 woodbee

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Posted 26 April 2012 - 02:50 PM

Vietkieu,

what a nice tribute from your son . You sound like a person who was dealt many challenges in your life and weathered them well inspite of the hardships they may have caused.. Good luck and best of health to you. thanks for sharing your and your son's poetry.

Edited by woodbee, 26 April 2012 - 02:51 PM.


#12 jb49

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Posted 29 April 2012 - 10:15 PM

Minding my own business
I travelled lifes busy road
I was strong and invincible
I could carry a big load.

He came out of nowhere
Can I walk with you? he said.
Free country, big road,I nodded
And I strode on ahead

But the road got steep
My new companion right there
He whistled and smiled
I stumbled, he didn't care.

Who are you, go away,
You bug me. Go to hell.
I tried to out run him
But I stumbled and fell.

I got up but i limped,
Why did my hand shake.
Ever since this guy joined
My journey, I can't get a break.

I couldn't sleep anymore
Restless all through the night.
I could only hope that he would
Be gone by the morning's light.

But he stuck to me, I'm tired
Why is he following me I cry
I try to slip away from him
But he beats me on every try.

We are shackled together,
Inseperable, his choice. I'm beat.
I'm hungry, he follows me
Grabs my hand when I try to eat.

And squeezes my throat
when I try to chew and swallow.
Its would be easy to lie still
And in self pity I could wallow.

Finally I ask, who are you
What do you want,is it a game
Yes, I'm here to harass you
He said. P. Arkinson is the name.

Okay. I said, I give up, You win.
I can't fight no more. I am out of gas.
Good he said and relaxed his grip.
And then I kicked him in the ass.

Be gone you jerk, go away
He's an evil, a self serving goon
I hope my new companion,
Will get lost from me, real soon.

Edited by jb49, 29 April 2012 - 10:18 PM.

Don't be hard on yourself, try your best and be strong!

#13 DANCER

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Posted 30 April 2012 - 06:13 AM

jb - love your poem...keep
kicking.
dancer

Edited by DANCER, 30 April 2012 - 06:13 AM.


#14 woodbee

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Posted 30 April 2012 - 04:38 PM

I too love you poem. Thanks for taking time to reflect and write down your thoughts Jb.

Eileen

#15 roy g

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Posted 14 July 2012 - 08:05 PM

Senses

Young nurse asked “cedar or
or lime?'
Nope.
“Two outta three, one more time.”
Was no smell, I had not lied

“you'll take to the grave”
It was urgency's time.
Along went humor, irony
and pride.

I think I hear hope packing
in the back bedroom.
I haven't peeked in,
for two remain -other is gloom.

#16 woodbee

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Posted 16 July 2012 - 01:34 AM

Roy the line in your poem....

I think I hear hope packing in the back bedroom

.....is powerful. Hits like a ton of bricks.

#17 roy g

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Posted 16 July 2012 - 07:36 PM

PMed.

#18 KimAgain

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Posted 27 July 2012 - 11:46 AM

I Miss You

Goodbye
Me
I will miss you
And your artistry,
Your walk, mostly, it turns out--
Today, anyway

Now that I
The person who once was
Less than artifact
More than shadows and light,
Have succumbed
To stage two
(whatever that is)
I long for the first stage again,
Remembering it
As wholesome
And real

But Parkinson’s
Whore that you are
Have left me rent
And hidden
Here behind the glass
Of “I once was… could… have been”
Waving goodbye
To any semblance of beauty
I once had, save for this:
The written word

Edited by WindsongMoonChild, 29 July 2012 - 03:34 PM.


#19 roy g

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Posted 27 July 2012 - 06:09 PM

WMC,
"My lovely husband, sweet puppies, poetry, painting, reading, and volunteering."

rg
"Sweet wife, old dogs, pizza, cold beer, napping under the umbrella and fishing."

But same damn window. Thank you for sharing.

roy g

#20 KimAgain

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Posted 27 July 2012 - 09:36 PM

WMC,
"My lovely husband, sweet puppies, poetry, painting, reading, and volunteering."

rg
"Sweet wife, old dogs, pizza, cold beer, napping under the umbrella and fishing."

But same damn window. Thank you for sharing.

roy g


Lovely, lovely, lovely!




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