Can anything good come from having PD?
Posted 23 March 2013 - 01:22 PM
PD is a terrible dis-ease that robs life's normal routine, balance is poor, walking is very difficult and a bunch of other crap is making my body act as if it was 98 - I'm 54
Yet in the dis-ease I have been amazed at the wonder of what I use to consider "normal."
For example, walking three steps is simply amazing to me now. How our bodies and minds keep balance as we shift all of our weight from one leg to another without even thinking about it! Some people believe this body of ours developed by "chance" (evolution) with no Designer putting us together. Our body is so complex... I cannot believe it came to be without some One designing it.
Posted 23 March 2013 - 01:59 PM
However, my good may be someone else’s not so good.
Improvise, Adapt and Overcome
Posted 23 March 2013 - 03:46 PM
Dx'd 3/12 @ 48. Symptoms 7 years prior.
carbidopa/l dopa 25/250 6x daily, CR 2 pills at bedtime
No DaT scan, normal MRI. Dx'd by observation of neurologist,
Symptoms: left side rigidity when "off", sleep disruption, no sense of smell, minor fatigue, back pain
Still an optimist - what is wrong with me?
Posted 23 March 2013 - 05:25 PM
I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.
First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.
Diagnosed December, 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.
Current medications at age 62: Sinemet 25/100 ODT every 2.5 hours while awake (7/day). One Sinemet 25/100 CR between midnight and 4 AM. Trazodone 200 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 115 caregiver hours/month keep me sane.
All of the above subject to change based on progression, stress level, and dyskinesia. Whew! I'm glad I finally wrote that all out.
Posted 24 March 2013 - 11:02 AM
-English is not my first language !
-Aged 39. Diagnosed at 35.
-Currently on madopar (levodopa and benserazide, 500mg daily) and Azilect (1mg daily).
Posted 24 March 2013 - 02:04 PM
Posted 24 March 2013 - 05:42 PM
Posted 24 March 2013 - 09:20 PM
I agree with others here that PD can be used for good. Sure, if it had been my choice, I wouldn't have asked for it. However, I believe that we are often presented with trials in this life so that we can become more like the One who orchestrates the trials in the first place, but also so that we can eventually be of help to someone else who is facing or struggling with the same thing. Empathy is a great quality...but remember that to gain it, we must be taught by the very "beast" that we are eventually able to empathize with. There's no way around that. My trust is in God...who created me, sustains me, and desires the best for me...it's not always easy, but growth of any kind never is. He doesn't promise an easy road (in fact, quite the opposite), but He does promise to always be with me. Faith is my lifeline...I've always been up front about that. I know there is always a reason for what God does, even if it's only to cause me to depend on Him more. Peace and blessings to each of you...
Posted 25 March 2013 - 07:03 AM
"For [Susan's husband, John], it's been an understandably difficult time. "Every day I wake up, and I feel sad. That's my first emotion," he says. "And then I roll over, and I look at Susan, and I realize that she's not allowing herself to feel that way, so I can't, and I don't." Susan adds that she has down moments but is "generally doing pretty darn well.""
Wow. Inspiring indeed.
Thanks, vietkieu, for sharing Susan's story.
Edited by OneWingedVictory, 25 March 2013 - 07:05 AM.
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