Previous stroke patient diagnosed with PD.
Posted 30 January 2013 - 05:36 PM
Posted 30 January 2013 - 07:43 PM
Edited by Rogerstar1, 31 January 2013 - 08:30 AM.
Posted 30 January 2013 - 08:33 PM
My PD became visible in 1976, in the form of a tremor in my left hand. Only minor at first, but progressing through the years nonetheless. In 1984 I had to undergo open heart surgery to repair my damaged heart. At some point, either during the surgery or shortly afterwards, I suffered a major stroke that completely destroyed the entire right occipital lobe of my brain. The docs never knew until I was weaned off of the respirator three days later. During those three hard days, I knew something was wrong because people would be talking to me, yet I couldn't see them, unless they were firectly in front of me or on my right side. Also, something else very strange, at least to me, there was a huge clock on the wall next to my bed. I saw all of the numbers in the incorrect positions! After I was able to speak coherently, I was finally able to tell my doc that something was terribly wrong. This was day 4 post-op. I told him, rather indignantly, that I would report him if he didn't find out what was wrong with my eyes. It took a threat to get them to find out that I had a stroke! Even though it was a massive stroke, I "lucked out", it only affected my left periferal vision!
In 2001 came my "official" diagnosis of PD. At the time, shocking news, yet finally a relief to know what was wrong with me during the preceeding years, 25 years of suffering!
Fast forward to June, 2005. While on vacation I suffered my second stroke. This one paralyzed my entire right side. Couldn't talk right, couldn't walk! Being known as a fighter who refuses to give in or give up, and an exceptional physical therapy team, I walked out of the hospital under my own power three weeks later!
another fast forward, to Aug 13, 2012. That morning I awoke feeling like something was about to happen. As I laid there I could feel my right arm growing numb. Then, my right leg. I knew the signs, I was having another stroke! My wife immediately called 911, and off I went, unable to speak hardly at all, and totally unable to walk. I was in NICU for seven days, then transferred to the hospitals rehab facility. After thiry five grueling days of physical and speech therapy, I was finally discharged to home, with another 6 weeks of home nursing and physical and speech rehab. I actually thoght I was going to be in rehab the rest of my life! My home PT asked me, on her first visit, to set two goals. The first one was to get rid of the wheelchair that accompanied me home from the rehab. The 2nd goal was a little tougher .... to get rid of the walker! In two weeks I sent the wheelchair back! 4 weeks later, I was able to get around my apartment qithout a walker! In the meantime though, I still purchased a rollator. A walker with 4 wheels and a seat. For the next month I used the rollator or regular walker when my wife would take me out. Our destinations determined which "aide" to bring, depending on an approximation of how much walking I would be doing.
For the past month I am able to get "out and about" without either device! There have been times when I got a little "wobbly legged" on my right side, but I would push myself through it! My theory is that the thirty-six years of learning to compensate for the changes I had to go through because of my PD actually played a huge part in my recovery from three strokes!
My hopes and prayers are with you both!
Jim Evridge "AKA:SILVERFOXX_FIGHTING_BACK"
- Beau's Mom likes this
Posted 30 January 2013 - 09:07 PM
I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.
First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.
Diagnosed December 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.
Current medications at age 63: Duopa gel via PEG-J tube, 6ml loading dose; continuous dose 2 ml. Trazodone 150 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 135 caregiver hours per month keep me moving.
Posted 30 January 2013 - 09:44 PM
Was your husband diagnosed with idiopathic PD by a movement disorder specialist(MDS)? Did he have a brain MRI or a Datscan? One or more small strokes may produce Parkinson's-like symptoms (vascular parkinsonism). Only an experienced MDS can make this difficult differential diagnosis. Don't hesitate to ask for a second opinion, if you have any doubts about your husband's management/treatment!
Don't be alarmed about progression of symtoms, progression may be faster in the initial stages of PD, and/or your husband may be simply undertreated.
good luck and try keep positive !
-English is not my first language !
-Aged 39. Diagnosed at 35.
-Currently on madopar (levodopa and benserazide, 500mg daily) and Azilect (1mg daily).
Posted 30 January 2013 - 09:59 PM
You sound like my husband a man who refuses to let his limitations stop him. I guess what I'm wondering can you tell if physical changes are due to residual stroke or PD.
Dick uses a cane right now but is more comfortable hanging on to me especially in crowds but I want him to feel more independent and since he can't manipulate a walker without two hands I have been encouraging him to look at a power scooter. We are both concerned because of his history of falling and more of these are occurring at home. We are both concentrating on the things he can do which are still most of his daily activities it just takes him longer which is very frustrating for him. I am trying to encourage him to go out with me more but he seems to be uncomfortable manipulating in restaurants and getting to bathrooms and I'm hoping the power scooter will give him a little more confidence.
Arlene Van Dyke
Posted 31 January 2013 - 02:23 AM
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