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Collection of symptoms Dad

olfactory sleep disorder rem disorder smell taste facial expression diagnosis anxiety depression swallowing

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#1 bspin888

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Posted 25 November 2012 - 03:27 PM

I am new here. And looking to find out if anyone else has friends/family that have been diagnosed prior to motor symptoms. My dad can't smell anything - and hasn't been able to for the last two years. He is losing weight, has REM disorder (which supplies our family with hilarious stories of him dreaming he is wrestling with his brothers only to be found on the floor wrestling the dog or waking up my mom in a panic telling her the floor is lava). His facial expression has changed, he blinks less often - which makes it look like he is staring while his face is super lax - kind of scary. He has bouts of crippling anxiety - so much so that he has begun to avoid going out though on the side he is a drummer in a band and loves to socialize. He watches It's a Wonderful Life every year, but the last two years he has cried through the whole thing. But he's not 'depressed' in the technical sense - it is more anxiety and the wrong emotional or too much or too little emotional output. His interest in food has waned - he used to finish all the food on the table - he would have all the serving dishes in front of him by the end of dinner - now he finishes what is on his plate most of the time. He can't keep weight on. He says he feels like he can't swallow, but he's been to the doctor who sent him to a neurologist who only diagnosed the REM disorder, but ignored the other issues.

He's definitely getting worse and it is affecting his relationship with my mom and his ability to handle the world. Has anyone here had a family or friend diagnosed prior to tremors or other motor symptoms of this disease? Does anyone have advice for talking with a neurologist to get them to 'rule out' Parkinson's? We would love to see him get this anxiety under control, but conventional psychotherapy and medication do not work. Thank you all and I wish that you have a wonderful week.

#2 Golden01

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Posted 26 November 2012 - 07:50 AM

Many of the symptoms you describe are similar to ones in people with PD. I'd encourage you to go to the best Movement Disorder Specialist (MDS) you can find. PD can take a long time to diagnose and since you've already been to a general neurologist, a visit to a MDS should speed the process.You might also see if there is a National Parkinson Foundation Center of Excellence near your home, here's the link: http://www.parkinson...are/NPF-Network.. My husband has had PD for seven years. For us, traveling a bit to see a MDS is worth the drive.

Good luck to you and your Mom.

#3 coacht

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Posted 26 November 2012 - 09:20 AM

My DW had severe anxiety as her first symptom. Many of the symptoms you describe are motor symptoms, tremors are only one of many motor symptoms and affect people to various degrees.

I would second Goldeno1's advice.

Coach T

#4 sarakay

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Posted 30 November 2012 - 11:31 AM

Before my husband was diagnosed with PD he was shuffling as he walked, had a stone like expression on his face, could not smell, had pain in his legs that made his nights restless, he had no energy, had trouble with his balance and was concerned that he had some kind of clot in his right leg. We went to a foot, ankle and leg specialist and he ruled out any kind of nerve or clot issue. We then saw a neurologist and she diagnosed his Parkinson's and said he should start out with 2400 mg. of COQ10. He was on that a year and did pretty well but his symptoms worsened including his low energy level so he was put on the lowest dose of Sinamet. He had no tremors until about 3 months ago. Now his right hand shakes. His is weaker on his right side than his left. He has swallowing issues and gets choked. His voice is weaker and his handwriting has completely changed. He is getting more hard of hearing.
He had an MRI after his first visit with the neurologist and this test determined that he had PD. I think you should take your dad to another neurologist just to be sure that PD is ruled out completely,

#5 tback715

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Posted 03 January 2013 - 01:41 PM

My mom was just diagnosed and she had many symptoms others than tremors for a year, though the tremors are what finally brought about the diagnosis. She also suffered from severe anxiety--she was having a health problem unrelated to PD and her reaction to that was confusing to me at the time. It was due to her severe axiety. She actually complained of a loss of sense of smell for many years prior to her diagnosis. I think what shocked me most was her rapid weight loss. She no longer had an interest in food when she used to love to eat. I now wish I had been more aggresive in trying to get PD diagnosed since her friend and I suspected it for several months before we finally got a diagnosis when the tremors started. I wish your family the best.





Also tagged with one or more of these keywords: olfactory, sleep disorder, rem disorder, smell, taste, facial expression, diagnosis, anxiety, depression, swallowing

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