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Can anything good come from having PD?

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9 replies to this topic

#1 Luthersfaith


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Posted 23 March 2013 - 01:22 PM

Yes, for me it is true... good can come from PD.

PD is a terrible dis-ease that robs life's normal routine, balance is poor, walking is very difficult and a bunch of other crap is making my body act as if it was 98 - I'm 54

Yet in the dis-ease I have been amazed at the wonder of what I use to consider "normal."

For example, walking three steps is simply amazing to me now. How our bodies and minds keep balance as we shift all of our weight from one leg to another without even thinking about it! Some people believe this body of ours developed by "chance" (evolution) with no Designer putting us together. Our body is so complex... I cannot believe it came to be without some One designing it.
"I have told you these things, so that in Me you may have [perfect] peace and confidence. In the world you have tribulation and trials and distress and frustration; but be of good cheer [take courage; be confident, certain, undaunted]! For I have overcome the world." - Jesus (John 16:33)

#2 Ken_S


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Posted 23 March 2013 - 01:59 PM

From my perspective: Yes, good can come from having Parkinson’s.

However, my good may be someone else’s not so good.

Improvise, Adapt and Overcome

#3 bjenczyk


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Posted 23 March 2013 - 03:46 PM

Absolutely, yes. It gives me the opportunity to live my faith, to honor my Lord and to serve others. It lets me learn joy in suffering, contentment in trial, and strength in weakness. It let's me serve as a witness to God's goodness. As Paul says in Philippians chapter 4: "... I have learned in whatever situation I am to be content. 12 I know how to be brought low, and I know how to abound. In any and every circumstance, I have learned the secret of facing plenty and hunger, abundance and need. 13 I can do all things through him who strengthens me."

Dx'd 3/12 @ 48. Symptoms 7 years prior.
carbidopa/l dopa 25/250 6x daily, CR 2 pills at bedtime
No DaT scan, normal MRI. Dx'd by observation of neurologist,

Symptoms: left side rigidity when "off", sleep disruption, no sense of smell, minor fatigue, back pain


Still an optimist - what is wrong with me?

#4 Beau's Mom

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Posted 23 March 2013 - 05:25 PM

YES!!!! PD has taught me to bloom where I am planted, and that the quality of my life depends not so much with what happens to my body, but what goes on in my mind!
  • Rogerstar1, woodbee, OneWingedVictory and 3 others like this

I am not a human being trying to have a spiritual experience; I am a spiritual being having a (sometimes difficult) human experience.


First symptoms: right-hand tremor, constipation and restless arms 1978 (age 25). Depression and anxiety (non-motor symptoms) began in 1989 and worsened through the years. Last inpatient episode June 2013.


Diagnosed December 2010 by a regular neurologist (age 57). After negative reactions to Requip, Mirapex and selegiline began Sinemet 25/100 3x/day. First MDS visit in Houston in February of 2011 was inconclusive. Second MDS visit at Baylor Fort Worth in May/June 2011 diagnosis changed to Parkinsonism, Sinemet stopped. Third MDS visit in August 2011 in WA State: received a confirmed diagnosis of idiopathic PD which had started on the right side and had now crossed to the left side as well. Restarted on Sinemet 25/100 4x/day. A short trial of Amantadine caused audio hallucinations in September 2011.


Current medications at age 63: Duopa gel via PEG-J tube, 6ml loading dose; continuous dose 2 ml.  Trazodone 150 mg at bedtime, Fluvoxamine 300 mg at bedtime. Clonazepam 0.5 mg morning and afternoon, 1 mg at bedtime. Vit D3 2x/day, Calcium Carbonate Susp. 5 cc daily, Baclofen 10 mg 3x/day, Flonase two sprays 2x/day, Calcitonin-Salmon nasal spray once daily (for osteoporosis). Gel eye drops as needed throughout the day, Restasis Eye drops 2x/day, Nighttime eye ointment at bedtime. 02 2L per nasal cannula while asleep. Walker, electric wheelchair, moist and soft or pureed foods and 135 caregiver hours per month keep me moving.


Edited 2/5/2016

#5 Jenette


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Posted 24 March 2013 - 01:14 AM

I'm still waiting..........

#6 christie


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Posted 24 March 2013 - 11:02 AM

"Good" and PD simply don't match...Ups...wait ,yeah, there is something...PD made me realize who my real friends are. Who really cares for me and who doesn't. Who i can count on. Total eye opening experience. not always pleasant. my path now is much more difficult and lonely than before. but somehow i' ve learnt that no "good" can come from living in a dream.
  • Beau's Mom and bajansunbabe like this

-English is not my first language !

-Aged 40. Diagnosed at 35.

-Currently on madopar (levodopa and benserazide, 600mg daily) and Azilect (1mg daily).

#7 OneWingedVictory


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Posted 24 March 2013 - 02:04 PM

Can anything good come of having PD? Yes, I guess it is a much clearer understanding that we have a finite amount of time and should not waste it in unhappiness.
  • ottergrrrl, Beau's Mom and bajansunbabe like this
The One Winged Victory of Samothrace is a metaphor for our struggles, despite the odds, to keep steady and accept grace in the face of punishing adversity.

#8 vietkieu



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Posted 24 March 2013 - 05:42 PM

A book " Until I say Goodbye" written by Susan Specer-Wendel a woman who has MS whose only part of her body she can control is her right thumb with which she typed 89.000 words on her iPhone the "final wonderful year of her life" was a real inspiration for those who suffered serious illnesses like hers. Her philosophy was there 's death but first there is life and her advice is do what you delight in and do it no matter what. Quit complaining, accept and live with joy. The sale of her book world wide and the copyright to a film will bring her millions of dollars and will ensure financial security for her husband and children. What a marvellous example!
  • OneWingedVictory, Beau's Mom, Luthersfaith and 2 others like this

#9 Mihai


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Posted 24 March 2013 - 09:20 PM

Hello friends,

I agree with others here that PD can be used for good. Sure, if it had been my choice, I wouldn't have asked for it. However, I believe that we are often presented with trials in this life so that we can become more like the One who orchestrates the trials in the first place, but also so that we can eventually be of help to someone else who is facing or struggling with the same thing. Empathy is a great quality...but remember that to gain it, we must be taught by the very "beast" that we are eventually able to empathize with. There's no way around that. My trust is in God...who created me, sustains me, and desires the best for me...it's not always easy, but growth of any kind never is. He doesn't promise an easy road (in fact, quite the opposite), but He does promise to always be with me. Faith is my lifeline...I've always been up front about that. I know there is always a reason for what God does, even if it's only to cause me to depend on Him more. Peace and blessings to each of you...


  • Beau's Mom and Luthersfaith like this
Diagnosed in 2001 at 33 years of age

#10 OneWingedVictory


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Posted 25 March 2013 - 07:03 AM

Susan Spencer-Wendel was diagnosed with ALS in 2011 when she was 44 years old. She is married and has three children. The following is an excerpt from a recent interview with the couple on NPR:

"For [Susan's husband, John], it's been an understandably difficult time. "Every day I wake up, and I feel sad. That's my first emotion," he says. "And then I roll over, and I look at Susan, and I realize that she's not allowing herself to feel that way, so I can't, and I don't." Susan adds that she has down moments but is "generally doing pretty darn well.""

Wow. Inspiring indeed.

Thanks, vietkieu, for sharing Susan's story.

Edited by OneWingedVictory, 25 March 2013 - 07:05 AM.

The One Winged Victory of Samothrace is a metaphor for our struggles, despite the odds, to keep steady and accept grace in the face of punishing adversity.

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