Posted 22 February 2013 - 01:36 PM
Im absolutely miserable
Posted 22 February 2013 - 04:25 PM
Posted 22 February 2013 - 06:52 PM
Humph - I just had a return call. Since it took me so long to type this, I guess I'll leave it up lol. I was told to try increasing Sinemet to 1 1/2 pills rather than shortening the distance between doses. I didn't know that Sinemet causes constipation! What a double whammy! If I continue to have wearing off too soon and constipation, dr may suggest adding Compton?
Think I'll make myself a large wine soda and play Words With Friends.
Posted 22 February 2013 - 06:53 PM
I have this from time to time as well. Just seems like the meds are half the strength.
I have had PD for 17 years, I am 52 and have found that hormones certainly play a vital role in the effectiveness of the Sinemet.
Along with any other stress your body may be fighting.
For me when this happens I ask myself; Would this be that time of the month, even though I haven't had a True Period in a year?
Do I feel like I might be coming down with something? And my diet? Protien etc....
For me I would experience this wearoff for about a week, then sure enough, my period would start. Or I would have whatever illness is going around.
Really knowing, listening to your body is a real key with PD. My Neuro is great about letting me and trusting me to decide the amount of meds I need daily. I explained to him that sometimes I am up additional hours for work. Therefore, I need more during this time.
If I am chaperoning students on overnight field trips, I may be awake several more hours a day, therefore, I would exceed the prescribed daily amount. Trying to stay with the prescrided amount can be stressful in itself. I make sure I have extra meds and take them as my body needs them. It has worked well for me.
Hope this helps, good luck~
We all know that every day can be different with PD.
Posted 22 February 2013 - 07:11 PM
Thank goodness I'm on full disability and I don't have the work stress, too. Thanks again
Posted 23 February 2013 - 05:44 AM
How long have you been diagnosed with Parkinsons and how long was the "honeymoon" period for you? I'm sorry that you are not responding to medication and esp. sad to hear how difficult it is to see a doctor. I'm afraid that this is going to be the norm. My MDS at Ohio State University can't get me in as a regular patient on a six-month schedule because they don't have enough staff. I purchased a good book (The Parkinson's Disease Treatment Book, by Ahlskog) and will try to self-treat along with my PCP.
Posted 23 February 2013 - 06:18 AM
Posted 23 February 2013 - 10:44 AM
Posted 23 February 2013 - 07:58 PM
Wow, sounds like Neuro 's are hard to come by. Sorry your having to deal with that as well.
As far as the constipation goes, thanks to Kathrynne the Nutrionists on this site, she suggested magnesium vitamins.
Since I started taking them I have not had a problem.
She is a great resource!
Posted 23 February 2013 - 11:46 PM
Posted 24 February 2013 - 06:29 AM
Posted 24 February 2013 - 06:44 AM
Posted 24 February 2013 - 07:21 AM
I do the Big therapy routine.
I need to add a routine that gets my heart rate up, but so far I am too lazy!
This is good too...
Edited by Luthersfaith, 24 February 2013 - 07:30 AM.
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