Posted 02 December 2012 - 06:23 PM
Posted 02 December 2012 - 11:00 PM
I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.
First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.
Diagnosed December 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.
Current medications at age 63: Duopa gel via PEG-J tube, 6ml loading dose; continuous dose 2 ml. Trazodone 150 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 135 caregiver hours per month keep me moving.
Posted 03 December 2012 - 12:01 PM
Posted 04 December 2012 - 05:59 PM
is it possible that vitamin D plays a role in the pathogenesis of PD ? Maybe. Or, inversely, is it possible that PD itself predisposes/causes the hypovitaminosis through a yet unknown pathway? The jury is still out on that one too.
In the meantime, let's ALL :
1.check our levels of 25(OH)vitamin D (with a simple blood test ) AND
2.make sure we get adequate sunlight exposure for vitamin D production. 10-15 minutes at around 10.00 or 15.00 three times a week should do the trick. we may need a little more, so what's a few more minutes of sun therapy?
PS : i had my own levels checked and iit seems 'm severely deficient in Vit D. My total 25(OH)vitaminD is only 9.5ng/ml (normal values are above the level of 30ng/ml! ). On a side note, i'm 37, in the early stages of PD, plus i live in Greece, one of the most sunny countries in the world ! go figure. As far as i am concerned, i'm convinced that PD caused my Vit D deficiency and not the other way around. That's no excuse of course for not enjoying the benefits of sunshine !
- Rogerstar1 likes this
-English is not my first language !
-Aged 39. Diagnosed at 35.
-Currently on madopar (levodopa and benserazide, 500mg daily) and Azilect (1mg daily).
Posted 08 December 2012 - 01:04 AM
Currently age 42. Symptomatic at age 36. Diagnosed at age 39. Sinemet 25/100 mg 2-tabs every 4 hrs (800-1000mg levodopa daily); carbidopa/levodopa 50/200 mg CR at bedtime; entacapone 200 mg every 4 hrs; Amantadine 100 mg 3 times/dayy; gabapentin 200 mg 2 times/day; gabapentin 400 mg at bedtime; Klonopin 0.5 mg at bedtime; Seroquel 50 mg at bedtime; Effexor 75 mg daily; Vit-D3 5000 IU daily;Vit-B Complex daily; Melatonin 3 mg at bedtime
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