Posted 29 November 2012 - 05:46 PM
Posted 29 November 2012 - 08:05 PM
Posted 01 December 2012 - 08:19 AM
Posted 01 December 2012 - 09:20 AM
Let's be real… PD is different.
Couldn't agree more. PD is much more than a movement disorder. a disabled body is nothing compared to the disabled will of PwP. Believe it or not we CAN make our bodies move. what we truly lack is the WILL to do that. and we are not to blame for that. simple dopamine replacement is a drop in the ocean of the deranged parkinsonian brain.
Posted 01 December 2012 - 09:36 AM
Let's be real… PD is different.
It is still very inspirational....
Posted 01 December 2012 - 10:30 AM
Posted 05 December 2012 - 08:30 PM
Posted 05 December 2012 - 10:57 PM
Believe it or not we CAN make our bodies move. what we truly lack is the WILL to do that.
I gather you've never been frozen before. When the day arrives that you lapse into that state you'll understand better. You can will nothing more complicated than blinks and limited eyeball movement; not the ability to focus one eye, not the ability to train both of them on an object to gauge depth, certainly not reading across a line of print in a newspaper. I never lost an ability to move my tongue either but that was about it. Blink and move my tongue. That was about it in terms of willed movement when frozen. I suppose they go, too, at end stage.
Posted 06 December 2012 - 01:49 AM
i was simply referring to the intriguing pathophysiology of parkinson's disease. a disease described as "paralysis of the will". this was not MY term, not MY interpretation. this is elegantly described in several research articles, including the following research paper entitled : "Parkinson's disease : fighting the will" ?
The authors conclude that : "the movement deficits characteristic of Parkinson's disease reflect not a purely motor impairment, but rather an aberrant implicit decision-making process. Indeed, parkinsonism has been described previously as a “paralysis of the will”; it is not that PD patients cannot move, it is that their dopamine circuitry does not “want” to"
believe, me, i know, and completely understand how difficult, and with time, virtually IMPOSSIBLE, it is for a patient with parkinson's to move when dopamine is depleted. i may not have frozen yet, but i'm 37 years old, and i can't walk fast enough to break a sweat, exercise like a normal homo sapiens, or go for a simple walk without feeling totally exchausted.
if you noticed, i agreed with luthersfaith that the-otherwise very inspirational video posted by our friend noah/thanks noah for posting this! -does not reflect the particular challenges faced by PwP.PD is different from other neurological or joint/muscular diseases. it is a severe degenerative brain disease, involving several neurotransmitters, affecting both motor and non-motor functions in a very complex manner. Hence, it's MUCH MORE difficult for a patient with PwP to move, exercise, etc. He/she must fight not only his/her rigid and trembling muscles but also a paralyzed will plus he/she must find a way to circumvent several defective brain circuits ! Not so easy...THAT was my point and it's the SAME with yours.
I wish we could just say "I will work my @ss off in the gym, and this will go away" but this approach doesn't always work it's magic. Don't get me wrong, exercise helps, tremendously, and in many forms, but NOT everyone with PD can exercise hard enough, and NOT everyone experiences the same benefits. Some patients are lucky enough to have a slowly progressive form of the disease, allowing them to exercise for many years into their disease and be functional with minimal medication/side effects. others progress quickly, do not tolerate meds, or suffer from severe dyskinesias, on/off fluctuations which limit their ability to do as much as they want to.
As you see i understand your challenges. i hope you understand me too.
PS : i know my freezing days will eventually come. your comment was a little harsh.
Posted 07 December 2012 - 09:47 PM
Posted 08 December 2012 - 06:32 AM
Posted 10 December 2012 - 01:21 PM
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