How do you deal with fatigue?
Posted 05 December 2012 - 09:18 PM
What do you do to combat fatigue? Do you take a prescription that alleviates the problem? It's really starting to have a negative effect on my life. My wife is concerned that I'm going to fall asleep at a stop light and to be honest, so am I. Any suggestions will be greatly appreciated.
Posted 06 December 2012 - 08:29 PM
I was initially on Amantadine when I was first trying to figure out what was going on with me. I had been extremely fatigued as you describe, and Amantadine helped significantly. I understand this is a relatively "weak" medication as far as PD motor symptoms go, but it sure helped me with fatique. I hope this helps.
Posted 07 December 2012 - 06:57 PM
Thanks for the response. I guess its good to know that there might be something that might help me. I'm barely functional at work. Somethings gotta give. Today was a rough one with falling asleep at the drop of a hat or the tremor in my right hand kicking in when I wasn't expecting causing me to spill a cup of noodles soup on my hand. The result was third degree burns on my index finger and the top of my hand. I think its time my doctor and I do a little more than observation.
Posted 07 December 2012 - 08:58 PM
Posted 08 December 2012 - 01:14 AM
Posted 08 December 2012 - 09:39 AM
Kevin, I'm so sorry that your friends and family dismiss your complaints as being lazy. No one asks for the problems that we are dealt. That's one area where everyone around me seems very supportive. My wife was the one who observed that I might be fatigued rather than just being tired. I've adjusted my life around my peripheral neuropathy in my legs, so I'd really like to discover something that would allow me to overcome this new problem. The fatigue has been building up over the last 6 months.
Posted 08 December 2012 - 06:58 PM
Have you discussed this with your wife ? i think it's very important to make her understand how you feel. probably even go together to a counselor, strip off this emotional bandade, get it all out, once and for good.
If despite your efforts she still can't cope with this the way she should, the way you would like her to, cut her some slack too and give her some time. maybe time is all that she needs. maybe time is all that YOU need too.
- Rogerstar1 likes this
-English is not my first language !
-Aged 40. Diagnosed at 35.
-Currently on madopar (levodopa and benserazide, 600mg daily) and Azilect (1mg daily).
Posted 09 December 2012 - 03:20 AM
I think you're right. I know she loves me very much because she shows me her love every day. It seems that she just doesn't know how to deal with my having PD and also is very worried about the finances right now.
Thanks for the encouragement and words of advice!
Posted 10 December 2012 - 09:05 PM
Posted 11 December 2012 - 05:58 AM
started Requip Modutab and from the first day and min dose I felt much better
now with 4mg a day I fell almost normal
Posted 24 July 2013 - 06:00 PM
Exercise helps somewhat, but I have to take a nap afterwards to recover. Amantadine has also helped me to a degree, but otherwise I'm just suffering through it. One of the worst problems with YOPD is that no one, spouse included, will cut me an ounce of slack for anything. Pain, fatigue, and depression are not visible like tremor and dyskinesias, so they dismiss those complaints as lazyness and attempting to "blame everything on the PD."
My husband is the opposite. He feels a lot of what he experiences has nothing to do with his PD and when I tell him otherwise he gets upset. It's like he's in denial. He knows he has PD but with all the new symptoms I think he's having a hard time coming to terms with what lies ahead for him and for us as a family. I have noticed he is fatigued and not just tired. He can have a pretty slow day at work and he still come home complaining of being "tired".
Posted 25 July 2013 - 08:51 PM
Go to Heaven for the climate, Hell for the company!
Posted 26 July 2013 - 08:37 AM
I use amantadine, requip XL, siminet, comtan, azilect and a heavy load of sleep meds, The day meds dont seem to address the fatigue, however, a friend gave me a aderral and that gave me and that was great, I am going to talk to my Dr. about prescribing for me to help with the fatigue. No problem with taking another meds, after all I am a lady of the 50's and believe in the OLD Dow Chemical moto "Better living through chemistry".
Received my Parkinsons kit from the site yesterday, it is great, I completed the med list and hubby teased where was I going to list my ganja - 2 large red/gold/green hairy buds daily.
Smile every day and laugh at least once at something the PD is now causing you to do. I personally love the "left" turns that happen as I walk. The smile really works - it makes everyone worry what you have been up to!
Posted 30 July 2013 - 12:03 PM
I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.
First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.
Diagnosed December 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.
Current medications at age 63: Duopa gel via PEG-J tube, 6ml loading dose; continuous dose 2 ml. Trazodone 150 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 135 caregiver hours per month keep me moving.
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