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Eye lids stay shut

Eye lids shut

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#1 SamD

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Posted 17 November 2012 - 08:27 PM

Hi,
My mom has had PD for 20 years.. Lately her eye lids are staying closed and at the same time she is also slowing down her motions.
I have read about botox injection etc.
Is there any other way to improve this condition?
Thank you
Sam

#2 Beau's Mom

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Posted 18 November 2012 - 12:56 PM

In my case (20+ years of PD symptoms) my sticky eyelids were caused by ever more slowly blinking of the eyes. I have had extremely dry eyes for at least 15 years, made much worse by LASIK 12 years ago. I use extra thick eye drops during the day and a petroleum jelly/mineral oil gel at night (all OTC). My favorite brands are Genteal and Systane.

I have also had problems with excess saliva, for which I receive Botox injections every 3 months or so. It seems to me that if dryness is the problem, Botox would make it worse.

I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

 

First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.

 

Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.

 

All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.





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