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Social Security and Supplemental Security


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#1 frogger2

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Posted 03 December 2012 - 08:59 PM

Hi
I was diagnosed with Parkinsonism around the age of 21. I was in Collage at the time. My symptoms hit me all at once, I was unable to speak fluently very soft voice, my gait and balance became very weak. I am now 28 and the symptoms have worsted.Is their anyway I could collect on either Social Security or Supplemental Security. I do not have any documented work history. Any help would be much appreciated. Thank you

#2 Beau's Mom

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Posted 03 December 2012 - 09:44 PM

frogger2, you can go to SSA.gov online and apply for SSI. My daughter has been handicapped since birth and that's what she has lived on since she turned 18. It's not much she supplements with food stamps and Medicaid. The real question is, do you have strong documentation from doctors about your condition, its progression, and how it has made you unable to work. Most people are denied the first few times. Document, document, document and keep trying. good luck!

I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

 

First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.

 

Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.

 

All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.


#3 frogger2

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Posted 03 December 2012 - 10:19 PM

See My issue is I was diagnosed after the age of 18. I was tryed for SSI a few months ago and I was denied, due to the age. I am not sure of anyway around this unless you can somehow find something in my medical history that would suggest or show I had some of the symptoms before 18. Thank you

#4 Beau's Mom

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Posted 03 December 2012 - 11:09 PM

Did you have any PD symptoms documented by a medical professional before the age of 18. I suggest you call a company called Allsup. I don't know how much they charge, but their specialty is getting people SSD and SSI benefits. Here is the link: www.Allsup.com/Apply-for-Disability,

I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

 

First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.

 

Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.

 

All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.


#5 Golden01

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Posted 04 December 2012 - 08:08 AM

I think the suggestions from Beau's Mom are good ones. I think the lawyers and companies that assist with SS applications are limited by law to a certain percentage of back payments (maybe 25%?). Supplemental Social Security Income has fairly strict requirements on assests and income. In the new book from the American Academy of Neurology "Navigating Life with Parkinson Disease, there is a good chapter on legal matters with info on different types of trusts to consider if you have significant health problems. Is your family assisting you? If so, along with them, you may want to consider consulting an attorney that specializes in estate planning for people with health problems or special health needs to identify more options.

Good wishes to you. Know you've got good support here!

Husband diagnosed in 2005-Medicines: Azilect, Artane, and Amantadine, Levodopa (1X/Day); Sister and Best Friend from Childhood also have PD


#6 SSDisability

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Posted 24 December 2012 - 07:38 PM

If you do not have any work history, you will have to apply for Supplemental Security Income (SSI) benefits. To qualify for SSI, you must be expected to be out of work for a year due to your disability and your income and assets combined should be less than $2,000.

More info on qualifying for SSI.

#7 frogger2

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Posted 02 January 2013 - 12:55 AM

Hi thank you all for your posts. I have not moved forward with this as of yet. Beau's Mom I do not have any pd symptoms documented before the age of 18. I am lucky in the fact that I have a friend who is an Tax Attorney who focuses on estate planning. I have not talked to him about this issue, As I tend not to bring my illness up with friends. But im sure he would be willing to help. If need be. Thankyou




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