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Sexual dysfunction


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#41 FlyBaby

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Posted 15 March 2015 - 04:23 AM

that's a wonderful article Dianne. Yes, sexual issues should be brought up and discussed with our collective Dr.'s.

As to your suggestion above? Since this is an issue that affects both genders, and we've always said that no subject was taboo, I would vote for a co-ed thread on the subject. I for one, would like to know and understand the female perspective on this subject, as well as how it affects them. Yes, I realize that it could be googled, but if we can help someone outside our group, that may be too shy to openly join? then I would say, that that would be a very good thing.


Michael

Current age= 55

First symptoms: 1975

Prior mis-diagnosis: Dyspraxia, Essential Tremors, Ataxia, "Nerves".....

Final Dx. of Parkinson's: 2013

 

DBS surgery 12/2014............ Bilateral lead placement with a single battery/stimulator on RH side. Turned on 12/21/14 

 

"I will do what i can, while I can, and when i can't, I'll do something else"

 


#42 TexasTom

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Posted 15 March 2015 - 08:46 AM

Excellent article.

 

I'll be the first to admit it's not the same anymore.  My wife likes the house to be cool, so that is great to snuggle. When it is cooler it triggers dystonia - muscles contract so not only do they want to pull and twist, it is painful.  So when cooler I need to get up and walk around.   Uh, not conducive to a nice quiet morning of snugging in.

 

While I can understand some folks really do not wish to publish in an open forum, one way around that is to send your comments to be posted to someone else you trust. Then post to the forum with a Pseudo name  "Jane, age 42, commented.....  "   (All you know is Female around her 40's)....  

 

When I had first meet my wife, I was on Paxil.  Near impossible to have sex, despite how crazy and horny I was.  It just wouldn't behave.  The good part was I had to be very creative in figuring out other things to.  It was difficult for my wife as she wanted orgasms to be mutual. Well, most guys only need 30 seconds.... most women want 10 minutes.  So with nice gentle hands for the first 9 minutes 30 seconds it was possible to arrange at the same time.  Irony is to slow down I'd start thinking of calculus problems (something other than this beautiful women I was laying next to, otherwise I'd finish in two seconds!)

 

Maybe I need to try Cialis?  I tried the little blue pill (Viagra) during Paxil days.... and got a pulse of 200!  Feeling like your heart is going to explode isn't conductive to a romantic evening.


Dx 9/2014  

Sinemet  25/100  8 to 10 per day.

Comtan   200mg  4 per day

 

Beautiful young people are accidents of nature, But beautiful old people are works of art. Learn from the mistakes of others. You can't live long enough to make them all yourself.   -- Eleanor Roosevelt


#43 johnnys

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Posted 15 March 2015 - 09:23 AM

Intimacy is far more rewarding then sex.I think alot of people undervalue the whole relationship.PD has it's physical limitations but to me it's brought inner awareness.



#44 Beau's Mom

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Posted 15 March 2015 - 01:34 PM

Thanks for pointing that out, johnnys. Intimacy is so much more than sex. It is me letting you know me deeply, All my fears, hopes, what I yearn for, what creates sadness. Many people have never experienced true emotional intimacy.

 

Dianne


I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

 

First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.

 

Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.

 

All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.


#45 FlyBaby

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Posted 15 March 2015 - 10:42 PM

Very true Dianne, so very true......


Michael

Current age= 55

First symptoms: 1975

Prior mis-diagnosis: Dyspraxia, Essential Tremors, Ataxia, "Nerves".....

Final Dx. of Parkinson's: 2013

 

DBS surgery 12/2014............ Bilateral lead placement with a single battery/stimulator on RH side. Turned on 12/21/14 

 

"I will do what i can, while I can, and when i can't, I'll do something else"

 


#46 afroney

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Posted 16 March 2015 - 11:47 PM

Posted 03 February 2013 - 09:51 AM
I have no problem with sex, my carba/levo gives me the opposite problems ,hypersexuality, there isnt enough hrs in the day for me , thank god i have a very sexual wife! she doesnt mind! LOL,can definatly see where it could cause probloms!
Thanx, Randy


I'll have what he's having please........

The reason I brought this thread back up, is although I do have lots of desire, and Cialis helps in wonderful ways, it seems that even though I can run the race....... half the time, the finish line evades me....I mean, I can go forever (the energizer bunny of sex), but never get to the orgasm part.
I do understand that a lot of ladies would love to have a guy with my problem..... I mean, I'm the total opposite of the "30 second date"...... but the frustration is over the top........ I started needing the ED pills when I was only 47. I was embarrassed then that I needed them, and even more so now...
Never thought I'd be having these issues this young.............<sigh>

Any ideas folks???? or does anyone else have this issue.... guys or girls...... and what do you do?

thanks


Similar problem. Lack of climax. No ED though, thankfully. Strange thing to happen with a guy.

I try to see the bright side of things. Do the nasty for 2 hours straight? Makes for a hell of a fun time. For me, at least. I swear the last gal I was with was walking funny afterwards.

#47 Beau's Mom

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Posted 17 March 2015 - 12:36 AM

The inability to climax is most likely due to the antidepressants. It's a rather infamous side effect.

 

Dianne


I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

 

First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.

 

Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.

 

All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.


#48 FlyBaby

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Posted 17 March 2015 - 01:09 AM

Issue is Dianne, I don't nor have ever taken an antidepressant drug........ So that rules that out as the cause......


Michael

Current age= 55

First symptoms: 1975

Prior mis-diagnosis: Dyspraxia, Essential Tremors, Ataxia, "Nerves".....

Final Dx. of Parkinson's: 2013

 

DBS surgery 12/2014............ Bilateral lead placement with a single battery/stimulator on RH side. Turned on 12/21/14 

 

"I will do what i can, while I can, and when i can't, I'll do something else"

 


#49 afroney

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Posted 17 March 2015 - 09:32 AM

The inability to climax is most likely due to the antidepressants. It's a rather infamous side effect.

Dianne


Thats the strange thing, I dont take any. Wonder if its the Klonipin, Sinemet, or Requip?

#50 TexasTom

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Posted 17 March 2015 - 10:29 AM

The inability to climax is most likely due to the antidepressants. It's a rather infamous side effect.

 

Dianne

 

During Paxil Days,   near impossible to get an erection.  Haven't been on Paxil for over 10 years.

 

These days erection and climax are possible, but I'm no longer the energizer bunny.   My wife loves to be held and snuggled up to, but muscles cramp so I need to get up and walk around, rocking my feet just to get m muscles to release. Dystonia issues.   If we snuggle up, I tend to fall asleep for a few minutes, and PLMD kicks in.  Lots of little things.

 

Last night my wife was trying to talk me into snuggling up next to her, but the Husky and Bordie Collie were sleeping between us. 


Edited by TexasTom, 17 March 2015 - 10:29 AM.

Dx 9/2014  

Sinemet  25/100  8 to 10 per day.

Comtan   200mg  4 per day

 

Beautiful young people are accidents of nature, But beautiful old people are works of art. Learn from the mistakes of others. You can't live long enough to make them all yourself.   -- Eleanor Roosevelt


#51 Beau's Mom

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Posted 17 March 2015 - 10:48 AM

See, my background in mental health treatment is showing. Of course there are other reasons for ED in men, and lack of ability to have an orgasm can be due to many things in both men and women. I, too, have muscle spasms that interfere with sexual pleasure and other activities as well. I was remembering  an ex-husband who was put on Paxil and complained about having blue balls from not having an orgasm. Of course, somehow it was my fault. SSRI's are notorious for interfering with orgasm, though.

 

I have an assignment from my psychologist to discuss how my PD affects my sexual experience when I see him tomorrow. Maybe we can get one of the NPF or APDA docs to discuss it in a webinar.

 

Dianne


I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

 

First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.

 

Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.

 

All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.





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