Needing support and opinions from those who know.
Posted 19 December 2012 - 10:32 AM
Posted 19 December 2012 - 04:01 PM
You are NOT in the same spot...now you have a diagnosis. and a rather "benign" diagnosis, with a good prognosis, far better than the diagnosis of a degenerative condition such as PD. PD is a horrible disease. you should be relieved you (seem) to have got off the hook ! i would LOVE to be in your place.
On the other hand, i don't quite understand why your neurologist feels that your essential tremor must not be treated. (at this point).
Posted 19 December 2012 - 10:23 PM
Posted 20 December 2012 - 03:49 AM
On the other hand, as emphasized by one of the top movement disorder specialists William Weiner : "Quite honestly, we expect medical students to be able differentiate between essential tremor and parkinsonism". in the absence of true rigidity and bradykinesia, a diagnosis of PD is highly unlikely, if not impossible. And most neurologists are competent enough to tell the difference between ET and PD.
From my point of view, Susie went to the neurologist (we can only assume she was an experienced MDS), the neuro examined her, listened to her and explained her findings to her, including why she thinks PD is out of the picture. That is GOOD news, no, correction, that is GREAT news,leaving little margin of error.
My opinion : people with a tremor or any other neurological symptom resembling Parkinson's,but without a formal diagnosis of PD, should not read too much into anything written in this forum. (present post included, LOL ). Our opinion/advice, albeit well intended, will always lean towards PD. Nothing worse than projecting our own diagnosis/fear of PD to other people.
Edited by christie, 20 December 2012 - 03:50 AM.
Posted 20 December 2012 - 08:50 AM
Posted 21 December 2012 - 02:12 AM
Posted 21 December 2012 - 04:33 AM
Edited by christie, 21 December 2012 - 04:34 AM.
Posted 21 December 2012 - 06:41 PM
VERY well said. Just as the true colors of people come out, same as PD.
I would seek a 2nd opinion though. For any disease, and just for peace of mind, it's a good idea to seek a 2nd opinion, esp if you're not comfortable with the first.
I had genetic counseling the other day...learned a LOT regarding YOPD and genetics, as opposed to getting PD as an older individual. Interesting.
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