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My new room at the Shalom Adult Family Home


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#1 Beau's Mom

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Posted 02 March 2013 - 03:41 PM

Here are the pictures I promised of my newly decorated room at the Shalom Adult Family Home. While such living arrangements were never a part of my life plan pre-PD, I have made the space uniquely my own.

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From upper left: The view walking into my room; the view from the recliner; the dresser and closet, looking toward the entryway, the recliner and bedside table, a view from the bed, my own art a la Matisse, and my Parkinson's Portrait.

It may be a small space, but I've made the best use of compact tiems, and it reflects me and my tastes. It's homey.

I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

 

First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.

 

Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.

 

All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.


#2 Vanillab1027

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Posted 02 March 2013 - 07:02 PM

It's looking much more like a home. Love the colors in your quilt. :-)

#3 jb49

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Posted 03 March 2013 - 08:42 AM

looks comfy Dianne. Good for you.

Be cozy.

jb
Don't be hard on yourself, try your best and be strong!

#4 MarciaJ

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Posted 03 March 2013 - 10:45 AM

Nice and comfy. You can make friends there and not even have to leave the building.

<3.<3.<3.
 

I had treatment for cancer in 2003-2004.

 

Symptoms started shortly before Diagnosed 2006. At Age 54 .

 

Waited 5 years before it was necessary to start meds. 

Meds-Carbidopa/levodopa 25-100mg cr tabs four times daily
Benztropine 2mg tabs twice daily
B12 tab for memory loss, one daily

 


#5 Jenette

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Posted 03 March 2013 - 09:40 PM

It looks awesome! Very warm and comfy.

#6 DANCER

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Posted 04 March 2013 - 06:34 AM

very bright - love your artwork and love your positive spin on things! good luck in your new digs

#7 Beau's Mom

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Posted 05 March 2013 - 02:50 PM

While my room is bright and cheery, there have been other issues. I just got a call from the owner of the AFH telling me to keep looking for a new place because they are going to be unable to meet my basic needs here. They are unwilling/unable spend the money to even become minimally functioning according to state requirements. For a few minutes I felt sad and rejected. Then I realized that their unwillingness to do what's right for me says more about them than it does about me. Then, for just a few seconds, I was angry. Then, I realized that my Source wants what is best for me and will find the right place for me because, after all, I know I don't have the energy to do it all on my own. I am now awaiting a call from the nurse delegator who oversees my care regarding some other homes in the area that might be good for me. This morning, I had prayed for guidance, gotten an answer, felt my feelings in the moment, shared my frustration with the Holy Spirit, and within minutes talked to someone who could really help. The whole process took less than 1/2 hour. I am now much more calm and will await further direction as it becomes available. When a door closes, God always opens a window! Thanks for listening!

I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.

 

First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.

Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.

 

Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.

 

All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.


#8 Luthersfaith

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Posted 05 March 2013 - 05:05 PM

One day at a time.
"So do not worry about tomorrow; for tomorrow will care for itself. Each day has enough trouble of its own."
Matthew 6:34
"I have told you these things, so that in Me you may have [perfect] peace and confidence. In the world you have tribulation and trials and distress and frustration; but be of good cheer [take courage; be confident, certain, undaunted]! For I have overcome the world." - Jesus (John 16:33)




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