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Great news for my friend

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#1 daisy1963



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Posted 21 November 2012 - 12:16 PM

Good morning all,
Just wanted to share some great news. My friend (45, 15yrs in), had her second round DBS yesterday at Vanderbilt; It was a long road to get there, but the doctor said she had the best response he has seen! Her primary symptoms are severe dystonia and the value of her sinemet had been pretty much exhausted; it caused violent dyskensia. The relief and happiness from those around her were extraordinary. My hope that all find some relief from this terrible disease. Namaste
  • Vanillab1027 likes this

#2 christie


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Posted 21 November 2012 - 05:42 PM

Great news indeed daisy ! I was thinking about your friend, not only because she is so young, but also because she is a mother struggling to raise small kids while having such a cruel disease. not a small thing at all.
So good for her she had such a great response to DBS. I can only imagine your relief ! She is also very lucky to have such a devoted friend like you ! she must be a pretty special lady.
Best of luck to you and your friend ! Keep writing !

Edited by christie, 21 November 2012 - 05:50 PM.

-English is not my first language !

-Aged 40. Diagnosed at 35.

-Currently on madopar (levodopa and benserazide, 600mg daily) and Azilect (1mg daily).

#3 KimAgain


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Posted 23 November 2012 - 01:02 PM

We seldom, it seems, hear the words "Parkinson's Disease" and "great news," in the same breath - so, when we do, it brings tears to my eyes. Tell your friend I'm waving a big flag for her and her team - every win is a coup for us all.

Namaste bachatcha!!

Dx 2004, age 45.  DBS surgery, July 2009:  Bi-lateral STN placement; wires to one battery - on my left side. Battery sustained for right at 8 years and a new one was implanted October 27th, 2016.   Zero Sinemet CR daily (this took six and a half years to accomplish). 100mg Amantadine 3 x daily.  60mg Cymbalta daily.  SPS: Right. I invite communication with anyone who wishes to discuss DBS, PD, or any related topic; my email address is:  wyndsong@charter.net - email me if you'd like my phone number.


"Be kind, for everyone you meet is fighting a hard battle." --Plato

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