Posted 02 December 2012 - 06:23 PM
Posted 02 December 2012 - 11:00 PM
I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.
First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.
Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.
Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.
All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.
Posted 03 December 2012 - 12:01 PM
Posted 04 December 2012 - 05:59 PM
is it possible that vitamin D plays a role in the pathogenesis of PD ? Maybe. Or, inversely, is it possible that PD itself predisposes/causes the hypovitaminosis through a yet unknown pathway? The jury is still out on that one too.
In the meantime, let's ALL :
1.check our levels of 25(OH)vitamin D (with a simple blood test ) AND
2.make sure we get adequate sunlight exposure for vitamin D production. 10-15 minutes at around 10.00 or 15.00 three times a week should do the trick. we may need a little more, so what's a few more minutes of sun therapy?
PS : i had my own levels checked and iit seems 'm severely deficient in Vit D. My total 25(OH)vitaminD is only 9.5ng/ml (normal values are above the level of 30ng/ml! ). On a side note, i'm 37, in the early stages of PD, plus i live in Greece, one of the most sunny countries in the world ! go figure. As far as i am concerned, i'm convinced that PD caused my Vit D deficiency and not the other way around. That's no excuse of course for not enjoying the benefits of sunshine !
-English is not my first language !
-Aged 39. Diagnosed at 35.
-Currently on madopar (levodopa and benserazide, 500mg daily) and Azilect (1mg daily).
Posted 08 December 2012 - 01:04 AM
Currently age 42. Symptomatic at age 36. Diagnosed at age 39. Sinemet 25/100 mg 2-tabs every 4 hrs (800-1000mg levodopa daily); carbidopa/levodopa 50/200 mg CR at bedtime; entacapone 200 mg every 4 hrs; Amantadine 100 mg 3 times/dayy; gabapentin 200 mg 2 times/day; gabapentin 400 mg at bedtime; Klonopin 0.5 mg at bedtime; Seroquel 50 mg at bedtime; Effexor 75 mg daily; Vit-D3 5000 IU daily;Vit-B Complex daily; Melatonin 3 mg at bedtime
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