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Sexual dysfunction


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#1 annfisher43

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Posted 27 January 2013 - 08:54 PM

I hate to ask but does anyone out there have a problem with sex. Not sure if its the Parkinson's or depression or what. On gyn just said to keep trying. Not a lot of help

#2 KimAgain

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Posted 27 January 2013 - 09:38 PM

Hmm... interesting question. Frankly, I had an issue several years ago when I was on dopamine agonists. For me the agonists were a real problem because--as my docs explained at the time--they effected my striated muscles. This first resulted in urinary incontinence and, shortly thereafter--on the sexual front--let's just say I could run the race, but not cross the finish line. I was horrified! The good news, however, is that very soon after I came off the meds, things returned to normal. With this in mind, my questions to you would be:

1. Are you taking any meds?
2. When (in relation to the meds, if you are taking any), did your problem begin?
3. How are your waterworks functioning?
4. Are you interested, but unable, or able, but not interested?

If you suspect it might be meds, don't talk to your GYN, I'd suggest you hotfoot it to your MDS for a meds review.

Good luck,
Kim

Dx 2004, age 45.  DBS surgery, 2009:  Bi-lateral STN placement; wires to one battery - on my left side.  500mg Sinemet CR daily.  I invite communication with anyone who wishes to discuss DBS, PD, or any related topic; my email address is:  wyndsong@charter.net - email me if you'd like my phone number.

 

"Be kind, for everyone you meet is fighting a hard battle." --Plato


#3 annfisher43

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Posted 28 January 2013 - 12:33 PM

Had bladder issues for a while and had a sling which solved the incontinence problems. The desire was there for a whle but not crossing the finish line for over a year. It was like the muscles didnt work any more. i have acgreat husband thru the tears
The s desire part has gone too and is replaced more with anxiety I want to thank you for responding to such a delicate subject

#4 Beau's Mom

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Posted 28 January 2013 - 12:35 PM

ayup.

I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

 

First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.

 

Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.

 

All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.


#5 christie

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Posted 28 January 2013 - 04:04 PM

Aside from meds (btw, a common side effect of dopamine agonists is hypersexuality!), untreated or undertreated PD can destroy your sex life...I used to be a very sexual person, but now i've lost any interest in sex. "symptoms": no sexual desire, reduced sensation, difficulty in responding...and i can't blame it on the meds, cause i'm still drug naive. until next week, that is...i'm close to swallowing my first pill. I've had enough...

Edited by christie, 28 January 2013 - 04:06 PM.

-English is not my first language !

-Aged 39. Diagnosed at 35.

-Currently on madopar (levodopa and benserazide, 500mg daily) and Azilect (1mg daily).


#6 annfisher43

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Posted 28 January 2013 - 04:10 PM

I am I sinemet and antidepressant and anti anxiety I do have an appointment with a phychiatrist next month. Hoping for some help

#7 Luthersfaith

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Posted 28 January 2013 - 06:50 PM

It seems that I need to put my wife's needs before mine. PD / drugs have taken away my "drive" but I am still interested... I just have to put my mind on the subject.
"I have told you these things, so that in Me you may have [perfect] peace and confidence. In the world you have tribulation and trials and distress and frustration; but be of good cheer [take courage; be confident, certain, undaunted]! For I have overcome the world." - Jesus (John 16:33)

#8 annfisher43

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Posted 28 January 2013 - 09:31 PM

I really need to thank all that have responded. It helps a lot to have some one who might know what you are going thru. Thanks all

#9 bajansunbabe

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Posted 30 January 2013 - 08:54 AM

I too can run the race but not cross the finish line! My partner sometimes gets frustrated at me and thinks I am holding back. I try to explain but........I have signed up for a workshop at the World Parkinson's Congress on sexual issues in Parkinson's so hopefully I will learn something! I will try to remember to share if I do learn something to help us!

Deanna

#10 williamg

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Posted 30 January 2013 - 11:52 AM

.I have signed up for a workshop at the World Parkinson's Congress on sexual issues in Parkinson's so hopefully I will learn something!
Deanna


Sounds ....................... Interesting :huh:

I have the issue also. I have no erg what so ever. I gave blood at my last Dr apt to have my testosterone tested just to see what the results are.
I'm not crazy, I'm just special!! ..No, wait..... Maybe I am Crazy. One second...... I have to talk to myself about this... Hold on......................

#11 Kristakj78

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Posted 30 January 2013 - 08:23 PM

I had this issue too for years, so not sure if it was the relationship or the PD.

#12 Luthersfaith

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Posted 02 February 2013 - 07:43 AM

In stead of sexual disfunction, I would rather call it sexual adaptation...
"I have told you these things, so that in Me you may have [perfect] peace and confidence. In the world you have tribulation and trials and distress and frustration; but be of good cheer [take courage; be confident, certain, undaunted]! For I have overcome the world." - Jesus (John 16:33)

#13 annfisher43

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Posted 02 February 2013 - 07:54 PM

Luther you are absolutely correct

#14 annfisher43

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Posted 02 February 2013 - 07:55 PM

Luther you are absolutely correct

#15 rapid4b

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Posted 03 February 2013 - 11:51 AM

I have no problem with sex, my carba/levo gives me the opposite problems ,hypersexuality, there isnt enough hrs in the day for me , thank god i have a very sexual wife! she doesnt mind! LOL,can definatly see where it could cause probloms!
Thanx, Randy

#16 johnnys

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Posted 05 February 2013 - 04:35 PM

Well I sure had a reaction when I went off sinemet.Didn't belive the part about it being a enhancment.But to chagrin of my spouse i do have equipment problems at timesThe desire has not faded a bit..For those who have depression mine is almost nonexistant maybe alittle apathy when i see others older and suffering alot more than me

#17 FlyBaby

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Posted 16 August 2014 - 05:01 AM

Posted 03 February 2013 - 09:51 AM

I have no problem with sex, my carba/levo gives me the opposite problems ,hypersexuality, there isnt enough hrs in the day for me , thank god i have a very sexual wife! she doesnt mind! LOL,can definatly see where it could cause probloms!
Thanx, Randy          

 

 

I'll have what he's having please........

 

The reason I brought this thread back up, is although I do have lots of desire, and Cialis helps in wonderful ways, it seems that even though I can run the race....... half the time, the finish line evades me....I mean, I can go forever (the energizer bunny of sex), but never get to the orgasm part. 

I do understand that a lot of ladies would love to have a guy with my problem..... I mean, I'm the total opposite of the "30 second date"...... but the frustration is over the top........ I started needing the ED pills when I was only 47.  I was embarrassed then that I needed them, and even more so now...

Never thought I'd be having these issues this young.............<sigh>

 

Any ideas folks???? or does anyone else have this issue.... guys or girls...... and what do you do?

 

thanks


Edited by graflexmaster, 16 August 2014 - 05:16 AM.

Michael

Current age= 55

First symptoms: 1975

Prior mis-diagnosis: Dyspraxia, Essential Tremors, Ataxia, "Nerves".....

Final Dx. of Parkinson's: 2013

 

DBS surgery 12/2014............ Bilateral lead placement with a single battery/stimulator on RH side. Turned on 12/21/14 

 

"I will do what i can, while I can, and when i can't, I'll do something else"

 


#18 Keeper

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Posted 03 September 2014 - 01:06 AM

I have no interest. When I was younger I was very, very interested. My husband thought I was a little over active in my 20's. (We've been together a little over 30 years.) My husband is persistent in making sure I "cross the finish line" before he does, but still I don't seem to care to do it again. No wham bam in our house... It's usually a 30-45 minute deal from warm up to the shower. How can you have really good sex and not want to have sex? It reminds me of when I tell people that I don't care for ice cream. I feel like I'm defective somehow. This complete disinterest has come on over the course of probably 15 years. I thought it was stress, or having a child, or my anti-depressants but now I wonder if it's Parkinsons. I thought a woman peaked in her sexual whatever in her 40's or something, like guys in their 20's. Am I broken? I feel like I should appreciate the extraordinary effort my husband puts into this and reciprocate by initiating, but I really don't care and would rather just sleep. Okay, you can throw things at me now for being a bad wife... :(

#19 New normal

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Posted 03 September 2014 - 01:59 AM

Keeper,
Are u as honest with yr doctor as u r with us? Maybe he can help.
Dx'd 6/13 @ 66. Symptoms 10 years prior.
carbidopa/l dopa 50/200 5x daily. Amantadine 100 mg 2x per day.
Normal DaT scan '13, normal MRI, '13 Dx'd w/l dopa challenge in office by MDS
Second DaT scan, 10/14, normal.
Symptoms: significant tremors rt & lft side, rt leg drag whn tired, balance, slow movement, cognitive/ speech issues, apathy
Live, laugh, and be grateful. :) "ACCEPT, ADAPT, AND MOVE ON." :)

#20 Bills

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Posted 03 September 2014 - 02:43 AM

Posted 03 February 2013 - 09:51 AM
I have no problem with sex, my carba/levo gives me the opposite problems ,hypersexuality, there isnt enough hrs in the day for me , thank god i have a very sexual wife! she doesnt mind! LOL,can definatly see where it could cause probloms!
Thanx, Randy


I'll have what he's having please........

The reason I brought this thread back up, is although I do have lots of desire, and Cialis helps in wonderful ways, it seems that even though I can run the race....... half the time, the finish line evades me....I mean, I can go forever (the energizer bunny of sex), but never get to the orgasm part.
I do understand that a lot of ladies would love to have a guy with my problem..... I mean, I'm the total opposite of the "30 second date"...... but the frustration is over the top........ I started needing the ED pills when I was only 47. I was embarrassed then that I needed them, and even more so now...
Never thought I'd be having these issues this young.............<sigh>

Any ideas folks???? or does anyone else have this issue.... guys or girls...... and what do you do?

thanks


Do u take a ain't depressant?.. A ssri?




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