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2 replies to this topic

#1 crmmom



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Posted 20 February 2013 - 08:35 PM

Hello, I could use some insight please. My husband was diagnosed with PD on 6/2012. He is 60 yrs old and very active. Two months ago his mds put him on azilect. After a few weeks he started making decisions that are not his usual self at all. Also his patience level dropped! He said the azilect made him shaky inside so he stopped taking it. For a couple of weeks he seemed to be getting back to his old self but then out of the blue it happens again. Actually tonight! First, could someone tell me what young onset means? Second is this normal and or is it to soon for him to be experiencing emotional affects from this disease? Also is there a book that explains the symptoms and at what stage they can surface? I just don't know what to expect and when. We are thinking about retiring early and moving to Fl. but truthfully I'm frightened about our future. Any and all help will be genuinely appreciated.

#2 jb49



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Posted 20 February 2013 - 11:27 PM

Good Evening, I'm John from Ontario. Ah, yes, you have questions. I hope I got answers. I will try anyways. First, welcome. I may not know everything but I do know that between all the members of this board, every PD symptom, every test, every emotion has been experienced.

I was on azilect as the only medicine after I was diagnosed 5 years ago. It didn't help my symptoms nor did I suffer side effects despite the warnings. Based on my experience, I would not think that azilect is causing "unusual decisions". The shakiness inside could be from the Parkinsons. However your husband found it stopped when he quit taking azilect? Azilect was sold as a neuro protector, slows the disease down. That has since been disproven. It does however help the limited dopamine in our bodies from breaking down so fast. I think he would do better if he had another type of medicine along with his azilect. Parky medicine does have the ability to affect our minds. But everyone reacts a little bit differently. You be observant of him is my best advice. For information about PD, there is lots of stuff online. If there is a support group in your locale, they may have a booklet with everything laid out. One of the confusing things about PD is that everyone experiences something a little bit different. You could also read all of the posts on this forum. Whoa, that would be a lot of reading. You said that your husband is active. Keep that aspect going. Activity is one of the best things that he can do for himself.

Get a good motion disorder specialist, a good drug routine, exercise and stay positive. Retire to Florida, It will work out okay.

Good luck, jb
  • Beau's Mom and crmmom like this
Don't be hard on yourself, try your best and be strong!

#3 LarryH0123


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Posted 23 February 2013 - 05:04 PM


I think John from Ontario summed it up nicely. Ditto to what he said.

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