Posted 30 November 2012 - 03:57 PM
Posted 06 December 2012 - 07:41 AM
Posted 06 December 2012 - 11:01 AM
Posted 07 December 2012 - 09:45 AM
Posted 09 December 2012 - 12:27 PM
Posted 09 December 2012 - 04:00 PM
Posted 11 December 2012 - 03:47 PM
Posted 12 December 2012 - 06:22 AM
Posted 13 December 2012 - 12:15 PM
Posted 04 February 2013 - 06:14 PM
Posted 04 February 2013 - 08:06 PM
Posted 04 February 2013 - 09:47 PM
Posted 05 February 2013 - 08:42 AM
I agree 100% with you that Datscan is certainly not worth it. As long as your diagnosis is clear, insurance is not an issue and your treatment works well for you.
Datscan is a good diagnostic tool for uncertain cases early in the diagnostic process, and is now approved...both of these are no good enough reasons for you to have one! radiation exposure is justified only when an imaging test is absolutely essential.
However, i fail to understand why your doctors want you to have the scan. are they unsure about the initial diagnosis? in that case ask them about a differential diagnosis. (essential tremor, for example). on the other hand, if your symptoms have clearly progressed and you have developed dyskinesias i don't think there must be any serious doubt about your diagnosis of PD.
Posted 05 February 2013 - 09:46 AM
My neuro DX me in May 2010 and to confirm it, I was sent to a place called INDD for what at the time was the clinical trial DaTscan which confirmed PD. The MDS at INDD, Danna Jennings, was quite complete in her evaluation.
My opinion differs from christie here in the fact that the DaTscan was used to confirm, not diagnose my PD state. It was pretty clear and gave me closure and a face to what I was fighting. The scan showed less of a comma on the right side of my brain, which explains the slow movement on my left non dominant side. Fortuanately for me, things has progresse minimally in 3 years and I attribute that to the confirmation I recieved post DaTscan.
If it was me, I think that it was worth it in my case. Only you can decide. Good luck.
Posted 05 February 2013 - 09:49 AM
Posted 05 February 2013 - 12:31 PM
My opinion differs from christie here in the fact that the DaTscan was used to confirm, not diagnose my PD state.
i don't think we disagree...
Every imaging test is used to either confirm or exclude a clinical diagnosis/suspicion. The results of all laboratory and imaging tests are correlated to the patient's symptoms and the clinical findings. Only a physician can make a diagnosis. Datscan is and should be done only when there is diagnostic uncertainty about the clinical diagnosis. The reasons for this are obvious: a)it's a very expensive test, not always covered by insurance b)it involves exposure to iodine gamma radiation, thus slightly inceasing the cancer risk especially in younger patients c)the diagnostic accuracy of the test is a debatable issue, and actually much less than 100%-there are reports of autopsy proven cases of PD or Pd-plus with negative scans as well as cases of psychogenic PD with positive scans! d)the results of the test itself-even when in accordance to the clinical diagnosis-have no prognostic or therapeutic implications.
I agree with cberns that a Datscan is helpful for patients with difficulty accepting the diagnosis of PD. This is common in the early stages of PD when the symptoms are mild. However, Pwoodworker is not one of these patients. he has lived with PD for 11 years and does not seem to doubt his diagnosis or his need to be treated! Now,if his neurologists think otherwise, that's a whole different story.
Edited by christie, 05 February 2013 - 12:38 PM.
Posted 06 February 2013 - 09:08 AM
Posted 18 February 2013 - 01:19 PM
Posted 18 February 2013 - 05:58 PM
We all understand your frustration, one way or another we've all been there....uncertain diagnosis, conflicting doctors' opinions, tests and more tests with negative or inconclusive results, all leading to what seems to be like an endless waiting for the final diagnosis...it's nerve wracking.
Would you like to tell us more about your symptoms, your response to medication, the progression of your condition since initial diagnosis? Did the neurologist explain to you why he thinks this might be a conversion disorder or atypical essential tremor ?
PS: i fail to understand why a potential conversion disorder might be associated with an increased risk of dementia. i strongly doubt this is an established fact.
Edited by christie, 18 February 2013 - 06:00 PM.
Posted 18 February 2013 - 07:33 PM
0 user(s) are reading this topic
0 members, 0 guests, 0 anonymous users