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Impulse control disorder


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#21 AnthonyB

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Posted 04 August 2012 - 04:03 PM

I've been on mirapex for ten months increasing the dose slowly .ive noticed I lose track of time while on the net, five hours can pass before I raise my head off the screen to check the time .
To combat this I use a stop watch , set the amount of time and the alarm kinda jolts out of my funk...... Main thing is I'm aware of this side effect, my wife watches me also....... It's kinda creepy lol

#22 CynthiaM

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Posted 04 August 2012 - 05:15 PM

It's a good thing that you have your eyes wide open when it comes to Mirapex. I also started spending way too much time online but what was even worse for me was the compulsive eating of reese's peanut butter cups, shopping more in 6 months than I had in the previous 6 years and the gambling which I'd only done twice in my lifetime before the Mirapex. I started gambling up to 2-3 times a week at the worst point. The withdrawals were terrible and it took quite some time for me to even begin to feel normal. I am finally past it for the most part now. I wish my doc had never given me Mirapex. I take Sinemet now without any side effects. Hopefully that will remain the case. I can only hope.


I've been on mirapex for ten months increasing the dose slowly .ive noticed I lose track of time while on the net, five hours can pass before I raise my head off the screen to check the time .
To combat this I use a stop watch , set the amount of time and the alarm kinda jolts out of my funk...... Main thing is I'm aware of this side effect, my wife watches me also....... It's kinda creepy lol


Life isn't about waiting for the storm to pass......It's about learning to dance in the rain.

#23 Luthersfaith

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Posted 24 February 2013 - 07:51 PM

I've been off Mirapex for about three weeks now i think I'm not as compulsive as I was I'm still on an agonist So I don't really know. Having Parkinson's is such fun, It plays with your mind, It plays with your body, The drugs play with your mind And with your body. Only my wife really knows for sure what is going on With me I think

"I have told you these things, so that in Me you may have [perfect] peace and confidence. In the world you have tribulation and trials and distress and frustration; but be of good cheer [take courage; be confident, certain, undaunted]! For I have overcome the world." - Jesus (John 16:33)

#24 coacht

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Posted 25 February 2013 - 10:46 AM

Luthersfaith,
I am sure your wife knows what is going on with you, please listen to her as your view of what is going on is skewed. Speaking from personal experience with my wife on agonists. things she did seemed perfectly normal and right to her.
Coach T

#25 christie

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Posted 25 February 2013 - 11:54 AM

Someone please remind me why should PwP risk the development of severe OCD (obsessive compulsive behaviors) by starting treatment with high doses of dopamine agonists? to avoid early dyskinesias? ...no, correction, to possibly avoid early dyskinesias? ....correction again, possibly avoid for less than 5 years the appearance of non-disabling dyskinesias? No, thanks.

One might argue there are patients who cannot tolerate sinemet and do very well on the agonists. Or that all PwP, especially those with YOPD, will eventually need to take dopamine agonists to reduce the "off" times and extend levodopa response. At least now most patients are warned of the agonists-associated risks of developing OCD. As coach T said, caregivers should keep a close eye on the patient to recognize the onset of OCD as soon as possible. The patient may not always realize his/her abnormal behavior with devastating consequences.
English is not my first language !

#26 Luthersfaith

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Posted 25 February 2013 - 02:30 PM

Luthersfaith,
I am sure your wife knows what is going on with you, please listen to her as your view of what is going on is skewed. Speaking from personal experience with my wife on agonists. things she did seemed perfectly normal and right to her.
Coach T

Thank you Coach T. Yes I am listening to her... and more.
"I have told you these things, so that in Me you may have [perfect] peace and confidence. In the world you have tribulation and trials and distress and frustration; but be of good cheer [take courage; be confident, certain, undaunted]! For I have overcome the world." - Jesus (John 16:33)

#27 coacht

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Posted 27 February 2013 - 03:39 PM

Someone please remind me why should PwP risk the development of severe OCD (obsessive compulsive behaviors) by starting treatment with high doses of dopamine agonists? to avoid early dyskinesias? ...no, correction, to possibly avoid early dyskinesias? ....correction again, possibly avoid for less than 5 years the appearance of non-disabling dyskinesias? No, thanks.

One might argue there are patients who cannot tolerate sinemet and do very well on the agonists. Or that all PwP, especially those with YOPD, will eventually need to take dopamine agonists to reduce the "off" times and extend levodopa response. At least now most patients are warned of the agonists-associated risks of developing OCD. As coach T said, caregivers should keep a close eye on the patient to recognize the onset of OCD as soon as possible. The patient may not always realize his/her abnormal behavior with devastating consequences.


Christie,
Originally it was so things like dyskinesias, yet now we know they are not necessarily linked to time on Sinemet but more to an overdose. My wife was so scared of the dyskinesia and looking out of place in public that she opted for the agonist. Hopefully physicians become more aware of the amount of compulsive behaviors. My wife was on the computer 8-10 hours a day and it seemed normal to her so of course she did not report it. Physicans need to listen to caregivers more and at least have a form for them to fill out for doctors visits. My wife will not let me talk to a doctor without her present because she doesn't believe what I say is happening and will dispute it. She can't be wrong or thought to look any less than she used to be and that has nothing to do with PD.

Coach T

#28 Optomist

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Posted 11 March 2013 - 05:57 PM

Isn't there is a other side of taking them off .. does it accelerate Parkinsons?

#29 Optomist

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Posted 11 March 2013 - 05:57 PM

Or cause more dyskinesias?

#30 coacht

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Posted 12 March 2013 - 08:40 AM

Optomist,
I think they have found that the dyskinesias are more dose related than time related like they previously thought. No, the agonists do not slow down the progression of PD. They think some drugs might, but no without a doubt proof they do or everyone would be taking them if possible. You cannot quit the agonists cold turkey though or there is a withdrawal symptom just like any narcotic since dopamine is one of the things elevated by narcotics and gives druggies their high. My wife's eyes would actually seem to glow when the agonists were at their high, her eyes were more wide open and liquid or something. I am starting to see that again during the high poiont of her sinemet. I think personally getting her off the Requip would do wonders for her and for you, as you know I am not a big fan of it.
Coach T

#31 cwbee

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Posted 06 June 2013 - 08:09 AM

coacht are you still there? also wanted to know what happened with Golden1, had awful experience with ropinerole as my husband with PD x 7 yrs frequented massage parlors for the last 2 yrs while on the drug. off the drug for 2 weeks now, he says he doesnt have the impulse and will not look at porn on his phone as he did frequently. scared because he denied, denied to 3 different doctors as i sat there nodding about the porn. i was not aware of the massage parlors. just hope the answer is taking him off the agonist. this is absolutely devastating to me. Coach, you said it best, not even sure he grasps how wrong it was.

#32 Golden01

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Posted 07 June 2013 - 08:14 AM

CWBEE - My husband did not have compulsive behaviors on Mirapex but severe flu-like symptoms, memory problems, very flat affect, no sense of humor, cognition problems (seemed "dull"). Could not exercise or even keep up with normal activities. His PD symptoms did not improve and he was so, so much sicker. He was on short-term medical leave from work at the time for medication adjustments and OT/PT. He was on Mirapex about six weeks when his MDS took him off due to the problems. It took about six more weeks before he (in my words) "came back"! This was over a year and a half ago and it's been interesting when we talk about things that happened during that time, he has no memory of some events, it was truly like he was "gone".

#33 cwbee

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Posted 07 June 2013 - 08:33 AM

these drugs are powerful and scary.

#34 johnnys

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Posted 09 June 2013 - 08:24 AM

Uncontrolable impulses are often uncontroled.We can't control how we feel but we can change our thoughts and control our impulses.Command your muscles to control impulses.The will says yes or no.

These are some of the "spots" we use in Recovery to keep ourselves calm.

www.lowselfhelpsystems.org

#35 johnnys

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Posted 19 June 2013 - 06:47 AM

found another one today".There are no impulses we cannot control,only ones we care not to."Dr. Abraham Low

Edited by johnnys, 19 June 2013 - 06:48 AM.


#36 Brad24

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Posted 20 June 2013 - 08:06 AM

I just got off Requip XL and am now on the neupro patch 8 mg/ days. So far I like the patch better. However, I can not get it to stick above my waist. Requip made me very grumpy, gave me OCD with several things like cleaning the house and other stuff. Nothing to get me in trouble but it got annoying. The patch also seems to be more consistent and I have fewer off times so far. Hope it keeps working like this.
DETERMINATION "In the heart of the strong shines a relentless ray of resolve...It cannot be stopped, it cannot be controlled, and it will not fail."

#37 johnnys

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Posted 20 June 2013 - 10:57 AM

It happens to me also.Like rearanging stuff and obsessive cleaning and others.Well all it means is we have a temporary harmless nervous imbalence from tenseness..I cant say sinemet has caused me anymore nervous symptoms then the ones I already had from tenseness.Maybe it can for some but not me ..If I take the time to do my reading of dr. low it keeps me aware of my allergy to tenseness(fear and anger) and it keeps my spotting skills up.
Many years ago I belived for awhile of OCD and others but after I overcame many of my symptoms using the method I stopped all therapy and drugs .
I got a cortisone shot today and hope my shoulder recovers so i can go fishing.

#38 Brad24

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Posted 20 June 2013 - 05:56 PM

Good luck getting out on the water soon.
DETERMINATION "In the heart of the strong shines a relentless ray of resolve...It cannot be stopped, it cannot be controlled, and it will not fail."




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