Parkinson's and divorce
Posted 15 January 2013 - 09:40 AM
Posted 15 January 2013 - 10:48 AM
Posted 15 January 2013 - 04:23 PM
Posted 15 January 2013 - 05:25 PM
Posted 15 January 2013 - 08:35 PM
I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.
First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.
Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.
Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.
All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.
Posted 15 January 2013 - 09:42 PM
Kristakj, nothing worse than feeling lonely when living with someone. you are a young, beautiful woman. and now you have the freedom, the chance to rebuild your life. i know it might sound a little "corny", but don't give up on love. just because you are alone now, doesn't mean you will be alone for the rest of your life. As for your ex-husband he should do everything in his power to help you with the kids! he will always be their father.
Patricia, i'm so sorry for your loss. i don't know if all patients with PD have an inner strength but you certainly do!
dianne, you are strong, you have nothing to fear...
-English is not my first language !
-Aged 39. Diagnosed at 35.
-Currently on madopar (levodopa and benserazide, 500mg daily) and Azilect (1mg daily).
Posted 16 January 2013 - 05:21 AM
As a man who got totally blind-sided by a cheating wife several years ago, my heart totally goes out to you. It was, by far, the worst thing I have ever gone through in my life. The only thing that really helped me was venting to anyone and everyone who would listen. I quickly found out who my true friends were. It took me about 6 months to pull out of it, and close to a year before I was truly over it. Hang in there and take it one day at a time.
Currently age 42. Symptomatic at age 36. Diagnosed at age 39. Sinemet 25/100 mg 2-tabs every 4 hrs (800-1000mg levodopa daily); carbidopa/levodopa 50/200 mg CR at bedtime; entacapone 200 mg every 4 hrs; Amantadine 100 mg 3 times/dayy; gabapentin 200 mg 2 times/day; gabapentin 400 mg at bedtime; Klonopin 0.5 mg at bedtime; Seroquel 50 mg at bedtime; Effexor 75 mg daily; Vit-D3 5000 IU daily;Vit-B Complex daily; Melatonin 3 mg at bedtime
Posted 16 January 2013 - 07:25 PM
I wish you had some family support or close friends nearby Kristakj.
Take a deep breath and find that inner determination to not let this friggin disease take you down. As for your divorce, I'm temted to think you will be better without his issues, but it will take some time to accept this.
You can do this! You will find strength though your sons.
Dx in 95' at 35- Normal MRI, Abnormal Da t Scan- Resting tremor- right foot, leg tremors. RX- 25/100 Carb/ l <600 mg,
Posted 18 January 2013 - 07:07 PM
Posted 23 January 2013 - 08:46 AM
Posted 01 March 2013 - 05:54 AM
Posted 01 March 2013 - 08:24 AM
Posted 01 March 2013 - 03:32 PM
Posted 02 March 2013 - 12:09 PM
And Shakti, I have been thinking of you, have tried to pm you but your message box must be full. I hope you are doing well and it was good to see your name up and posting.
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