How many of you need assistance walking, like a walker or cane?
Posted 19 March 2013 - 08:20 PM
Posted 19 March 2013 - 08:26 PM
I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.
First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.
Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.
Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.
All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.
Posted 20 March 2013 - 09:13 AM
1. for balance
2. I look intelligent leaning on it and thinking deep thoughts
3. Its a weapon against coyotes that want to bite my tasty flesh
4. When I sit I can whittle it with my pocket knife
5. It makes my non swinging right arm swing as it hits the ground.
6. I like banging the end of it onto the ground with a military like cadence
7. When I pick it up the dogs know we are going for a walk
8. I have many sticks. Some are old shovel handles, some are saplings cut from the woods or even old hockey sticks.
9. They are good for whacking things like fenceposts and tree trunks to accent my curses on bad days.
10. Sometimes they are light sabres as I battle aliens from outer space, swords as I turn back pirates, rifles as I defend the wagon train and even golf clubs as I invert it swing at a frozen horse apple and sink a 200 yard 4 iron shot to win a major golf tournament.
I think walking sticks are very good
They should be made of solid wood.
Swinging them hard as you can
Defeats the Parky Boogey Man
Posted 20 March 2013 - 11:10 AM
His problem and the need for cane is balance he sways about quite a bit, I wish he would realize he looks better and more in control with the cane than thinking he looks normal without it.
Posted 20 March 2013 - 10:14 PM
Posted 21 March 2013 - 07:35 AM
My balance problems are getting a little worse, and i must admit i wouldn't feel comfortable as a 37 year old woman walking with a cane.
-English is not my first language !
-Aged 39. Diagnosed at 35.
-Currently on madopar (levodopa and benserazide, 500mg daily) and Azilect (1mg daily).
Posted 21 March 2013 - 08:03 AM
Keep up the good work and cheerful suggestions Christie.
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