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Surgery - What to Expect


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#1 Golden01

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Posted 24 January 2013 - 08:38 PM

Learned today that my husband with PD will need rotator cuff surgery. He's checking with his MDS as we know he will need to be his Azilect before the surgery before we set the date. They are telling him that full recovery could take up to six months. Does anyone have experience with this or similar surgery? We've found any injury seems to take longer to recover from because of the PD. Any suggestions for sailing through this smoothly? We have the medicine kit for going to the hospital from NPF.

Husband diagnosed in 2005-Medicines: Azilect, Artane, and Amantadine, Levodopa (1X/Day); Sister and Best Friend from Childhood also have PD


#2 Beau's Mom

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Posted 25 January 2013 - 12:14 AM

I just had this done in December. It was a much bigger emotional and physical strain than I expected, although it might have been lessened by less stress already occurring in other areas of my life. Be SURE to prepare your Aware in Care information. One of the first possible calamities that being prepared and having the Safe w/PD meds list along prevented was being given the wrong anesthesia! Make sure to discuss everything directly with the anesthesiologist, not the nurse anesthetist or any assistant! And do be prepared for a longer than usual recovery period. I have yet to begin passive range of motion after nearly 6 weeks.

I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

 

First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.

 

Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.

 

All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.


#3 Golden01

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Posted 25 January 2013 - 08:13 AM

Oh my! We do have the Aware in Care Info and will get further instructions from my husband's MDS today. They told him to expect 6 months before he is back to his regular activities (bike riding, etc.). Thank you for the info. Do you go to physical therapy? Was yours an in-patient or out-patient procedure?

Husband diagnosed in 2005-Medicines: Azilect, Artane, and Amantadine, Levodopa (1X/Day); Sister and Best Friend from Childhood also have PD


#4 Beau's Mom

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Posted 25 January 2013 - 01:35 PM

Mine was an inpatient procedure because I am on a walker full time and my PD is fairly advanced. I spent two days in the hospital and several weeks in rehab facilities receiving OT & PT. I am currently on my second admission to the hospital for depression and have not yet been "home," wherever that may turn out to be. If I had the choice to do it again, I absolutely would not. Your husband's disease sounds much less severe than mine, and I'm guessing his will be an outpt procedure with few complications.

Another suggestion: If your husband spends any time in the hospital or a rehab, ask the doc to write an order that you or he can keep his PD meds at bedside so that you can give them to him on time.

I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

 

First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.

 

Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.

 

All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.


#5 Golden01

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Posted 25 January 2013 - 08:11 PM

Thanks for the tips, especially about keeping your own medicines. They are planning on an out-patient procedure. Hospitals stays can be hard on people as you learned with your medications.

Husband diagnosed in 2005-Medicines: Azilect, Artane, and Amantadine, Levodopa (1X/Day); Sister and Best Friend from Childhood also have PD


#6 Golden01

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Posted 15 February 2013 - 09:02 AM

My husband's surgery is scheduled for today. He's come down with a cold so don't know if it will be a go or not. We have all our "Aware in Care" papers ready to take along. It is a terrific kit. A week without his Azilect (had to stop for the surgery) is showing. I hope he can have the surgery as planned so he doesn't have to go longer without the medicine. I'm holding off on making the jello in case he doesn't have the surgery but have everything ready for the chicken soup which would be good for him today either way.

Husband diagnosed in 2005-Medicines: Azilect, Artane, and Amantadine, Levodopa (1X/Day); Sister and Best Friend from Childhood also have PD


#7 coacht

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Posted 15 February 2013 - 09:41 AM

Hope all goes well.

#8 Golden01

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Posted 17 February 2013 - 10:50 AM

Thanks for the good wishes. The doctors gave him a go for the surgery even though he had a cold and he came through with flying colors. They felt staying off the PD medications would be more problematic and he was cleared for receiving anesthesia. The shoulder repair turned out to be less than expected so rehab should go quickly. The "Aware in Care" info was appreciated by the hospital staff and the nurses were very receptive to my suggestions on offering directions in post-op to help him swallow more easily (drink slowly, tuck your chin). He's moving slowly here at home but I'm confident he will improve now that he is back on his PD medications.

If you haven't ordered a NPF "Aware in Care" kit, I encourage you to do so today!

Husband diagnosed in 2005-Medicines: Azilect, Artane, and Amantadine, Levodopa (1X/Day); Sister and Best Friend from Childhood also have PD


#9 Beau's Mom

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Posted 17 February 2013 - 04:08 PM

So happy to hear it went well for you!

I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

 

First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.

 

Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.

 

All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.


#10 Golden01

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Posted 19 February 2013 - 07:39 AM

Thank you! He is recovering well. I head back to work today but am confident he'll get along fine. Hooray for my long weekend! My sister came and stayed with us over the weekend too. She is a great help.

Husband diagnosed in 2005-Medicines: Azilect, Artane, and Amantadine, Levodopa (1X/Day); Sister and Best Friend from Childhood also have PD





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