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#121 Linda Garren

Linda Garren

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Posted Yesterday, 08:01 AM

Linda, I've had dysphagia for 16 months. My MDS told me at my last visit he would not consider DBS for another two years, but said as soon as the pump is approved, I could have that.

I've had pretty severe depression and DBS can make that worse, thus the wait. DBS won't help my poor balance, so I would still use a walker and a wheelchair. It won't help the swallowing or the need for oxygen at night. Those muscles are already damaged. It would help with tremor, and dystonia, and perhaps dyskinesia because I wouldn't need as much Sinemet. Both DBS and the pump relieve on/off fluctuations.  That's a lot to keep straight, isn't it.  Are you able to take antidepressants to help with your depression? 

 

Julie and her husband and Michael (AB Normal) visited me over a month ago and we went out to dinner, but nobody thought to get pictures. Darn! Three Parkies with bad memories and a guy worried about his eyesight: none of us thought of it. Hopefully there will be more opportunities.  Yes--that would be so nice, wouldn't it.  I've thought of how much I'd love to fly out to see you, and it would be great to do it when the others are visiting, too.  I'd just love that.

 

In 2016, the International Park!.

Dianne


Age 67.  Retired from Johns Hopkins University and Medical Institutions after 36 years in a number of administrative coordination positions within the institutions.
Diagnosed with PD summer 2014.  11/2 25/100 Sinemet 3 times day.  50mg Turmeric & Bromelain daily.  200mg Ubiquinol. To start PT, speech therapy, exercising soon.  Lumosity on line.
Take 0.75 clonazepam and 0.5 mg melatonin nightly to help with sleep.  If awake early, I drink cup heated milk (and sometimes 5 mg melatonin) and read until go back to sleep.
For polycythemia vera I take 500 mg hydroxyurea daily, plus 81mg aspirin, and I get phlebotomies every 4-6 weeks. 
For clinical depression take 90 mg duloxetine HCl DR and 300 mg buprioprion Hcl XI daily.
Prilosec 20.5 mg daily for esophageal spasm, hiatal hernia, acid reflux
100 mg. doxycycline and clindamycin topical gel for borrelial dermatitis
Drink kefir daily.  Eat mostly organic,   Drink filtered water throughout day.  Going toward Mediterranean diet.  Take 5000 Vitamin D3 daily
Aim for 9 hours sleep per night to help with all above medical diagnoses and for Chronic Fatigue Syndrome
Annual MRI for meniongiomas

 





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