Posted 15 October 2012 - 08:16 PM
Posted 15 October 2012 - 09:38 PM
Edited by Rogerstar1, 16 October 2012 - 06:19 PM.
Posted 17 October 2012 - 11:43 PM
I called my doctor today and he agreed to start; me on Azilect. So I am starting tomorrow.
Hope you feel better soon. As I understand, it may take some time to obtain the full effects.
Edited by Hereathome, 18 October 2012 - 09:11 AM.
Posted 18 October 2012 - 12:06 PM
Posted 18 October 2012 - 06:41 PM
I started (oh my gosh - 3 years ago) on Azilect alone and got very little symptomatic relief. At my next visit 30 days later I started on carbadopa levadopa extended release 25/100 2 times a day at 7am and 3 pm along with the Azilect. Symptoms subsided nicely (although I did not have a tremor to deal with... more rigidity issues).
However, I have seen in another forum where people swear Azilect is a miracle drug so who knows. As we say, when you have met one person with PD, you have met one person with PD. We all have different reactions to treatments.
Good luck and sorry you joined the club.
Posted 18 October 2012 - 07:04 PM
Posted 19 October 2012 - 01:17 AM
Posted 19 October 2012 - 07:14 AM
Posted 08 November 2012 - 05:25 PM
Posted 21 November 2012 - 07:50 PM
My tremor gets worst when my stress level rises more than anything. If something does not work like it is supposed to I begin to feel the affects and cannot stop the tremor at all.
Posted 27 November 2012 - 07:38 PM
My Dr. started me on Permax in 1997 at age 45- then Requip, dopamine agonists.
My first symptom was a left hand tremor and then less mobility with my left hand. I was symptom free for several years!... goodluck!
Posted 27 November 2012 - 10:16 PM
Posted 28 November 2012 - 08:01 AM
I have been on Azilect for five years now. It is supposed to make what dopamine we do have last longer and helps it cross the blood/brain barrier. When I was on it by itself though it never felt like it was doing anything.
Posted 29 November 2012 - 07:05 PM
The Azilect has helped any I have noticed a positive difference cognitively with it as well. It does not cause any dyskinesia.
Dx in 95' at 35- Normal MRI, Abnormal Da t Scan- Resting tremor- right foot, leg tremors. RX- 25/100 Carb/ l <600 mg,
1mg -Azilect, 3x daily -25/100 ER Carb/ Levodopa.
Posted 13 December 2012 - 12:22 PM
Posted 13 December 2012 - 11:15 PM
The doctor I referred to previously ......Her contention as a researcher and with her personal experience is that many patients have benefited from the drug. Her research has proven to her that it is neuro protective.
no solid scientific evidence on neuroprotection can be derived simply from "peronal experience" of any doctor, no matter how experienced.
What we don't need : our treatment guided by the "personal experience" (aka personal "preferences") of any doctor.
What we do need : more high quality, multi-center, double blind studies on neuroprotection.
What we urgently need : more strictly defined, evidence-based treatment protocols, especially in regard to young onset PD. aren't they (neuros) done with experimenting? And, yes, i know that each patient is "different" and all that, but come on, decades of research have passed and the hot-shot MDSs continue to argue if agonists are indeed the best initial treatment for us with young onset disease and whether levodopa triggers early dyskinesias or not in the long term. it's crazy.
-English is not my first language !
-Aged 39. Diagnosed at 35.
-Currently on madopar (levodopa and benserazide, 500mg daily) and Azilect (1mg daily).
Posted 18 December 2012 - 11:02 PM
Had symptoms that I thought were Pian, dr;s didn't. Back 20 yrs ago. 2 wks ago Dr Pag told me to go to a neurologist who dignosed PD and Azilect. Only positive is that the Dr. is young and I am old-66.
Posted 18 January 2013 - 09:45 PM
Obviously, we are all unique creatures...meds impacting us all differently. I've been blessed to have neurologists who will truly partner with me...realizing that both of us know things that the other doesn't. A journey of continual discovery....
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