LRRK2 familial PD
Posted 22 March 2013 - 04:28 PM
Posted 22 March 2013 - 04:47 PM
You might find interesting this recent discussion on LRRK2-related parkinsonism:
-English is not my first language !
-Aged 40. Diagnosed at 35.
-Currently on madopar (levodopa and benserazide, 600mg daily) and Azilect (1mg daily).
Posted 22 March 2013 - 08:05 PM
Posted 18 May 2013 - 05:31 PM
I'm new to this forum. I was diagnosed when I was 42. I found out from 23 and Me I have LRRK2 gene. In fact, they asked if my first degree relatives would give genetic samples. They all agreed. I am an Ashkenazi Jew and have participated in the clinical trials for Ashkenazi Jews (they are looking for biomarkers) as well as a trial for early onset (Michael J. Fox Foundation Trial Finder has more info on the trials.
My paternal grandfather had PD as well as one of his brothers. What is it you would like to know?
Posted 19 May 2013 - 04:31 AM
Welcome to the YOPD Forum... I hope you are settling in and find our abode to your liking!
We're all here to jump on any questions you may have, so feel free to fire away!
Dx 2004, age 45. DBS surgery, July 2009: Bi-lateral STN placement; wires to one battery - on my left side. Battery sustained for right at 8 years and a new one was implanted October 27th, 2016. Zero Sinemet CR daily (this took six and a half years to accomplish). 100mg Amantadine 3 x daily. 60mg Cymbalta daily. SPS: Right. I invite communication with anyone who wishes to discuss DBS, PD, or any related topic; my email address is: firstname.lastname@example.org - email me if you'd like my phone number.
"Be kind, for everyone you meet is fighting a hard battle." --Plato
Posted 21 June 2013 - 11:01 AM
Edited by dgray001, 21 June 2013 - 11:02 AM.
Posted 29 June 2013 - 10:02 AM
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