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Not For The Bashful

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#21 Beau's Mom

Beau's Mom

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Posted 19 November 2013 - 11:02 PM

Jenette, I laughed out loud! Especially the "one size fits most"! I got excited when I saw you could pick your color because I would want one in purple, but then the only color offered was white. So I guess I won't spend the extra money after all!  :grin: 

I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.


First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.


Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.


All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.

#22 sarahjo


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Posted 19 November 2013 - 11:37 PM

not at this point and not looking forward to that time, along with the other things that are before me.


i am taking norco and flexiril for pain and muscle pain, norco during day and flexiril for night time along with gabapentin. 

Marcia I was thinking the same thing about trying to cut back on med and i also remember what it was like before and its still very fresh in my mind, i just had meds uped and its frustrating at time but i am thankful i have an open line with neuro dr and his office.


i also agree its nice to be able to come on here and see and share with one another, you all have all be such a blessing to me, it helps me day to day.

Bless you all. my newest issue is forgetfulness, word searching in conversations, etc. this will also be addressed on the 25th of this month.

Thanks to all,


#23 Daven


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Posted 19 November 2013 - 11:42 PM



When your editing your message the toolbar has an icon that looks like a green tv screen.  If you click on it, you can add a url to a image, like the one you were indicating.






#24 chelle


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Posted 20 November 2013 - 09:51 AM

I have yet to have this problem but congrats to all of u for bring it up. Crap has never bothered me I come from a long line of plumbers.... great grandpa, grandpa, dad, and my husband... yes he is also a plumber. Its funny to hear people talkin about farts. Growing up if we were at the store with my grandma she literally would lift her leg, grab her vutt cheek and blame us. So embarrassing. Also being in a home with all males and all their friends we talk about everything. Literally from farts to whose sleeping around at school and what things are... nothing seems off limits in our home.
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#25 Jlc


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Posted 20 November 2013 - 10:24 AM


My house was never like that growing up. I have friends who I hang out with very often and their father and uncle are always around. They curse, talk about women and all that good stuff. I always wished I had that kind of relationship with my family. You've got a good thing going there.


#26 Rebecca2z


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Posted 24 November 2013 - 12:10 PM

I looked into this problem just in case my father is having issues ~

here is what I found











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