Posted 01 February 2013 - 02:21 PM
I am running a road rally this summer with my YOPD support group to raise awareness and funds for research and to help patients in need in our area get the medication they need. What I was wondering was if any of you had any interesting facts about PD that we could use on our road rally. Or if you have any tasks that are difficult for you that we could easily have the participants reinact so they understand what we go through everyday. Thanks for all the help.
Posted 01 February 2013 - 04:45 PM
Posted 02 February 2013 - 02:07 AM
Posted 02 February 2013 - 02:09 AM
Posted 02 February 2013 - 07:40 AM
Symptoms include: Tremor, Slowness of movement, Stiffness of muscles, Loss of balance, Speech & memory difficulties, Freezing and Falling, Along with other symptoms.
Parkinson's usually affects people over the age of 60.However, people with Parkinson's being diagnosed prior to 60 is on the rise.
Young Onset Parkinson's (under 55) accounts for approximately 15% of all Parkinson's Disease cases.
People with YOPD and their families face many challenges unique to their age.
Many are still working or just getting a career underway.Many have families with children under 18.
Most are still paying bills such as mortgages, child expenses, car payments, etc.
YOPD often forces patients & their families to face some very difficult decisions early in life, including long term health care, filing for disability, loss of career and income.
There is a need for support & education for people with YOPD and their families.
Posted 02 February 2013 - 10:15 AM
Posted 03 February 2013 - 11:12 AM
SIGNS OF PD
Issues with memory and slowness of recall
Losses of balance and fears that I might fall
Problems with neurons that cause me to freeze
These are a few of the signs of PD
Neuro appointments and meds by the truckload
Shaking called tremor and voices of low tone
Cramping and stiffness that causes distress
These are the things we have more or less
Issues with sleeping and expressions of face
Dealing with drooling and slowness of pace
Confusion, depression, anxiety and stress
These are some things upon us that press
When fatigue strikes
When the leg drags
When I’m feeling bad
I simply remember that I have PD,
And that there are worse things to have
Posted 03 February 2013 - 12:25 PM
I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.
Posted 09 February 2013 - 05:23 AM
Currently age 42. Symptomatic at age 36. Diagnosed at age 39. Sinemet 2-tabs every 4 hrs (800-1000mg levodopa daily); Amantadine 100 mg 3 times/day; Primidone 50 mg 3 times/day; gabapentin 200 mg 3 times/day; Klonopin 1 mg at bedtime; Seroquel 50 mg at bedtime; Effexor 75 mg daily; Vit-D3 5000 IU daily;Vit-B Complex daily; Melatonin 3 mg at bedtime
Posted 09 February 2013 - 07:00 AM
Interesting PD fact: 20-30% (depending on which source you reference) of all PD patients do not have a tremor. In fact, tremor is not necessary for diagnosis.
interesting indeed...of all four cardinal clinical features of parkinson's (rest tremor, rigidity, bradykinesia and postural instability), bradykinesia is the most specific for PD and absolutely essential for diagnosis. in the absence of true bradykinesia (with reduction of both speed and amplitude, fatiguing and arrests of repetitive movements) the diagnosis of PD cannot be established, even if all the remaining features are present.
Edited by christie, 09 February 2013 - 07:01 AM.
-English is not my first language !
-Aged 39. Diagnosed at 35. On levodopa monotherapy (500mg daily).
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