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Neupro Patch


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#1 Kristakj78

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Posted 05 August 2012 - 07:45 PM

I was just wondering what anyone's experience was on the Neupro Patch? My Dr. just prescribed it to me, and I LOVE IT. It's not "perfect," and I still need to get to my correct dosage (I'm only on 1mg a day), that being said, it has significantly helped my walking, unlike the generic Mirapex I was originally on. I FINALLY see a difference! Yea! I can't wait/imagine what it will be like once I build up to the right mg's. :razz: I was just wondering what other people's experiences may be with this patch....

#2 Mihai

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Posted 05 August 2012 - 07:56 PM

Thanks for the encouraging update!

My MDS is going to prescribe a low dose of Neupro to add to my current meds in September. I have to wait to begin it, since I may be starting a new clinical trial and cannot modify my meds during that time. I'll let you know how it goes when it happens.

Glad it's working well for you,

Mihai
Diagnosed in 2001 at 33 years of age

#3 Mihai

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Posted 05 August 2012 - 07:57 PM

P.S. -- Was it expensive? I'm interested to hear what it costs!

Mihai
Diagnosed in 2001 at 33 years of age

#4 Kristakj78

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Posted 05 August 2012 - 08:05 PM

It was free for the first two weeks with a special coupon from my Dr., and then I received a card that you can activate to decrease your out of pocket expense even more. My health insurance (Capital Blue Cross), covers most of it anyway, with a $25 monthly co-pay. The card makes it $10 a mo for the next year. The same coupons and card info is on the Neupro website though for anyone to access. I was SO nervous about the price too (esp once I realized the free 14 day supply was working). Afterall, you can't put a price on walking!

#5 Mihai

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Posted 05 August 2012 - 08:17 PM

Thanks!

I have good insurance which should cover most of the cost, but it's impossible to tell what these new, name brand drugs will cost....even with good insurance!

Mihai
Diagnosed in 2001 at 33 years of age

#6 Kristakj78

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Posted 05 August 2012 - 08:28 PM

I hear ya totally. That was what I was worried about too (how it is new, back on the market and name brand). Insurance can be quite a headache!

#7 Rubarb20

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Posted 20 October 2012 - 04:54 PM

I have been on neupro for 2 years nearly, had no sideffects apart from sleeping worse but I took 0.25mg of tranqizamine which mostly sorted the sleeping if my days where not
too full. Now I am on the highest dose of 16 mg and I seem to have this deep urge of not wanting to sleep and having to do something all the time. This has exhausted me so much, that the symptoms worsen and I get breathing probs from anxiety if I get the connections right. Up to 10 mg it was great though, and I loved to have some of my energy back , less fatigue etc..
Enjoy the mo I say.

Ah! And really, being European, though born in new yersay, brought up in Germany, lived in London 10 years and now for 5 in Spain:
How on earth can anyone call obligatory healthcare an intrusion on freedom! It's just rediculous, I get all my medicines paid, and all the scans and the doctors and what have you and I pray this will not change with the crises.
Really no offence politically, but that one is a riddle to me.... this is just a silly comment and not meant to lead into a huge discussion, please!
Barbara

#8 Vanillab1027

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Posted 20 October 2012 - 05:13 PM

Barbara,

Americans have been bombarded for decades with propaganda about government controlled health care. We're constantly told that Europeans and Canadians have long waits for health care and are denied basic care and access to specialists. Oh, yeah, and that the elderly are euthanized.

Please know that there are an awful lot of Americans that know this is ridiculous but lack the political power (read: money) to enact meaningful health care reform that goes beyond propping up the current private insurance backed system.

Like you I am not looking to start a political discussion, just offering an explanation of why America appears so backward about this issue.

#9 Rubarb20

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Posted 20 October 2012 - 10:40 PM

That' fine with me.
Back to neupro parches, later remembered, that the making them stick is tricky in hot humid environments and doing sports that makes you really sweat.
My advise is to have a routine of scrubbing the skin with a flannel under the shower where the new parches go then dry well and press firmly on parch for 60 seconds. Scrubbing with flannel is also the best way to get the ugly brown sticky marks they leave off.
In humid hot climate I have to put second skin type parches on top, the waterproof transparent type, I can get u the name if u need it.
Also if you do exercise, find places on your body, where they come off less. I put 4 days on each thigh then 2 on lower tummy and then 2 days each upper arm. That makes 14 days and I start from scratch. Those I find the places it itches and comes off least.
With this neupro I baically stick a fresh 20 dollar note to my skin every day and throw it in the bin after 24 hrs, I am glad it's paid for, and hope for all who need it to get the finance for it somehow as I found it a great medicine.
Hope it's helpful
Barbara

#10 mattss

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Posted 21 October 2012 - 07:11 PM

Just started Nuepro, was wondering where I was going to find 14 different places, thanks for sharing your plan. I am really hoping for more energy, hopefully less soreness and stiffness.
I am at 2mg, does anyone know how long it will take to feel results. I am to go up to 4mg after two weeks at 2mg.
Thanks

#11 Tmj

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Posted 22 October 2012 - 07:54 AM

Started rotigotine (nuepro) about a month ago. Have had some trouble getting it to stick. Currently on 2mg on my way higher. Have seen no benifits as of yet-hoping to see something soon. It causes some itiching, but if it provides some relief, then it is worth it.

I get horrible muscle cramps in my shoulders - should this help provide some relief?

#12 Kristakj78

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Posted 22 October 2012 - 02:22 PM

I saw a difference in the first week, but ended up having the same issues with having it stick. After my "honeymoon" period on it, I started realizing it was more inconvenient than useful, but we're all different. Upsetting, but after titrating up to 6mg of the Neupro Patch, and back down to 1mg, I was put on Sinemet, and completely taken off the patch, and things are 80% better using Sinemet, if not more. I did like the patch at first, but over time it was a pain and didn't work with my lifestyle (even rolling over in bed at night would losen it), and forget about swimming....it wouldn't last 15 min on! Over the course of a few months, I tried numerous parts of my body, and I'd either have a skin reaction or it wouldn't stick. I even tried the medical tape and ace bandages the Dr's recommended to hold it in place. In the end, it just wasn't for me.

Edited by Kristakj78, 22 October 2012 - 02:26 PM.


#13 Island Woman

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Posted 22 October 2012 - 02:41 PM

Since so many seem to have problems getting the patch to stick...maybe time to contact manufacture and explain the problem. I haven't tried the patch yet but doctor visit end of week...time will tell whether it's suggested or not.

Patricia

#14 artINpark

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Posted 02 May 2013 - 05:04 AM

I was on Requip (extended release) and it was fabulous until it went generic. I had a huge reaction to the generic version so I was moved to the patch. I don't have any problems with it sticking, but it does irritate my skin. I get red and itchy after about 10-12 hours, so far I can only tolerate it on my upper thigh. Any suggestions to relieve the itch?

Susi

no...it's a thing; it's like a plan only with more greatness


#15 OneWingedVictory

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Posted 02 May 2013 - 03:21 PM

A rep for the pharm company that makes the Neupro patch told me to hold the patch in place with my hand for 30 seconds to ensure it will stick. Apparently the adhesive is heat activated. If that doesn't work, you can always blast the patch with a hair dryer! That really does work.

As to itchiness, I've found that certain areas of my skin itch and turn red and others are perfectly fine. So I just place it in those areas.

The biggest problem I have with the patch is having it come off me and end up on someone else. And I worry the dog might eat it.
The One Winged Victory of Samothrace is a metaphor for our struggles, despite the odds, to keep steady and accept grace in the face of punishing adversity.

#16 LarryH0123

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Posted 02 May 2013 - 10:53 PM

I started on 4 mg. patch in August of last year. Increased to 6 mg. in November and again to 8 mg. in March of this year. Like OWV I cover the patch with my hand for 30 seconds which activates the adhesive. My MDS suggested I not use the patch below my waist so I've never tried that. I live in Hawaii so it is fairly humid and warm most of the time. I've only had a patch come off once and that was right after I applied it so I suspect inadequate adhesive on that particular one. I have spent a hole day snorkeling, swimming and sailing and not had one come off.

I found that the Rotigotine does help significantly in decreasing tremor frequency and intensity. It also is effective at decreasing rigidity. Aside from Azilect, this is the only other pd med I've used.

#17 Mihai

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Posted 03 May 2013 - 06:07 AM

Hello friends,

I have been on Neupro for about 9 months now (started on 4 mg. and am currently on 8 mg.). I have found it to be beneficial in combination with my other meds (Stalevo, Selegiline, and Amantadine) to even out my off periods, so they don't seem as marked. I don't think I'd want to rely on it as my only medication. I have had problems with it not adhering very well, although the advice about holding it on for 60 seconds is good. That has worked well. It is recommended that it not be placed on a hairy area (which is difficult for me personally), but I've found it to adhere fine there...i just hurts more coming off. I have also used it below the waist with good results...don't know why that would be a problem. Sweat will definitely effect it as well (which is also another problem for me personally). Overall, though, I've found it to be more beneficial than problematic, so I will continue on it until the scale slips the other way.

Hope you all have a great day...keep encouraged and keep fighting this monster!

Peace and hugs,

Mihai
Diagnosed in 2001 at 33 years of age

#18 dgray001

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Posted 07 May 2013 - 09:12 AM

I have been taking Carbidopa/Levodopa for several years, but it seemed to have become less effective. My neurologist recently prescribed the patch for me to use with the Carbidopa. He started me at 2mg and wanted me to increase it weekly until I reached 8mg. It made me incredibly nauseas even at 2mg. However, it subsided and I felt good until it was time to increase the dosage. My motor skills have improved and I had more energy. When I went up to 4mg, I was nauseas again and its never really subsided. I convinced the doctor to let me stay at 4mg for awhile, because I felt increasing the dosage again would be even worse. I’ve lost 12 lbs in a month. At my last visit, he is still insistent on wanting me to increase the dosage and I have about 3 days worth of the 4mg. I am still so sick I can’t eat and getting so weak I can barely function. I am not sure my body is going to tolerate anything greater than the 2mg. Has anyone else had an experience like this?

Edited by dgray001, 07 May 2013 - 09:35 AM.


#19 Kristakj78

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Posted 07 May 2013 - 11:49 AM

Yes, I have issues on any and all agonists. I have nothing but nausea. Ugh...my Sinemet tends to wear off often during the day, and I try to take an agonist here and there to make the Sinemet last longer, but I've found that I need at least 4 Sinemet a day to feel somewhat normal....but my neuro wants me to only take 3. I also had trouble making the patch stay on, no matter how long I held it when I initially put it on.

#20 Daven

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Posted 21 August 2013 - 08:11 AM

My doctor put me on the Neupro patch the other day. He has me starting off with 1mg for the first three weeks before I go to 2mg, The reason for going so slow is my sensitivity to drugs. How long does it usually take to see some benefits? My tremor seemed a little tamer yesterday but I was more edgy all day. This could be all in my head, just curious what others experiences are.

Thanks.

Dave

Edited by DaveN, 21 August 2013 - 08:17 AM.





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