Posted 24 March 2013 - 09:42 PM
I try to be honest, but keep it as short as possible. Others here have said that people don't understand YOPD...bingo! Everyone thinks my dyskinesias are tremors... When I explain that I don't have tremors, then they don't understand how I have PD... So, I explain about bradykinesia and rigidity... And it just gets more confusing. I find it a good rule to say more to those who are close and understand...and say less to those who just don't seem to get it. The simpler, the better. I'm all for educating the public, but sometimes I just don't feel like hashing through the whole thing again! I feel your pain...
So, do you still have PD?
Posted 25 March 2013 - 07:39 AM
Posted 25 March 2013 - 08:50 AM
Posted 25 March 2013 - 02:23 PM
Roy thanks for a good laugh!
I'm ok. How about those Phillies?
Posted 25 March 2013 - 03:18 PM
I keep it simple: "My brain is broken, I tell my legs to go and they say no. Big steps like stairs are easy, little steps like turning at the top of the stairs is hard. Running is easy, walking is hard."
Posted 31 March 2013 - 10:49 AM
I usually say that that is a darn good question and that I don’t know.
But as I’m telling them that, I’m thinking: What are they really asking?
So I find myself struggling with giving them a quick simple answer verses the more complicated real answer. I don’t want to dampen someone’s sincere curiosity but than again nobody—other than my doctor--wants to hear my medical history. How do you guys answer this question?
Improvise, Adapt and Overcome
Posted 31 March 2013 - 11:45 AM
Posted 31 March 2013 - 01:18 PM
Husband diagnosed in 2005-Medicines: Azilect, Artane, and Amantadine, Levodopa (1X/Day); Sister and Best Friend from Childhood also have PD
Posted 31 March 2013 - 03:16 PM
My problem question is “How long have you had Parkinson’s?”
Are you kidding ? That's a piece-of-cake question !
-How long have you had Parkinson's?
-What makes you think i have Parkinson's? (try to sound offended...)
-Didn't you just tell me that you....never mind. i'm sorry. i probably got this wrong.
-Don't worry about it.
(end of discussion...)
Happy April fool's day, everyone ! ! !
Edited by christie, 31 March 2013 - 04:25 PM.
-English is not my first language !
-Aged 39. Diagnosed at 35.
-Currently on madopar (levodopa and benserazide, 500mg daily) and Azilect (1mg daily).
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