Posted 05 August 2012 - 07:45 PM
Posted 05 August 2012 - 07:56 PM
My MDS is going to prescribe a low dose of Neupro to add to my current meds in September. I have to wait to begin it, since I may be starting a new clinical trial and cannot modify my meds during that time. I'll let you know how it goes when it happens.
Glad it's working well for you,
Posted 05 August 2012 - 07:57 PM
Posted 05 August 2012 - 08:05 PM
Posted 05 August 2012 - 08:17 PM
I have good insurance which should cover most of the cost, but it's impossible to tell what these new, name brand drugs will cost....even with good insurance!
Posted 05 August 2012 - 08:28 PM
Posted 20 October 2012 - 04:54 PM
too full. Now I am on the highest dose of 16 mg and I seem to have this deep urge of not wanting to sleep and having to do something all the time. This has exhausted me so much, that the symptoms worsen and I get breathing probs from anxiety if I get the connections right. Up to 10 mg it was great though, and I loved to have some of my energy back , less fatigue etc..
Enjoy the mo I say.
Ah! And really, being European, though born in new yersay, brought up in Germany, lived in London 10 years and now for 5 in Spain:
How on earth can anyone call obligatory healthcare an intrusion on freedom! It's just rediculous, I get all my medicines paid, and all the scans and the doctors and what have you and I pray this will not change with the crises.
Really no offence politically, but that one is a riddle to me.... this is just a silly comment and not meant to lead into a huge discussion, please!
Posted 20 October 2012 - 05:13 PM
Americans have been bombarded for decades with propaganda about government controlled health care. We're constantly told that Europeans and Canadians have long waits for health care and are denied basic care and access to specialists. Oh, yeah, and that the elderly are euthanized.
Please know that there are an awful lot of Americans that know this is ridiculous but lack the political power (read: money) to enact meaningful health care reform that goes beyond propping up the current private insurance backed system.
Like you I am not looking to start a political discussion, just offering an explanation of why America appears so backward about this issue.
Posted 20 October 2012 - 10:40 PM
Back to neupro parches, later remembered, that the making them stick is tricky in hot humid environments and doing sports that makes you really sweat.
My advise is to have a routine of scrubbing the skin with a flannel under the shower where the new parches go then dry well and press firmly on parch for 60 seconds. Scrubbing with flannel is also the best way to get the ugly brown sticky marks they leave off.
In humid hot climate I have to put second skin type parches on top, the waterproof transparent type, I can get u the name if u need it.
Also if you do exercise, find places on your body, where they come off less. I put 4 days on each thigh then 2 on lower tummy and then 2 days each upper arm. That makes 14 days and I start from scratch. Those I find the places it itches and comes off least.
With this neupro I baically stick a fresh 20 dollar note to my skin every day and throw it in the bin after 24 hrs, I am glad it's paid for, and hope for all who need it to get the finance for it somehow as I found it a great medicine.
Hope it's helpful
Posted 21 October 2012 - 07:11 PM
I am at 2mg, does anyone know how long it will take to feel results. I am to go up to 4mg after two weeks at 2mg.
Posted 22 October 2012 - 07:54 AM
I get horrible muscle cramps in my shoulders - should this help provide some relief?
Posted 22 October 2012 - 02:22 PM
Edited by Kristakj78, 22 October 2012 - 02:26 PM.
Posted 22 October 2012 - 02:41 PM
Posted 02 May 2013 - 05:04 AM
no...it's a thing; it's like a plan only with more greatness
Posted 02 May 2013 - 03:21 PM
As to itchiness, I've found that certain areas of my skin itch and turn red and others are perfectly fine. So I just place it in those areas.
The biggest problem I have with the patch is having it come off me and end up on someone else. And I worry the dog might eat it.
Posted 02 May 2013 - 10:53 PM
I found that the Rotigotine does help significantly in decreasing tremor frequency and intensity. It also is effective at decreasing rigidity. Aside from Azilect, this is the only other pd med I've used.
Posted 03 May 2013 - 06:07 AM
I have been on Neupro for about 9 months now (started on 4 mg. and am currently on 8 mg.). I have found it to be beneficial in combination with my other meds (Stalevo, Selegiline, and Amantadine) to even out my off periods, so they don't seem as marked. I don't think I'd want to rely on it as my only medication. I have had problems with it not adhering very well, although the advice about holding it on for 60 seconds is good. That has worked well. It is recommended that it not be placed on a hairy area (which is difficult for me personally), but I've found it to adhere fine there...i just hurts more coming off. I have also used it below the waist with good results...don't know why that would be a problem. Sweat will definitely effect it as well (which is also another problem for me personally). Overall, though, I've found it to be more beneficial than problematic, so I will continue on it until the scale slips the other way.
Hope you all have a great day...keep encouraged and keep fighting this monster!
Peace and hugs,
Posted 07 May 2013 - 09:12 AM
Edited by dgray001, 07 May 2013 - 09:35 AM.
Posted 07 May 2013 - 11:49 AM
Posted 21 August 2013 - 08:11 AM
Edited by DaveN, 21 August 2013 - 08:17 AM.
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